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Messages 12 - 41 of 1981   Oldest  |  < Older  |  Newer >  |  Newest
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12 nycwestguy Offline Send Email Jul 1, 2006
7:18 pm
Hi everyone its John in NYC I have been address as many things never a "PMLian" JEFF I love it! Hople all is well and i enjoyed all the recent post I would...
13 Ron
rkudrako Online Now Send Email
Jul 2, 2006
10:52 pm
Pennsylvania 2000 to September 2001 Near the end of February 2000, right after a blizzard was cleared, I was loaded into a medical transport van at my...
14 Mark
bizzell42 Offline Send Email
Jul 4, 2006
7:05 pm
Hey gang! What other drugs do you take besides HIV drugs? I was taking Ambien CR (sleep), Periactin (increases appetite), Vicodin (back pain), and Ativan...
15 Ron
pdxron31 Offline Send Email
Jul 4, 2006
10:37 pm
... Hi Mark! Thanks for posting a photo of yourself, you're such a handsome fella. Happy Independence Day to you BTW! To answer your question, I take Sustiva...
16 nycwestguy Offline Send Email Jul 5, 2006
8:45 pm
Hello everyone! I hope your 4th went well. Mine was very quiet for a NYC 4th of July. I take Epzicon and Viramune as HIV meds. My T-cells are 992 & VL is...
17 Ron
rkudrako Online Now Send Email
Jul 6, 2006
3:10 pm
... NYC 4th of July. I take Epzicon and Viramune as HIV meds. My T-cells are 992 & VL is undetectable. I also take Baclophen for spasticity, Ativan 0.5mg as...
18 jkoch43004 Offline Send Email Jul 6, 2006
6:01 pm
I can't figure out how to include the link to my Yahoo Pictures to my profile so I thought I'd just send it as a message :) This way it gives you an idea as...
19 jkoch43004 Offline Send Email Jul 6, 2006
6:08 pm
Hi guys,I've had a rough 48 hours because I twisted my knee on the 4th. Wish I could say it was alcohol related but no, just an accident. The computer is...
20 jkoch43004 Offline Send Email Jul 6, 2006
6:12 pm
I previously had received two articles from The Neurologic AIDS Research Consortium (NARC) and I posted these as new files. They are PDF format so I hope I...
21 Mark
bizzell42 Offline Send Email
Jul 7, 2006
2:06 am
How many of you were on HAART when you got PML, and how many not? I was on Kaletra/Truvada with soaring CD4s and undet. viral load when hit. The reason I ask...
22 PMLSurvivors@yahoogro... Send Email Jul 7, 2006
2:32 am
Enter your vote today! A new poll has been created for the PMLSurvivors group: Mark Bizzell: How many of you were on HAART when you got PML, and how many not?...
23 Ron
pdxron31 Offline Send Email
Jul 7, 2006
4:08 am
Hi guys! I was reading some new stuff posted up on the site and saw a link provided by Yahoo for Myelin Sheath Support supplements. I have never heard of...
24 jkoch43004 Offline Send Email Jul 7, 2006
5:02 pm
I answered the poll but felt I should explain my answer. I may have been on HAART but didn't have 100% adherance like I have this past year. Over the years...
25 jkoch43004 Offline Send Email Jul 7, 2006
5:05 pm
Ron thanks for posting! I've never heard of this before but find it interesting. I have a good friend who works at the OSU AIDS Clinical Trials Unit and will...
26 Ian
ianwyoung Offline Send Email
Jul 12, 2006
7:48 pm
Has anyone been through rehabilitation for Acquired Brain Injury?I was an impatient at a rehabilitation hospital treated for stroke effects and brain injury,it...
27 Mark
bizzell42 Offline Send Email
Jul 26, 2006
3:51 pm
hi guys. i posted a link to a story about an old drug that may be useful against pml. it's dirt cheap and it's sometime given to aids patients as an appetite...
28 coveteran32
tlrnc@... Send Email
Jul 26, 2006
3:56 pm
I met my partner in March 2004. We had a fantastic time together. In March of 2005 I got a job transfer to Tampa, FL. It was one experience I will never...
29 Mark Bizzell
bizzell42 Offline Send Email
Jul 26, 2006
3:56 pm
... would like to ask my doc about it. i have been thru physical, speech and occupational therapy. i have been feeling generally unwell for about a week; i...
30 doubtful_also Offline Send Email Jul 26, 2006
3:58 pm
This is for the guy who posted something about brain injury. I have been positive since 2001. My first clue was the tiredness I was having all the time. I...
31 Ron
pdxron31 Offline Send Email
Jul 26, 2006
4:37 pm
I have been without a computer since July 12th, so I apologize for not getting recent messages approved until today. I got a spam email from someone on...
32 Ian Young
ianwyoung Offline Send Email
Jul 27, 2006
12:57 am
So you did go for rehabilitation,I was in a specialized rehab hospital for brain injury,I lost the ability to walk,swallow,talk etc.I am now getting around...
33 jkoch43004 Offline Send Email Jul 27, 2006
7:43 pm
Hi Ron, if you are going to call us kids can we call you DAADDY :) No need to be sorry - Glad to have you back...
34 jkoch43004 Offline Send Email Jul 27, 2006
7:48 pm
Hi Ian, it sounds like our therapy is very similar. I did not receive therapy in a hospital setting but I receive outpatient therapy every Tuesday at a rehab...
35 Ian Young
ianwyoung Offline Send Email
Jul 29, 2006
1:25 am
Mark,I was treated at The Glenrose Rehabilitation Hospital in Edmonton,Alberta Canada,at the Adult Acquired Brain Injury Program,you might want to have your...
36 jkoch43004 Offline Send Email Jul 29, 2006
1:32 am
Hello friends, a month ago I posted my introduction and it's time I continue with my story. I could sense something was wrong in late December 2004 or early...
37 Ron
pdxron31 Offline Send Email
Jul 29, 2006
1:50 am
Hi friends, I wanted to share some exciting news with you all. I am fast approaching my 1 year anniversary since being diagnosed with PML (not that I plan to...
38 Ann Palmer
doubtful_also Offline Send Email
Jul 30, 2006
6:51 pm
Ron That is GREAT news!!! Trust me you can overcome PML, I have I work part-time and while I still do not have use of my right hand as I once did it is...
39 Mark
bizzell42 Offline Send Email
Jul 31, 2006
11:59 pm
... Congratulations, Ron! You are on your way! Ian, thanks for the information! You both are inspirational!...
40 Ian
ianwyoung Offline Send Email
Aug 1, 2006
5:22 pm
Congratulations to all those passing significant milestones,in fact May marked the 2 year mark for me!At the onset my family was told to expect the worst,I...
41 coveteran32
tlrnc@... Send Email
Aug 1, 2006
5:23 pm
Congrats Ron! Every recovery is a win! Well, It is past the 2 weeks DEAD-line the doctor gave my partner. Even as I write this he is doing better. He is still...
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