speaking of medication what happened to you guys who had Iris reaction upon reconstrcting your immune system after HAART started? was it severe like mine being...
im trying to convince my neuro give me trial run of ampyra, medicine used improve walking, balance and stiffness hopefully he decides to do a trial run of it...
apparently i cant post too large posts too bad as i have way too much to tell from experimental therapies, drugs and how far i did get with my rehab here...
I myself was never paralyzed,sensitive to light or sound but right now my balance Is so bad right now I'm in a wheelchair,my coordination is bad,can't...
I've never had any real mobility issues. I did have a period when I'd fall. But I do go through bouts of hypersensitivity. I was very sensitive to...
by iris i mean the reaction which happens after the pml vuctims immune system is reconsytructed by swelling the brain to ginormous size after which pml usually...
I think I got but you never know. It really doesn't matter any more the outcome is the same.....I got pml. The reason I think I got iris is my cd4 went...
I have a suggestion. Post your experiences in several posts, only as you're able. That way you'd get to tell us what you want us to know I'm really...
Am I right that you're posting from your phone? That would explain the length limit for me I had to Google Ampyra since I know nothing about MS drugs. It...
It's been a while since I've said anything about what's been happening with me. It's all neurological. It all started maybe three months ago when I spent a...
ive been so far busy with rehabilitation alas ive noticed new sensory loss on my left legs thighs left side which is step backwards although there is some...
has anyone noticed if any of you are homecare or relatives often feel like being a burden for those that care about you? not being able to care for yourselves...
i thought why the heck not? both MS and pml cause severe demyelination and currently there is no way to initiate remyelination. so no why not to give a shot?...
I hoestly don't know much about the issues that MS patients have to deal with. My neuro tells me and tells me again that when you have damage and have lost...
Nobody's life is the same a we knew it. I always wish it could go back to the way it was. No brain function changes, full time job and a homeowner. As...
Keep in mind our life is not over I believe it will get better in time. Sure things might be bad right now but everyone should hang in. Alan your lucky your...
So I have to ask - how many years for Tucker? Me, I hit 7 years on 6/27, the day I went into the hospital. Funny thing is I have something that always...
October 22nd 2007......We got a call that he'd had a brain thing??????? 4 days later diagnoised with PML and given 4 days, then 30, then 3 months, then 6 then...
even though it be tad redundant and cliche in this place but this piece show the desperation and fear of every pml patient: mental lapse and turning into a...
My dr said there isbno change in my MRI since Jan but in Jan they said I had a couple more lesions(just found out)but at least it didn't get worse. Not the...
Wesley, every time I have an MRI the doctor always sees something of my lesions. They're just kind of there. As long a yours aren't changing that's only...
I too have PML . I was diagnosed with +HIV (full blown AIDS) and PML at the same time. It's taken this long for me to be able to sit down at the computer...
Rob, welcome to our group! I'm glad you're here. To answer your question: I hit the seven year mark next month (wow). I've had too many MRIs in those years...
Hi all - It dawned on me that I haven't shared my latest "excitement". A couple of months ago I had this really strange headache that my neuro said would go...
welcome, I know for me that some of mine disappeared, some scared, and some stayed. I think just like with every other aspect of this disease, each case is...
Thanks Russ. I was thinking that very same thought when I first posted but wondered if anyone has ever made a miraculous recovery showing no lesions at all....
1981
Matthew Wilkinson
mattwilk@...
3:16 am
Let me join the others in welcoming you Rob. There is a great deal of comfort that comes just from knowing we are not in this alone (because it often feels...
