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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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Reply | Forward Message #16820 of 17533 |
Hi to any of our old group that may be able to help.  I can get into the new webite but just want to read everyones letters like we used to on here, but cant quite work out where i should go, can anyone give me some basic hints, I must be doing something wrong,.
 
thanks Brenda
Sat Aug 7, 2004 5:24 am

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chelsugar
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Forward 		Message #16820 of 17533 |
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Hi to any of our old group that may be able to help. I can get into the new webite but just want to read everyones letters like we used to on here, but cant... 		Brenda McLean
chelsugar
Offline Send Email 		Aug 8, 2004
4:59 am

Hi, Brenda! Have you created a nickname and password yet? you have to do that before you can read the messages. Once you've done that, and you log in, there's...
Sharon K. Glover
skglover2000
Offline Send Email 		Aug 8, 2004
6:04 am

Hi Brenda; Melissa Here.....How are you? How are you feeling? It's good to see your post. I use yahoo for personal email too...so I check it often and love...
Melissa White
mzlippy
Offline Send Email 		Aug 9, 2004
8:43 am

Hi Melissa, thanks for that. I miss the old way as well but I am sure once I get the hang of things it might be OK. Chelsea my daughter is the one with PNH...
Brenda McLean
chelsugar
Offline Send Email 		Aug 10, 2004
7:06 am

Hi Brenda; I'm sorry Chelsea's counts are down....Winter time here in CA - my counts always drop too. I'm not sure if it's because my immune system drops or...
Melissa White
mzlippy
Offline Send Email 		Aug 10, 2004
7:53 pm

Thanks for that, I'm hoping the warmer weather will help improve things too! Brenda ... From: Melissa White To: PNHdisease@yahoogroups.com Sent: Wednesday,...
Brenda McLean
chelsugar
Offline Send Email 		Aug 12, 2004
10:13 pm

Brenda; Have you already registered at the new website? I know AOL users were having some difficulties (not sure if this has been fixed as I don't use AOL). ...
Melissa White
mzlippy
Offline Send Email 		Aug 9, 2004
8:53 am

hi Sharon thanks for that, I have my passowrd etc and can get in just couldnt seem to find my way, I will print off your instructions and give it a go. Thanks...
Brenda McLean
chelsugar
Offline Send Email 		Aug 10, 2004
7:02 am
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