Congratulations to all those passing significant milestones,in fact May marked the 2 year mark for me!At the onset my family was told to expect the worst,I...
41
coveteran32
tlrnc@...
Aug 1, 2006 5:23 pm
Congrats Ron! Every recovery is a win! Well, It is past the 2 weeks DEAD-line the doctor gave my partner. Even as I write this he is doing better. He is still...
I'm sorry, I don't know your name, but I wanted to thank you for the congratulatory comments and the update on your partner, Bob! I empathize with you both as...
... HAART ... minerals ... up. ... him ... and ... his ... just ... is ... now ... Maybe ... this ... Reply by Ian,Believe me,I was in a situation like...
met w/ my dr. and he did not add drug to better penetrate brain barrier as i am undetec and studys show suppression of virus in plasma = suppression in CFS...
45
Bobby
annonomous@...
Aug 16, 2006 5:05 pm
... In ... experience ... job ... pissed ... of ... the ... come ... up??? ... the ... no ... like ... penicillin. ... were ... something ... that ... drove ...
I saw on thebody.com a post from a desperate sister whose bro has PML and who wanted to know if there is a site for PML survivors. I wrote Ben Young MD. on...
Hi Mark,that's good news. The grow back rate for myelin is new to me. I will probably always wear some sort of ankle brace but I'm slowly starting to walk...
Hi everyone. Hey Mark, thanks for letting us know about the regrowth rate of myelin. I had never heard of that before! I did read something about Fibrin being...
Doc said they use to think myelin didn't grow back, but now they know it does. Definitely let us know how the suppl. works out and I'll report on how the...
50
miamifloridajenny
miamifloridajenny@...
Aug 19, 2006 3:23 pm
I am the one on body.com trying to find some sort of support group. This last month has been awful first finding our bother after 13years and then he is in a...
51
coveteran32
tlrnc@...
Aug 19, 2006 3:25 pm
Hello to all. I am happy to report that Bob has been able to turn this PML around. He is able to walk on his own. Slowly mind you, but he is able to do it. At...
... group. ... 13years ... maybe ... guessing. ... from ... hospital ... had ... drugs and ... doctor ... worse ... from ... he ... what ... Hi Jenny, Thank...
... this ... is ... him! ... needed ... His ... about ... improvements. ... has or ... pepsi. ... Hello Troy & Bob! I am so happy to hear things are improving!...
Hello, my name is Mary. My brother, Sean is 36. We found out on August 7th that he was HIV positive. On August 9th he was admitted to University Hospital...
Hi Mary, I am sorry to hear of your brother Sean's diagnosis. First let me say that it is wonderful you are there to support him, he is going to need it....
Jeanette, If you are willing, can you give us an update on your brother Simon's condition? I have been thinking about you both and know you had plans to visit...
Dear Ron, Thanks for the kind words. It's funny, my family. We all fight like cats and dogs and now we're all fighting about who gets to spend time with...
Hi Mary, I love your attitude and spirit regarding your brother. I thank you for sharing and would like to just add a few comments if I may. I want to preface...
I was at a low of 24 T-cells and a viral load of 400,000 so your brother Sean has me beat:) Although the outcome may be in doubt, with a good HIV med combo he...
... This if for Ron and Ian All did not go as we thought on our last visit to see Simon. On Saturday he seemed pretty much the same, he showed some recognition...
My heart goes out to you Mary. I like you searched everywhere to find some hope. I was optomistic a month ago but now after seeing Simon last weekend and how...
Dearest Jeanette, Thank you for sharing your painful story with us. I never really know what to say in times such as this, but I think that ignoring your ...
i want to tell you my story of how i surivovived PML i was diagonised back in 2003 it effected my leftside of my body it has been paralyzed i had trouble...
Yesterday I came across one of the funniest and most horrifying books I've ever read. It was written by a woman who had stroke and tells of her experices...
I wanted to first of all make some corrections: This is my correct email. For some reason it put an old email. I am doing better now and walking on my own. Tro...
well it is nice to hear from you both do you have a paralyzed arm like myself my left arm is paralyzed so it has no use is that how you are i can still type...
Well, I wanted to take a few minutes to update all of you on Sean's progress. You've all been so supportive and loving. I love you all and you're all in my...
Hi, Its my right arm and it is slowly coming back. I hunt and type so I'm not as fast as it seems. But I am always near my computer.It takes a while to finish...
