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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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Reply | Forward Message #16823 of 17533 |
Re: [PNHdisease] new website

Brenda;
 
Have you already registered at the new website?   I know AOL users were having some difficulties (not sure if this has been fixed as I don't use AOL).
 
The posts on that site are not all on one list like the old site...although I thought I saw an email to Adrian requesting that; but I'm not sure if this has been done.
You can get to the daily posts by going to the PNH Forum (left side of screen) and then to daily posts and pick a topic.
 
Let me know if you need more help and I will have Adrian email directly to you, that way he can walk you through step by step.
Talk to you soon.


 

Your Friend in PNH;  

Melissa White (97)

"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly."

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Mon Aug 9, 2004 8:53 am

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mzlippy
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Forward 		Message #16823 of 17533 |
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Hi to any of our old group that may be able to help. I can get into the new webite but just want to read everyones letters like we used to on here, but cant... 		Brenda McLean
chelsugar
Offline Send Email 		Aug 8, 2004
4:59 am

Hi, Brenda! Have you created a nickname and password yet? you have to do that before you can read the messages. Once you've done that, and you log in, there's...
Sharon K. Glover
skglover2000
Offline Send Email 		Aug 8, 2004
6:04 am

Hi Brenda; Melissa Here.....How are you? How are you feeling? It's good to see your post. I use yahoo for personal email too...so I check it often and love...
Melissa White
mzlippy
Offline Send Email 		Aug 9, 2004
8:43 am

Hi Melissa, thanks for that. I miss the old way as well but I am sure once I get the hang of things it might be OK. Chelsea my daughter is the one with PNH...
Brenda McLean
chelsugar
Offline Send Email 		Aug 10, 2004
7:06 am

Hi Brenda; I'm sorry Chelsea's counts are down....Winter time here in CA - my counts always drop too. I'm not sure if it's because my immune system drops or...
Melissa White
mzlippy
Offline Send Email 		Aug 10, 2004
7:53 pm

Thanks for that, I'm hoping the warmer weather will help improve things too! Brenda ... From: Melissa White To: PNHdisease@yahoogroups.com Sent: Wednesday,...
Brenda McLean
chelsugar
Offline Send Email 		Aug 12, 2004
10:13 pm

Brenda; Have you already registered at the new website? I know AOL users were having some difficulties (not sure if this has been fixed as I don't use AOL). ...
Melissa White
mzlippy
Offline Send Email 		Aug 9, 2004
8:53 am

hi Sharon thanks for that, I have my passowrd etc and can get in just couldnt seem to find my way, I will print off your instructions and give it a go. Thanks...
Brenda McLean
chelsugar
Offline Send Email 		Aug 10, 2004
7:02 am
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