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55 redhairedmaire Offline Send Email Sep 1, 2006
6:11 pm
Hello, my name is Mary. My brother, Sean is 36. We found out on August 7th that he was HIV positive. On August 9th he was admitted to University Hospital...
56 Ron
pdxron31 Offline Send Email
Sep 1, 2006
6:54 pm
Hi Mary, I am sorry to hear of your brother Sean's diagnosis. First let me say that it is wonderful you are there to support him, he is going to need it....
57 Ron
pdxron31 Offline Send Email
Sep 1, 2006
7:00 pm
Jeanette, If you are willing, can you give us an update on your brother Simon's condition? I have been thinking about you both and know you had plans to visit...
58 redhairedmaire Offline Send Email Sep 2, 2006
3:56 pm
Dear Ron, Thanks for the kind words. It's funny, my family. We all fight like cats and dogs and now we're all fighting about who gets to spend time with...
59 Ron
pdxron31 Offline Send Email
Sep 2, 2006
4:49 pm
Hi Mary, I love your attitude and spirit regarding your brother. I thank you for sharing and would like to just add a few comments if I may. I want to preface...
60 Mark
bizzell42 Offline Send Email
Sep 2, 2006
5:55 pm
I was at a low of 24 T-cells and a viral load of 400,000 so your brother Sean has me beat:) Although the outcome may be in doubt, with a good HIV med combo he...
61 miamifloridajenny
miamiflorida... Offline Send Email
Sep 3, 2006
9:55 pm
... This if for Ron and Ian All did not go as we thought on our last visit to see Simon. On Saturday he seemed pretty much the same, he showed some recognition...
62 miamifloridajenny
miamiflorida... Offline Send Email
Sep 3, 2006
9:55 pm
My heart goes out to you Mary. I like you searched everywhere to find some hope. I was optomistic a month ago but now after seeing Simon last weekend and how...
63 Ron
pdxron31 Offline Send Email
Sep 4, 2006
8:14 pm
Dearest Jeanette, Thank you for sharing your painful story with us. I never really know what to say in times such as this, but I think that ignoring your ...
64 larrygreenwood
laboy102003 Offline Send Email
Sep 4, 2006
11:34 pm
i want to tell you my story of how i surivovived PML i was diagonised back in 2003 it effected my leftside of my body it has been paralyzed i had trouble...
65 Mark
bizzell42 Offline Send Email
Sep 5, 2006
6:37 pm
Yesterday I came across one of the funniest and most horrifying books I've ever read. It was written by a woman who had stroke and tells of her experices...
66 Bobby
handymanbob2 Offline Send Email
Sep 8, 2006
5:04 pm
I wanted to first of all make some corrections: This is my correct email. For some reason it put an old email. I am doing better now and walking on my own. Tro...
67 larry greenwood
laboy102003 Offline Send Email
Sep 9, 2006
12:31 am
well it is nice to hear from you both do you have a paralyzed arm like myself my left arm is paralyzed so it has no use is that how you are i can still type...
68 redhairedmaire Offline Send Email Sep 9, 2006
3:43 am
Well, I wanted to take a few minutes to update all of you on Sean's progress. You've all been so supportive and loving. I love you all and you're all in my...
69 redhairedmaire Offline Send Email Sep 9, 2006
3:43 am
What part of your brain did you have lesions on (Ferris Beuller - Anyone? Anyone?)? Sean's is in the temporal lobe....
70 videobob@...
handymanbob2 Offline Send Email
Sep 9, 2006
3:49 am
Hi, Its my right arm and it is slowly coming back. I hunt and type so I'm not as fast as it seems. But I am always near my computer.It takes a while to finish...
71 miamifloridajenny
miamiflorida... Offline Send Email
Sep 9, 2006
8:18 pm
Ron, I just wanted to let you know that they stopped all of Simons medications except for pain meds on Tues. So now we just wait for a call. It is right in...
72 larry greenwood
laboy102003 Offline Send Email
Sep 9, 2006
8:19 pm
not sure what part mine are in whatever controls the leftside of body i guess you could say cause that is all it has effected which is actually on the...
73 larry greenwood
laboy102003 Offline Send Email
Sep 9, 2006
8:23 pm
well bob sounds like you are doing great ionly wish some use would come back to my left arm but doctors do not think it will ever happen for me but i remain...
74 Ian
ianwyoung Offline Send Email
Sep 10, 2006
12:58 am
... come back to my left arm but doctors do not think it will ever happen for me but i remain hopefull well take care bob hope all is well for you luckily i...
75 orlaassistance
orlaassistance@... Send Email
Sep 12, 2006
1:05 am
A friend in Paris e mailed me a link to this info group today and i thought i would sign in. I am Kevin, i am 43 years old, diagnosed HIV positive when i was...
76 Bobby
handymanbob2 Offline Send Email
Sep 12, 2006
2:54 pm
Have you recoverd totally?...
77 larry greenwood
laboy102003 Offline Send Email
Sep 12, 2006
7:37 pm
good to hear you must have caught it early so not much damae was done some of us were not so lucky have to just take time for the rest of us Bobby...
78 Mark
bizzell42 Offline Send Email
Sep 12, 2006
9:12 pm
Hi Kevin and welcome to the group. It is inspirational to hear of long term survivors. If you don't mind, let us know what meds you are taking and any other...
79 larry greenwood
laboy102003 Offline Send Email
Sep 13, 2006
2:43 am
i am just taking meds for my HIV which are kaletra fosamprenaver truvada and my seizuere pills which are oxecarbenzpine twice a day and at niht i take a...
80 garywww462
garywww462@... Send Email
Sep 15, 2006
8:53 pm
I was reading some posting from New The Body and saw the web site for this support group. After reading several of you're stories I was compelled to share...
81 redhairedmaire Offline Send Email Sep 16, 2006
1:27 am
Hi everyone, this has been the week from hell. The hospital wanted to discharge Sean and send him to the nursing home. They had to send him with the NG tube...
82 garywww462
garywww462@... Send Email
Sep 16, 2006
2:50 pm
... wanted to ... him ... eat. ... wanted ... detectable. ... and ... hands to ... the ... back. ... the ... and ... The ... back ... doctors ... allow ... ...
83 Ian
ianwyoung Offline Send Email
Sep 16, 2006
3:45 pm
... send ... peg ... time ... to ... get ... minutes ... again ... reinsertion. ... only ... done ... the ... he ... nothing ... been ... told ... available ...
84 Mark
bizzell42 Offline Send Email
Sep 16, 2006
3:50 pm
Your stories brought tears to my eyes. What to do? What to do? I have come to believe everyone is different in how they want to live and die, and both...
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