Ronda: CONGRATS!!!! to u and yours.. Long time no see.Me & Alan are very interested in some type of meetings we are having some very difficult times.. Please e-mail if you get one together SOON !! I pray jean
--- On Fri, 9/18/09, Ronda <goodasitgets6@...> wrote:
From: Ronda <goodasitgets6@...> Subject: [PLAYNET_parentslearningadvocacyyouth] I apologize for the wait To: PLAYNET_parentslearningadvocacyyouth@yahoogroups.com Date: Friday, September 18, 2009, 1:10 PM
I am so sorry to the three of you who were just approved as members to the list that your join messages were pending for so long. Our group has been inactive for quite some time due to several factors, not the least of which is that I had a baby in December and my husband is now on Active Duty. Please feel free to post anytime. There is not a plan currently to hold local monthly meetings, but if enough interest was generated, I am sure those could resume.
I am so sorry to the three of you who were just approved as members to the list
that your join messages were pending for so long. Our group has been inactive
for quite some time due to several factors, not the least of which is that I had
a baby in December and my husband is now on Active Duty. Please feel free to
post anytime. There is not a plan currently to hold local monthly meetings, but
if enough interest was generated, I am sure those could resume.
-----Original Message----- From:
owner-ircaparentgroups-l@...
[mailto:owner-ircaparentgroups-l@...] On Behalf Of Ketzner, Brian L Sent: Friday, October 17, 2008
10:42 AM To:
(IRCAPARENTGROUPS-L@...) Subject: FW: Halloween tips for
families coping with autism
Helpful hints
brian
From: Autism-Lead-L
[mailto:AUTISM-LEAD-NETWORK-L@...] On Behalf Of Pratt, Cathy L Sent: Thursday, October 16, 2008
5:08 PM To:
AUTISM-LEAD-NETWORK-L@... Subject: Fw: Halloween tips for
families coping with autism
From: Autism Society
of America To: Pratt, Cathy L Sent: Thu Oct 16 15:02:06 2008 Subject: Halloween tips for
families coping with autism
Happy Halloween!
Families with children on the autism spectrum can benefit
from these helpful tips for a safe and enjoyable Halloween
Dear Cathy,
Halloween is
probably one of the most eagerly anticipated holidays by
children. However, for the child on the autism spectrum, the Halloween
experience of going to parties and trick-or-treating can be emotionally,
physically and mentally over-stimulating, causing stress for the child and
family members.
You may also want
to share this information with neighbors, extended family, and friends to
help them understand how to make the Halloween experience more pleasurable
and positive for the child on the autism spectrum.
The ASA has
additionally developed in-depth information on a variety of topics related to
living with autism. Please call us at 1.800.3AUTISM or visit
us online at www.autism-society.org
for help and information on autism.
Best wishes for a
safe, enjoyable Halloween experience for your child and family from all of us
at the Autism Society of America.
I would like to schedule a September meeting for PLAYNET. It has been
way too long since we have held a meeting; and with school back
underway members may have school related questions to ask one another.
If you know anyone not on the list who is a member or could benefit
from our meetings please let them know we are wanting to schedule
ameeting in Spetember. I would like any input on dates and times that
work best for everyone. We had often used the second Tuesday in the
past. I would still like to meet this time at Saron in Linton, but some
discussion had taken place about having meetings also be activities in
alternate locations sometimes and I welcome input and ideas for that
option. We may have to meet wtih parents and children in the large
opten room upstairs in September. My personal email has changed so
please take a minute to change it in your address books,
goodasitgets6@... Please email me p rivately at taht addresss
with any changest o hou contact information. I intend to also revive a
mailed PLAYNET newsletter in September and would like your mailing
address to be able to send you a copy. Thanks and hope your
child's/childrens' school year is off to a great start. ~Ronda
Ok so not a rivival in the spiritual church sense of the word, but is
it time to have a meeting or casual get together in late July or August
to get PLAYNET on the move again? We haven't had any official meetings
since Ocotober 2007 when we hostd the IRCA on Literacy Issues.
Sorry to those of you regular members who have had twice now a spam
email from someone crashing the group. I have once again set the
group's settings so that all new memberships have to be approved by a
moderator and those new members will have their posts moderated until
we get to kwow them so we are sure we are sticking to the subject of
Autism and other disabilities. Thank you for your patience, and I
apologize for the initrusion of the unrealted emails by the now twice
removed member.
-----Original Message----- From:
owner-ircaparentgroups-l@...
[mailto:owner-ircaparentgroups-l@...] On Behalf Of Ketzner, Brian L Sent:Monday, April 14, 20083:45 PM To:
(IRCAPARENTGROUPS-L@...) Subject: FW: Indiana Institute FYI
Newsletter for the Week of April 14, 2008
The newsletter
begins with a quick view of topics covered.
As a parent, I see
relevance for many in forwarding these, but do respect the time and space that
they take in email.
· ADA-Indiana Audio Conference · Summer Classes for Early Childhood Education Professionals · Building Leadership Series · Counseling Program Aimed at Families Raising
Children with Disabilities · Library Corner
Upcoming
April DA-Indiana Audio Conference:
Transitioning from high school to college is tough enough; for students with
disabilities who may not know their rights and responsibilities under federal
law, the experience can be even tougher. ADA-Indiana’s April Audio
Conference, There are
no IEPs in College, will feature Howard Kallem, Chief
Regional Attorney from the Office for Civil Rights, U.S. Department of
Education, who will compare the rights and responsibilities of students with
disabilities in high school and in college. By understanding the differences,
students, parents, teachers, counselors, service providers, and
administrators can be better prepared and increase student's chances of
graduating.
This
audio conference will be held on Tuesday, April 15th from 2:00-3:30 p.m. (EDT) at two Indiana
locations and will be of special interest to high school and college
students, families, education professionals, people with disabilities,
and other interested community members. No pre-registration is required. CRCC
continuing education credits are available. The session is free at the
locations sponsored by ADA-Indiana.
ADA-Indiana
Site Locations:
Bloomington,
IN (2:00-3:30 p.m. EDT)
Indiana Institute on Disability and Community, Building L 2853 East Tenth Street
Indianapolis, IN (2:00-3:30 p.m. EDT): IndianaGovernmentCenter, Conference Room 12 402 West Washington Street
If
you are not able to attend, individuals and organizations can purchase access
to the audio conference by visiting http://www.ada-audio.org.
The cost is $25.00 (for not-for-profits) and $40.00 (for-profit entities).
For more information about this session or the 2007-2008 ADA Audio Conference
Season, visit http://www.adaindiana.org,
or contact Matt Norris at 1-800-825-4733 or e-mail adainfo@....
Early Childhood
Summer Classes: Institute’s EarlyChildhoodCenter is pleased to announce the availability of
two “hot topic” summer classes for busy early childhood
educators, kindergarten teachers, Head Start and school administrators, and
graduate students in early childhood and education this summer.
Building a Foundation for Success: Early Education Program
Practices that Promote School Readiness is a hybrid
class (on-line and face-to-face components) that will examine current teacher
practices, supportive administrative practices, family involvement, and
transition plans between the early education providers and kindergarten
classrooms… All critical components for school readiness. The face-to-face
component is offered simultaneously in Bloomington,
Gary, and Evansville
June 24 through 26.
Assessment: Exploring and Refining Your Skills is
an on-line course designed to engage participants in the exploration of their
knowledge and practices in the assessment of children’s readiness for
school. Enrollees will investigate and discuss the wide variety of assessment
tools and methods, the components of sound assessment, and the development of
a system to successfully engage all critical partners in the assessment
process. The class will be available on-line from June 15th through August
10th.
Each
summer class can provide 3 hours of IndianaUniversity graduate credit.
Satisfactory completion of this course will earn three credit hours for
renewal of your teaching license or, with approval of your advisor, credit
toward completing your master degree requirements. Additionally, 4.5
Continuing Education Units will be offered. Non-credit enrollment is also
available. Both course options are available as pass/fail as well.
Enrollment
fee for each class is $150.00. IU credits and CEU fees are at an additional
cost to participants. Registration is due by June 1, 2008. Registration forms and
additional information is available at http://www.iidc.indiana.edu/ecc.
For content questions, contact Pat Cole at (812) 855-6508 or e-mail pacole@.... For registration assistance,
contact Jackie at 1-800-825-4733 or 812-855-6508 (e-mail dutkowsk@...).
Building Leadership Series: The Building Leadership Series project, a collaborative endeavor between
the Institute’s Center on Aging and Community, the Governor’s
Council for People with Disabilities, and Indiana Protection and Advocacy,
has begun recruitment of 20 new participants for its fall 2008 series.
The BuildingLeadership Series
consists of three two-day workshops over a three month period. The workshop
topics and dates are:
September
24-25: Choice: What
Choices am I Really Making? What are My Rights and Responsibilities? October 22-23: Self-Determination/Self-Advocacy:
I Hear these Words,
What Do They Mean for Me? November 12-13:
Person Centered
Planning: What Does it Mean for Me and What is a Good Plan?
All
workshops are co-trained with staff from CAC and persons with disabilities.
There is a good mix of interactive activities, video, discussion, role play
and lecture. Workbooks accompany each topical area. Past participants have
commented on how much they learned and committed to personal action steps
upon arriving back home. New friendships developed, and personal growth was
evident for all participants. Participants e-mail and call one another and
were often overheard heard to say, “I can’t wait until next
time!”
All
collaborating partners are very proud and pleased with the outcomes of these
workshops. The increased knowledge and information was evidenced by
participants’ pre- and post-assessment on the three topical areas. Also
of significance was the participants’ growth individually and as a
collective with each succeeding workshop. Participants initially were timid
and soft spoken but soon began to speak up, ask questions and volunteer for
various roles, often putting themselves in vulnerable and unfamiliar
situations.
As a
secondary consequence of the training, we discovered the benefit to the
helpers (family members and paid staff), who were very pleased to be able to
observe their partners learn and connect and, we feel, learned some new
skills themselves that will better enable them to help their partners in the
future. For more information, contact Jennie Todd at (812) 855-6508 or e-mail
jeptodd@... or visit http://www.iidc.indiana.edu/cac/.
What’s New
Center
for Possibilities Announces New Counseling Program Aimed at Families Raising
Children with Developmental Disabilities: In recognition of Child Abuse Prevention
Month, Center for Possibilities announces a new program, Center for Possibilities
Counseling Services, funded through a grant from the Lake County Department of
Children’s Services. The program is aimed at preventing child abuse and
neglect of children with disabilities by addressing the stress and the strain
experienced by their families and caregivers. Services include free
counseling, support group facilitation, parent to parent mentoring
facilitation, parenting classes, and resource education classes for families
in Lake County, Indiana that have children with disabilities. Center for
Possibilities will also educate teachers, medical staff, childcare workers,
and other professionals on ways to prevent child abuse and neglect of
children with disabilities.
Center
for Possibilities is located at 22
Tyler Avenue in Hobart,
Indiana. Their mission is to improve the
quality of life for young children and adults with developmental disabilities
and their families. In addition to the Counseling Services, the Center
also provides a preschool and adult day program for individuals with
developmental disabilities. For information on Counseling Services or any
other program offered at Center for Possibilities, contact Julie Ramisch,
Marriage & Family Therapist, at (219) 962-5751 or e-mail julie.ramisch@....
Library Corner
New Items:
The following new materials may be borrowed by Indiana
residents from the Center for Disability Information and Referral (CeDIR) at
the Institute. To check out materials, contact the library at 1-800-437-7924,
send e-mail to cedir@..., or
visit us at 2853 East Tenth Street
in Bloomington.
Coucouvanis,
J.A. (2007). The
potty journey: Guide to toilet training children with special needs,
including autism and related disorders. ShawneeMission, KS:
Autism Asperger Pub. Co.
Strohm,
K. (2005). Being the
other one: Growing up with a brother or sister who has specialneeds. Boston,
MA: Shambhala.
Weis,
M. (2008). Miles from
the sideline: A mother’s journey with her special needs daughter.
Notre Dame, IN: Sorin Books.
Weiss,
M.J. (2007). Practical
solutions for educating young children with high-functioning autism and
Asperger syndrome.ShawneeMission, KS:
Autism Asperger Pub. Co.
--- In PLAYNET_parentslearningadvocacyyouth@yahoogroups.com, Carole
Sparks <carole.sparks@...> wrote:
>
> In case you haven't heard, Kerasotes Theaters in Terre Haute is
offering a special viewing of the movie for the autism community. The
viewing is Saturday, April 5 at 10:00. Tickets are $7:00. They will
only dim the lights and they will reduce the volume.
>
> Carole
>
That's cool!! It's a cute lil movie, took my two to see it Sunday.
In case you haven't heard, Kerasotes Theaters in Terre Haute is offering a special viewing of the movie for the autism community. The viewing is Saturday, April 5 at 10:00. Tickets are $7:00. They will only dim the lights and they will reduce the volume.
I just wanted to make everyone aware of
this message from the IRCA. ~Ronda
-----Original Message----- From:
owner-ircaparentgroups-l@...
[mailto:owner-ircaparentgroups-l@...] On Behalf Of Pratt, Cathy L Sent:Wednesday, March 19, 200811:08 AM To: IRCAPARENTGROUPS-L@... Subject: Parent Group Meetings
Next
year we will not be doing the free parent group meetings that we have done in
the past. With budget cuts, this is no longer feasible. I have
stretched dollars as far as they will go. It may be time to take a
break from this anyway. In some places, attendance has been strong.
In most others, attendance has been weak. If you have ideas or ways
in which we can connect with family members and support them in a more
effective and efficient manner…please send on ideas. We are looking at
options to change and improve this support in the future. I am very
saddened that I have had to come to this decision. I have enjoyed
connecting with family members during these meetings.
We will
probably also be moving our newsletter over to an electronic format. This
will be a lengthy process that will take a number of years to achieve.
We will continue to do hard copies for those who need it until we can complete
this transition. Just a heads up.
http://www.walknowforautism.org/site/c.nsKSL3POLtF/b.3623789/
I tried the link in my last post about the walk and found it did not
work. This one should work. Once on the walk page, then click on
Crystal Patten on the right side of the page where teams and walkers
are listed. ~Ronda
https://www.kintera.org/c.nsKSL3POLtF/b.3623829/siteapps/personalpage/Sh
owPage.aspx?sid=aiLJJVNAIhLSK4PKInF
Above is the link to Crystal's page showing her walk goal and
sponsorship information. I donated this morning online. However, if you
can't make an online donation, Crystal is a Mom of a son with Autism
right here in our community so we can make arrangements to pay her
directly, if online support isn't possible for you. I know that gas
prices are high, and grocery costs are going up, AND we all have therapy
bills out the WAZOO for our own kids with Autism, BUT whenver I hear a
major campaign for another "something" related to kids I always think
that Autism deserves the same attention and resources for research and
hope for treatments that work so someday we can understand the root
cause with certainty that will bring us prevention and a cure.
We are all probably too busy to walk, but we can participate in this
walk through our donations as sponsors. Think about any amount you can
spare, or start yoru own change collection jar at home for your loose
change. You can even choose to donate offline on Crystal's page. So if
you think you can gather your change from now until the race (September)
and come up with $5, $10, $15, or $20 no amount is too small! If you
pledge/donate, post that on the PLAYNET page. I want to know in the end
how much we PLAYNET members sponsor in total. Crystal's overall goal is
$1000. I donated $20 this morning...I challenge PLAYNET to come up with
a total of $100 in donations. That would make us helping with 10% of
her goal...see how my college education paid off for me -LOL! Come on
everybody...lets come up with at least $80 more between us!
Thanks for your support! ~Ronda
I had to forward this, my mom swears it works. The day after she sent it, they
got an offer on their land on the Swannee river, they haven't even seen that
land since 1987. It came out of the blue. So you know that I'm going to try it.
Love Kim
Not sure if this had
anything to do with it but it was shortly after I sent this out - I got a call
to say our r bond was approved - against all odds.
I don't know if it works but I won a new fridge full of various cool drinks
from Beyer And Beyerlastweek.
I do not know if it works, but I won a microwave yesterday Seems like it Hey !!
--- This may sound nuts, but my husband got
this the other day and sent it off. About 10 minutes later a really good
financial windfall happened for his son Sean who he had sent it too as well.
One of the people he sent it to was responsible for the windfall.
AN IRISH FRIENDSHIP WISH
Good Luck!!
I hope it works...
May there always be work for your hands to do;
May your purse always hold a coinor two;
May the sun always shine on your windowpane;
May a rainbow be certain to follow each rain;
May the hand of a friend always be near you;
May God fill your heart with gladness to cheer you.
OK, this is what you have to do...
Send this to all of your friends!But - you HAVE to send this within 1 hour
from when you open it!
Now...............Make A wish!!!!!!
I hope you made your wish! Now then, if you send to:
1 person --- your wish will be granted in 1 year
3 people --- 6 months
5 people --- 3 months
6 people --- 1 month
7 people --- 2 weeks
8 people --- 1 week
9 pe ople --- 5 days
10 people --- 3 days
12 ! people - -- 2 days
15 people --- 1 day
20 people --- 3 hours
If you delete this after you read it . you will have 1 year of bad luck! But ..
if you send it 2
of your friends you will automatically have 3 years of good luck!!! :-)
Connect and share in new ways with Windows Live. Get it now!
-----Original Message----- From:
owner-ircaparentgroups-l@...
[mailto:owner-ircaparentgroups-l@...] On Behalf Of Pratt, Cathy L Sent:Wednesday, March 12, 20089:55 AM To:
IRCAPARENTGROUPS-L@... Subject: New DVD
I just finished watching the DVD
listed below. It is an amazing DVD and really provides powerful insight
of living with AS.
The Boy Inside: A
Family’s Journey into Asperger Syndrome. (2006).
Length: 47 minutes. Produced by Marianne Kaplan. This DVD provides
a unique portrait of high-functioning autism by documenting a young boy’s
struggle with Asperger Syndrome (AS). Adam and his family share their
everyday challenges and triumphs to provide insights into this increasingly
common disorder. The DVD includes interviews with individuals with AS and
their families during a conference sponsored by Maap Services, and features TempleGrandin. Topics such as
the impact of bullying and challenges with social skills are highlighted.
Highly recommended for educators, peers, family members, or anyone who
interacts with an individual with AS. For ordering information,
contact Fanlight Productions at 1-800-937-4113 or online at www.fanlight.com.
-----Original Message----- From: Jessica Holtsclaw
[mailto:jessicaholtscl@...] Sent:Monday, March 10, 20085:02 PM To: Goodasitgets Subject: RE: Special Olympics
As far as we can get, from State
officials, if you feel like your son would feel comfortable in this group, and
is at least 8, then he is welcome and encouraged to join. Please see
attachment. They are planning a track and field practice on April 5 at 10:00 at WRVSwitzCity for
practice. The local event will be May 10 and state event is June 6.
Lucky for us the events are in Terre Haute. We
are going to try a bowling event in the fall. There is also a horse group
put together. Hopefully we can create sports of interest as we progress.
Thanks,
Jessica Holtsclaw
From: goodasitgets@...
To: jessicaholtscl@...
Subject: RE: Special Olympics
Date: Fri, 11 Jan 200809:43:29 -0500
Thank you Jessica!
I will pass this information along to our
members. Many of our families are those of children on the Autism
Spectrum. We had heard conflicting reports concerning whether or not our
children qualified for Special Olympics. Can you clarify that for
us? My son is a Third grader, (ten years old), at Worthington Elementary.
He is in a general education classroom half days and home schooled half
days. He is non-verbal and in the moderate range of the Spectrum
overall.
Ronda Metzger
PLAYNET Parents Learning Advocacy for
Youth Network
-----Original Message----- From: Jessica Holtsclaw [mailto:jessicaholtscl@...] Sent:Thursday, January 10, 20082:58 PM To: goodasitgets@... Subject: Special Olympics
Hi,
I found this email as a contact for Playnet. We are in the process of
finding children 8 to adults that would like to participate in a local Special
Olympics event. Our next meeting is Jan 24, and we would like to have an
idea on numbers that might be interested. Please feel free to contact me
at the email or phone number below or our local schools should have information
available through the special education dept's.
Hi Everyone, I know this Mom and have made
a pledge to her for the autism walk she is participating in. I wanted to pass
this on to all of you as well, and ask that you also forward this information
on to anyone who may support her as a sponsor in Walk Now for Autism.
Thanks!
~Ronda
Hello,
I am participating in Walk Now for Autism to help find a cure for autism.
Autism is the second most common developmental disorder in the United
States affecting one in every 150 children
born today. Despite some promising discoveries, the cause of autism is unknown
and a cure does not exist. Research is crucial. Every 20 minutes another child
is diagnosed with autism. Not only must we find ways to improve the quality of
life for children and adults with autism, but we also must find a cure, and soon.
Walk Now for Autism is our chance to make a difference in the fight against
autism by raising money for autism research and heightening public awareness.
Please join me in my fight as I raise $ 1000.00 or more to help fund essential
research. I will be walking on Sept. 20 in Terre Haute, In and would like you to support those
affected by autism. You can donate to Walk Now for Autism through my webpage at
www.walknowforautism.org.
Donations can also be mailed to Autism Speaks using the donation form located
on my page or send me a check made out to Autism Speaks. My team name is Patten
please note this on your check and the donation form.
Please join me in my fight against autism. Thank you for making a difference in
the lives of the more than 1 million Americans living with autism today.
Sincerely,
Crystal Patten
P.S. Please be sure to go to "support walker" and type in my name.
Donations are tax deductible to the fullest extent allowed by law.
501 (C)(3) NUMBER: 95-4542637
Autism Speaks Tax Id #: 20-2329938
MATCHING GIFT PROGRAM Many companies provide their employees with matching
gifts. Please consult your employer on its matching gift guidelines and attach
matching gift forms accordingly. Follow this link
to visit the team page for Patten. Follow this link
to visit Crystal Patten's page.
-----Original Message----- From:
owner-ircaparentgroups-l@...
[mailto:owner-ircaparentgroups-l@...] On Behalf Of Pratt, Cathy L Sent: Wednesday, March 05, 2008
2:56 PM To:
IRCAPARENTGROUPS-L@... Subject: FW: Forward to your
friends
From: Autism Society
of America [mailto:webmaster@...] Sent: Wednesday, March 05, 2008
2:51 PM To: Pratt, Cathy L Subject: Forward to your friends
Dear Friends and
Family,
Today, 60
families will find out their child has autism. I recently accepted the
challenge to support the Autism Society of America in its efforts to improve
the lives of all affected by autism by "Bouncing for Autism."
ASA, the
nation’s leading grassroots autism organization, has partnered with
Pump It Up, America’s #1 Inflatable Party Zone, to create the
"Bounce for Autism" event to raise awareness of and funds for
autism care, support, treatment and research. This event enables children,
families and all individuals concerned about autism to "bounce" at
a Pump It Up location while raising funds to support autism.
Please help
support me in this important project by sponsoring my "Sock Squad."
Your tax-deductible contribution will fund programs to increase public
awareness about the day-to-day issues faced by people on the spectrum,
advocate for appropriate services for individuals across the lifespan, and
provide the latest information regarding treatment, education, research and
advocacy. It is faster and easier than ever to support this great cause - you
can make your donation online by simply clicking on the link at the bottom of
this message. If you prefer, you can also send your tax-deductible
contribution to me at the address below. More information on the Autism
Society of America and its programs can be found at wwww.autism-society.org.
Whatever you can
give will help - it all adds up! I greatly appreciate your support and will
keep you posted on my progress.
Don’t know what to think about all
of it....but this came from the IRCA today. ~Ronda
-----Original Message----- From:
owner-ircaparentgroups-l@...
[mailto:owner-ircaparentgroups-l@...] On Behalf Of Pratt, Cathy L Sent:Monday, February 25, 200811:52 AM To:
IRCAPARENTGROUPS-L@... Subject: FW: information on Indiana's Autism
Mandate
From: Liz Freeman
Floyd [mailto:lizff@...] Sent:Monday, February 25, 200811:36 AM To: ASI-5@... Cc: ASI-6@... Subject: information on Indiana's Autism
Mandate
Rumors
with misinformation about Indiana's Autism Insurance
Mandate have been circulating via the Internet. The Autism Society of Indiana
is distributing this message to our email subscribers in an attempt to clear up
the confusion.
The law
itself has not been changed, and there are no changes pending at this time. The
Indiana Department of Insurance's interpretation of the law changed around
2003, when the new administration appointed a new Commissioner and Deputy
Commissioners. Some insurers had not caught up with the 2003 change in interpretation
until last year, and some families appear to have been told in error that
the law had changed to explain their insurer's change in payment
policy.
Per
Bulletin 136, which was widely distributed, the insurer may place visit limits
on SLP services, PT and OT -- but NOT Applied Behavior Analysis Therapy or
Intensive Behavioral Treatment -- IF the insurer places visit limitations
on these services for physical illnesses. If the insurer offers extensions of
benefits to patients with physical illnesses who apply for an extension beyond
the plans limits, based upon medical necessity, then they must also offer this
to autism patients. We strongly encourage all families to carefully plan their
therapy schedules to accommodate this, and also to carefully document any and
all regression related to the end of their benefits. If the child regresses in
areas that were addressed by the therapy, they should file for an extension
based upon medical necessity.
For more information on the Autism
Mandate, see "Insurance
Mandate for Autism Spectrum Disorders Under Indiana State Law" on the IndianaResourceCenter for Autism's Web site, here:
The full text of Bulletin 136 is
available for downloading from the Autism Society of Indiana's Web site, on the
"Legislative Issues" page under the heading "Insurance Mandate
in Indiana":
Thought I would pass this on. I a not a
big fan of Floortime but it may be beneficial to some children even if it was
not appropriate for my son. In our home it looked like me chasing him down and
taking to myself. Applied Behavior Analysis, which I reluctantly tired directly
after my attempted period of Floortime, yielded immediate results and for the
first time David was required to respond with each and every request I
presented. At first you help the child respond with ABA showing
them what right looks like but very soon they get the idea “Oh this is
what I do when I hear that”. They are motivated to learn at first for the
sort of artificial positive reinforcements like food reinforcers and later
accept more natural reinforcers like clapping and verbal praise and later you can
also fade the frequency of reinforcements. ~Ronda
-----Original Message----- From:
owner-ircaparentgroups-l@...
[mailto:owner-ircaparentgroups-l@...] On Behalf Of Pratt, Cathy L Sent:Wednesday,
February 20, 20089:04
AM To: IRCAPARENTGROUPS-L@... Subject: FW: Basic Course on
DIR/Floortime - Online (Greenspan)
FYI
THE INFANCY AND EARLY CHILDHOOD
TRAINING COURSE
COMES TO YOU – ONLINE!
The Basic Course on the DIR®/Floortime™ Model
Taught by Stanley
I. Greenspan, M.D.
Clinical
Professor of Psychiatry and Pediatrics, The George Washington University Medical
School, Supervising Child Psychoanalyst, Washington Psychoanalytic Institute,
and Chair, Interdisciplinary Council on Developmental and Learning Disorders
For the FIRST TIME, the Infancy and Early Childhood Training Course
will be presented ONLINE!
The course will be available to
registered participants for a two-week period from April 25 through May 9,
2008
Take
the course in the comfort of your own home or office, at your own pace and
without the added expenses of travel and lodging!
The Basic Course
Topics Include:
Assessment,
Diagnosis and Intervention for Developmental and Emotional Disorders
Including:
Autistic Spectrum Disorders; Multisystem Developmental Disorders; Regulatory
Disorders involving Attention, Learning and Behavior Problems; Cognitive,
Language, Motor and Sensory Disturbances; and a range of Infant and Early
Childhood Developmental and Mental Health Problems such as Trauma, Abuse and
Neglect
Post-Conference
Workshop
Regulatory
Sensory Processing Disorders
Sensory, motor, and emotional
patterns underlying challenges in relating and communicating including Autism
Spectrum Disorder, Regulatory Disorder, ADHD, behavior problems and learning
challenges.
Taught by
Rosemary White,
OTR/L and Stanley I. Greenspan, M.D.
Thanks
for sharing that very important information, Brooke! Also thanks again for
sending out Valentines to our legislators! If anyone else out there “listening”
to this would like to send some, I still have a few left. I don’t think
it matters that they will be going out after Valentine’s Day, just
important that they go out sometime. I would especially like to see more go to
Dick Lugar, as he is often prone to vote on the wrong side of these issues for
us.
By not allowing for
treatment at an early age they will see more of these individuals needing far
more supports as adults. Meanwhile we parents are forced to pay for more than
we can afford out of pocket. That’s why we still haven’t gotten to Florida to go to Disney. The new Health savings account is really helpins us though with paying for David’s DMSA
chelation.(We are in the second month
of that now. After the third month of chelation we will have a metals test through
Great Plains again.)
YAY! for
our “ICE DAY” today...sorry if you had to drive on it. This stay-at-home
Mom got to stay at home and sleep in. I would have liked some snow to play in
though.
Unfortunately this cold
weather has driven me to eat a lot in my effort to stay warm, I guess that’s
why...anyway cookie weather is not being
kind to me!Those darn Bloomfield people selling me Market Day white chocolate macadamias,
snickerdoodles and chocolate chunk cookie dough!
Blessings! ~Ronda
The
Indiana Insurance Mandate for Autism has been a big discussion on another
listserv that I belong to. Many Anthem members are upset about the
recently imposed limits placed on therapy visits.
For
example, if therapy visits for a medical issue (as in physical injury/illness)
are limited to 25 visits, then it is allowable for the insurance company to
limit visits for a child with an ASD to the same amount. We received our
limits on Sam late last year. We are allowed 25 visits.
There
is currently no limit on therapies dealing with behaviors (presumably because
there is no medical/physical alternative?). You can read the clipped
e-mail below for more info.
Also,
Brad and I received a nice letter back from one of our state senators in
regards to the Valentine's cards we sent out. I realize how these things
work, as I've sent things in the past, but I thought it was impressive that a
response was sent out so quickly! Just this insurance issue alone was
re-interpreted by the current administration...proving how important it is
that we speak up and make our struggles known to our elected officials.
Here is the response
I got from IRCA regarding the autism mandate and limits on yearly visits:
"The law did not change, the way the IDOI interpreted the law changed in 2003 when the personnel (Commissioner
and Deputy
Commissioners for Health Care) changed with the new administration.
Per Bulletin 136, which had been widely distributed by the
autism community leaders, insurers may place visit limitations on OT,
Speech and
PT as long as the same limits are imposed upon physical
illnesses. This was
not the
intent when the law was written, and it was not enforced this way
prior to
Bulletin 136, but that is the current interpretation. Anthem, I
guess, is
just catching up to that.
If the insurer allows for extensions beyond the visit limits for
physical
illnesses based upon medical necessity, they must also do so for
autism. I
strongly encourage any family that is under limitations to
document ANY
regression and apply for an extension of benefits beyond the
limits of the
plan based upon medical necessity."
SO, if you can document regression, I would assume through
standard testing, then you can go back to your insurance company
and ask for more visits. I don't know how difficult it will be
but I am sure going to try!
The Indiana Insurance Mandate for Autism has been a big discussion on another listserv that I belong to. Many Anthem members are upset about the recently imposed limits placed on therapy visits.
For example, if therapy visits for a medical issue (as in physical injury/illness) are limited to 25 visits, then it is allowable for the insurance company to limit visits for a child with an ASD to the same amount. We received our limits on Sam late last year. We are allowed 25 visits.
There is currently no limit on therapies dealing with behaviors (presumably because there is no medical/physical alternative?). You can read the clipped e-mail below for more info.
Also, Brad and I received a nice letter back from one of our state senators in regards to the Valentine's cards we sent out. I realize how these things work, as I've sent things in the past, but I thought it was impressive that a response was sent out so quickly! Just this insurance issue alone was re-interpreted by the current administration...proving how important it is that we speak up and make our struggles known to our elected officials.
body{font-family: Geneva,Arial,Helvetica,sans-serif;font-size:9pt;background-color: #ffffff;color: black;} Here is the response I got from IRCA regarding the autism mandate and limits on yearly visits:
"The law did not change, the way the IDOI interpreted the law changed in 2003 when the personnel (Commissioner and Deputy Commissioners for Health Care) changed with the new administration.
Per Bulletin 136, which had been widely distributed by the autism community leaders, insurers may place visit limitations on OT, Speech and PT as long as the same limits are imposed upon physical illnesses. This was not the intent when the law was written, and it was not enforced this way prior to Bulletin 136, but that is the current interpretation. Anthem, I guess, is just catching up to that.
If the insurer allows for extensions beyond the visit limits for physical illnesses based upon medical necessity, they must also do so for autism. I strongly encourage any family that is under limitations to document ANY regression and apply for an extension of benefits beyond the limits of the plan based upon medical necessity."
SO, if you can document regression, I would assume through standard testing, then you can go back to your insurance company and ask for more visits. I don't know how difficult it will be but I am sure going to try!
I think
that was intended that typical (non-Autistic) kids could join the playgroup for
free serving as typically developing same age peers to the Autistic students at
the clinic while the parent worked. You might call them for clarification.
~Ronda
-----Original Message----- From:
PLAYNET_parentslearningadvocacyyouth@yahoogroups.com
[mailto:PLAYNET_parentslearningadvocacyyouth@yahoogroups.com] On Behalf Of jean hall Sent: Thursday, February 14, 2008
10:03 AM To: PLAYNET_parentslearningadvocacyyouth@yahoogroups.com Subject: Re:
[PLAYNET_parentslearningadvocacyyouth] Positions for Parents?
·this caught my eye the position
where child could possibly join while parent works pleases!! explain and if his
age matters.. Jean Ward Other positiions
for Parents:
III. Child care provider: birth to 2 yrd og age we are searching for
full time child care person(s) to join our winning team and grow with
us.
IV. Book Keeper- part time or job share available
V. Swim Instructors- Need swim instructors to teach children with
autism, all 1:1 (TRAINING PROVIDED) SUMMER ONLY
VI. Office Staff- we are hoping to add parents who can work with the
public on resources for children services, light office work, event
coordinating, planning of social groups, mild, moderate and severe
ages 3 to 16. Work with other community partners on building
teamefforts for kids. This person would also be needed to answer
phone, conduct interviews, plan meetings / workshops and work with
other staff members.
Fax resume to (317) 842- 5911 or call Laura Fisk at (317) 849-KIDS X00
FYI- Typical peers join our kids every week to learn
and grow,
maybe your child could join our group for FREE, while you work?
this caught my eye the position where child could possibly join while parent works pleases!! explain and if his age matters.. Jean Ward lisaheber <lisaheber@...> wrote:
The Applied Behavior Center for Autism has several openings, are you interested?
Benefits include: but not limited to
*Health, dental, vision and Life Insurance
*Paid Vacations
*Paid sick days
*Free Training every month
*Paid conferences & expenses
*Education reimbursement
(401K) beginning in June 2008
I.Behavior
Analyst- We are looking for a dynamic and energetic BCBA/BCaBA's. We currently employ 2 full time BCBA's, Dr. Patrick McGreevy, Phd, BCBA and 4 students working toward their BCBA's. We are looking to expand the Behavioral Analyst Division , plese consider joining our innovative organization serving children with ASD and Social Difficulties. We serve Mild, Moderate or severe kids on the PDD-NOS. Asperger's and Autism.
PT/Afterschool/Weekends or full time- We are a growing and are looking for future goal oriented person(s) to join our team. The ABC only promotes evidence-based practice with great team collaboration. There are Research opportunities. Flexible scheduling, tuition reimbursement, graduating scale vacations. Excellent salary and benefits. Fax resume to (317) 842- 5911 or call Laura Fisk at (317) 849-KIDS X00.
II. Speech patholgist SLP/OT, Occupational Therapist, Music Therapist - We are
also looking to add experienced SLP/OT to our staff. Looking for SLP, Speech and Language Patholgist with experience in augmentative communication, oral-motor and feeding. Kids with autism a plus! OT experience should include sensory integration. willing to work with Behaviorist for all age social groups after school and every tuesday and Thursday with typical peers ages 3-16.
**NOTE*** FT/PT or Afterschool hours available. Flexible scheduling as well as excellent salary and benefits. If interested, please Fax resume to (317) 842- 5911 or call Laura Fisk at (317) 849-KIDS X00
Other positiions for Parents:
III. Child care provider: birth to 2 yrd og age we are searching for full time child care person(s) to join our winning team and grow with us.
IV. Book Keeper- part time or job share available
V. Swim Instructors- Need swim instructors to teach children with autism, all 1:1 (TRAINING PROVIDED)
SUMMER ONLY
VI. Office Staff- we are hoping to add parents who can work with the public on resources for children services, light office work, event coordinating, planning of social groups, mild, moderate and severe ages 3 to 16. Work with other community partners on building teamefforts for kids. This person would also be needed to answer phone, conduct interviews, plan meetings / workshops and work with other staff members.
Fax resume to (317) 842- 5911 or call Laura Fisk at (317) 849-KIDS X00
FYI- Typical peers join our kids every week to learn and grow, maybe your child could join our group for FREE, while you work?
Thank you for letting me post this. Kurt Robbins, Business Development Coordinator
Applied Behvior Center for Autism
Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
The Applied Behavior Center for Autism has several openings, are you
interested?
Benefits include: but not limited to
*Health, dental, vision and Life Insurance
*Paid Vacations
*Paid sick days
*Free Training every month
*Paid conferences & expenses
*Education reimbursement
(401K) beginning in June 2008
I.Behavior Analyst- We are looking for a dynamic and energetic
BCBA/BCaBA's. We currently employ 2 full time BCBA's, Dr. Patrick
McGreevy, Phd, BCBA and 4 students working toward their BCBA's. We
are looking to expand the Behavioral Analyst Division , plese
consider joining our innovative organization serving children with
ASD and Social Difficulties. We serve Mild, Moderate or severe kids
on the PDD-NOS. Asperger's and Autism.
PT/Afterschool/Weekends or full time- We are a growing and are
looking for future goal oriented person(s) to join our team. The ABC
only promotes evidence-based practice with great team collaboration.
There are Research opportunities. Flexible scheduling, tuition
reimbursement, graduating scale vacations. Excellent salary and
benefits. Fax resume to (317) 842- 5911 or call Laura Fisk at (317)
849-KIDS X00.
II. Speech patholgist SLP/OT, Occupational Therapist, Music
Therapist -
We are also looking to add experienced SLP/OT to our staff. Looking
for SLP, Speech and Language Patholgist with experience in
augmentative communication, oral-motor and feeding. Kids with autism
a plus! OT experience should include sensory integration. willing to
work with Behaviorist for all age social groups after school and
every tuesday and Thursday with typical peers ages 3-16.
**NOTE*** FT/PT or Afterschool hours available. Flexible
scheduling as well
as excellent salary and benefits. If interested, please Fax resume to
(317) 842- 5911 or call Laura Fisk at (317) 849-KIDS X00
Other positiions for Parents:
III. Child care provider: birth to 2 yrd og age we are searching for
full time child care person(s) to join our winning team and grow with
us.
IV. Book Keeper- part time or job share available
V. Swim Instructors- Need swim instructors to teach children with
autism, all 1:1 (TRAINING PROVIDED) SUMMER ONLY
VI. Office Staff- we are hoping to add parents who can work with the
public on resources for children services, light office work, event
coordinating, planning of social groups, mild, moderate and severe
ages 3 to 16. Work with other community partners on building
teamefforts for kids. This person would also be needed to answer
phone, conduct interviews, plan meetings / workshops and work with
other staff members.
Fax resume to (317) 842- 5911 or call Laura Fisk at (317) 849-KIDS X00
FYI- Typical peers join our kids every week to learn and grow,
maybe your child could join our group for FREE, while you work?
Thank you for letting me post this.
Kurt Robbins, Business Development Coordinator
Applied Behvior Center for Autism
Filing a complaint is something you might have to pursue in the future
but I would exhaust all other options first. I will tell you that when we filed
AND WON a complaint in the end the issue was still not resolved to our liking. What we “WON” was the right to
more Case Conference negotiations on the issue NOT having a mandate issued to
the school that they uphold what was written in the IEP.Bottom line a complaint may need to be
filed but you may get results quicker another way.I would really like to talk with you by
phone about it sometime ...659-3700
At the end of August, I verbally requested that Sam receive another evaluation because he was finally diagnosed with a concrete disorder (PDD-NOS) and this was not reflected in his last evaluation. I handed the diagnostic report we received from the psychiatrist to our speech therapist. I asked her, "Do I need to put this request in writing?" and she assured me I did not, that she'd take care of it. Of course, I should know better, but I went along with it. Our relationship has improved greatly this school year. I checked a couple of weeks later and the ST assured me she handed over my request plus the evaluation to the new school psychologist. So, in my opinion, the ST did her part of the bargain; the school psychologist did not.
TWO MONTHS later, I e-mailed the director and asked about the status of my evaluation request. She said we must have a conference in order for me to sign the proper papers. On Nov. 7, 2007, I signed permission for Sam to be re-evaluated using diagnostic tests for children on the spectrum. This was official, the way I should have done it in the first place, the mark of the beginning of a new chapter in my almost-warm relationship with GSSC.
Here's the dilemma: The end of the 60 instructional days is in the middle of this week. Within this amount of time, the testing should have been completed and a conference should have been held. What I want to do is say, "I will not file a complaint with the state if you give us the IEP Sam deserves". This is because the director, who was trying very hard to intimidate me at our conference, brought up putting Sam under the 504 umbrella, when I clearly want an IEP. I'm worried he's not going to have any support. The fact that he has low/average intelligence is placing him in a very unstable spot...but with his anxiety level, attention span, inability to articulate his needs consistently, he needs some support, even if it is consultation.
I also feel that if he isn't given ANY IEP next year and he starts to struggle, I cannot and will not wait almost seven months for them to get around to testing him. I go back and forth from homeschooling him...and I would definitely do it if we didn't struggle so much financially already. I am just astounded at this co-op. I really am. I'm so worried that no one is going to care about Sam next year and just let him fall by the wayside. I feel like a classroom teacher needs an IEP to require her to accomodate Sam's needs...otherwise, he's going to be lost.
I really need advice on the correct way to handle this. I've never filed a complaint, never had one filed against me as a teacher, and I don't know if filing one is going too far (or even if testing must be grossly behind schedule). I also don't know if it is ethical or conducive to our unfortunate long-term relationship if I DO file a complaint. It also kind of sounds like blackmail when I want to require them to give Sam consultation vs. not allowing any services. Even though I have very thorough testing from this summer, I don't know if they are even going to do more than consider it and then drop it completely.
Hi Everyone!I received a packet from the Autism
Society of Indiana
over the weekend.They have sent 30
Valentines to me for our local families to sign and send to our legislators
letting them know we are here and are the voices of Autism in Indiana.The cards say I love
someone with Autism and I vote.We hope you will remember
us when you do. The envelopes
are pre-stamped and I will find the address for our legislators and address
them. I would appreciate being contacted by any of you who could receive a few
of these to sign and mail.They
didn’t give us much time and would like these to go back in the mail by February
12th!
If you can help or
know other families who might be willing to sign a couple of these,PLEASE call me at 659-3700 (home) talk to my
machine as I screen calls, or my cell phone 699-2350, and I will arrange a
place and time to bring these to you.
THIS IS A GREAT AUTISM
AWARENESS INITIATIVE!THANKS TO
ANYONE WHO CAN HELP!