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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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Reply | Forward Message #16824 of 17533 |
I had an Indstant Message from a PNHer named Ram,but I accidentally
deleted your yahoo ID. Sorry - that was unintentional. If you read
this please contact me again

thaigirlnzoe@...

Thanks and sorry.
Mon Aug 9, 2004 9:07 pm

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thaigirlnzoe
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Forward 		Message #16824 of 17533 |
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I had an Indstant Message from a PNHer named Ram,but I accidentally deleted your yahoo ID. Sorry - that was unintentional. If you read this please contact me... 		thaigirlnzoe
Offline Send Email 		Aug 9, 2004
9:08 pm

Hello , Iam Ram and iam presently in georgia, usa. i send u message just to make u friend and share our feelings and experience about the disease. Never mind...
amilineni ram mohan c...
amilineni1
Offline Send Email 		Aug 15, 2004
3:57 pm

Hello, I feel the treatment for PNH still needs to be looked at. I had PNH about 5 years ago. I had a bone marrow transplant. I only would notice period of...
Alison
alison@...
Send Email 		Aug 15, 2004
4:26 pm

Hello Ram; What are you doing in Georgia? School? I am Melissa, I have knowingly lived with PNH for 7+ years. I do not take prednisone unless I absolutely...
Melissa White
mzlippy
Offline Send Email 		Aug 16, 2004
11:43 pm

Hello melissa, Thanks for the mail, iam basically from india and iam on H1b here, i have completed masters in india in digital systems and computer electronics...
amilineni ram mohan c...
amilineni1
Offline Send Email 		Aug 18, 2004
2:03 pm
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