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Messages 1860 - 1890 of 1981   Oldest  |  < Older  |  Newer >  |  Newest
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1860 mikarytky Offline Send Email Feb 1, 2012
4:36 pm
... finally auli verkkoniniemi known fot her work in alzheimers with AIDS Patients and various other neurological ccomplications my ms neuro whose training...
1861 mikarytky Offline Send Email Feb 1, 2012
4:45 pm
1862 Ron J Crutcher Jr
pdxron31 Offline Send Email
Feb 1, 2012
5:14 pm
That's fantastic news that she convinced the other physician to proceed with treatment, but did I understand you correctly? She admitted to having kept you on...
1863 Alan Kelchner
a.kelchner Online Now Send Email
Feb 1, 2012
5:38 pm
It's great that you got the second opinion and that it went your way !  Ron, I read the Tysabri issue as the doctor explaining why she didn't take him off the...
1864 mikarytky Offline Send Email Feb 1, 2012
5:52 pm
... she made convincing case and as crabdrygwere ineffective controlling my relapses copaxone rebif avonex and betaseron...
1865 Wesley Long
wlong35 Offline Send Email
Feb 1, 2012
7:09 pm
I know there are lawyers involved for some medication, you might want to check into it. Although drs may no better than us they are human & make mistakes. If...
1866 Wesley Long
wlong35 Offline Send Email
Feb 3, 2012
4:48 am
I wonder if I I'll have the chance to recover. My benefits ended on 1/26 & I can't afford my medications so I might not have a chance to recover. A lot to lose...
1868 mikarytky Offline Send Email Feb 15, 2012
1:05 pm
yesterday i was moved to laakso rehabilitation unit where i can resume PT and receive proper care and medication as medical professionals take me seriously,...
1869 Russell Collins
hoodoo_64 Offline Send Email
Feb 15, 2012
6:50 pm
great news! now you can begin your journey back. just remember to be patient and to bask in all your progress. Russell From: mikarytky Sent: Wednesday,...
1870 michealscott86 Offline Send Email Mar 7, 2012
2:49 pm
Hello , I have just found this group in passing - I hope I am not intruding upon by joining. Following a bout of seizures and a seizure induced coma in spring...
1871 Ron J Crutcher Jr
pdxron31 Offline Send Email
Mar 7, 2012
4:04 pm
Welcome, Michael! No apology required. Welcome to our little family and thank you for sharing your story of survival. Having been diagnosed with PML myself in...
1872 Alan Kelchner
a.kelchner Online Now Send Email
Mar 7, 2012
9:18 pm
Welcome, Michael ! No one who signs onto the list is ever intruding.  We all live in relative isolation from other survivors so this is a good place to talk...
1873 Wesley Long
wlong35 Offline Send Email
Mar 8, 2012
4:08 pm
Welcome & as everybody said don't feel bad about writing anything thank you. Feel free to say what is on your mind. I was diagnosed with HIV in April 2010 &...
1874 fezba Offline Send Email Mar 9, 2012
2:43 am
I know.....I Know.... Long time, no posts! Hope all is good with everyone, by the way Evelyn, S.F. is only about 8 hrs from Klamath Falls Oregon and "Crater...
1875 Alan Kelchner
a.kelchner Online Now Send Email
Mar 9, 2012
2:58 am
Kathy, I am so glad that your news is so good.  And your positive attitude is marvelous and will be so good for you and Tucker.  The both of you keep it up! ...
1876 bad134@...
fezba Offline Send Email
Mar 9, 2012
3:02 am
Hello Michael...WELCOME! I haven't posted for a while but check the site and think of the family here often! My son was diagnosed in Oct of 2007 with pml...
1877 Russell Collins
hoodoo_64 Offline Send Email
Mar 9, 2012
6:04 am
great to hear that all is going well for tucker..... and for you as well. From: Alan Kelchner Sent: Thursday, March 08, 2012 9:45 PM To:...
1878 bad134@...
fezba Offline Send Email
Mar 9, 2012
6:11 am
Thanks Russell....Think of you whenever i get a silly Kitty post on my fb page, ((Hugs)) to you! email - bad134@... Phone - 541.884.0134 On Thu, Mar 8,...
1879 H Conklin
hlconklin Offline Send Email
Mar 9, 2012
7:05 pm
Very good news indeed....thanks for sharing! HL Conklin ________________________________ From: "bad134@..." <bad134@...> To:...
1880 Alan Kelchner
a.kelchner Online Now Send Email
Mar 10, 2012
1:44 am
Hi everyone - I just wanted to update you in what's going on. I think I told you about the awful headaches I went through the end of last year.  Serious...
1881 bad134@...
fezba Offline Send Email
Mar 10, 2012
1:53 am
Alan, Tuckers last seizure in Feb was also different, reason for the recent MRI. He was conscious enough to use the phone and said he felt it coming but not...
1882 Alan Kelchner
a.kelchner Online Now Send Email
Mar 10, 2012
4:39 am
I'm glad that Tucker is ok after his seizures.  They're never any fun.  I almost never have any warning so I just drop to the floor/sidewalk.  Or as I call...
1883 bad134@...
fezba Offline Send Email
Mar 10, 2012
4:53 am
Wow....You know, Tucker doesn't share all of his experiences with me...I wonder if he's had experiences like yours. He shared with us (after the fact) that...
1884 Russell Collins
hoodoo_64 Offline Send Email
Mar 10, 2012
5:43 pm
I must say that I feel lucky to have never experienced any seizures , although I do get “tingling” on my effected side. this happens rarely but when it...
1885 Alan Kelchner
a.kelchner Online Now Send Email
Mar 10, 2012
5:54 pm
There's all sorts of reasons us survivors don't tell everything that's happening.  For me, if I complained about everything there'd be no time for anything...
1886 Wesley Long
wlong35 Offline Send Email
Mar 10, 2012
6:35 pm
Never feel like a hypochondriac at least you are able to tell people,toss your pride out the window. I cried when I was diagnosed with pml even though I didn't...
1887 Alan Kelchner
a.kelchner Online Now Send Email
Mar 10, 2012
9:12 pm
Wesley, that's a very wise approach that we all should take in dealing with this.  I'm jealous, and at the same time not, of your being able to cry when you...
1888 Russell Collins
hoodoo_64 Offline Send Email
Mar 11, 2012
4:51 am
that’s odd Alan, I’ve had the complete opposite problem. my emotions were raw. I’d cry at the drop of a hat and explode with rage over the littlest...
1889 a.kelchner@...
a.kelchner Online Now Send Email
Mar 11, 2012
1:28 pm
That's the thing of it - no two people's issues are the same because PML never attAcks in the same way. I usually compare it to a broken leg when trying to...
1890 Wesley Long
wlong35 Offline Send Email
Mar 11, 2012
4:23 pm
We all know that life is precious. For what it is worth,I'm sorry about your mom,I know it was a while ago but she would want you to recover. I know I worry...
Messages 1860 - 1890 of 1981   Oldest  |  < Older  |  Newer >  |  Newest
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