Description

Welcome to the PF_Support_Group_India , India's first active on-line support group for IPF patients and their families in India. We're here to support one another as we learn from each other about idiopathic pulmonary fibrosis (IPF) and pulmonary fibrosis (PF). This will be a safe environment where patients and their loved ones can share stories, concerns, fears, information etc. about IPF and PF.

This is your support group. Your thoughts and suggestions are important and beneficial to the group. Please feel free to allow this to be a space where you can gain insight from each other about this disease that takes your breath away. Remember it is a public forum and respect for each other is most important.

Any information shared on this site should not be used as medical advice.

There is a very good group called breathe-support where IPF patients discuss various problems, issues , concerns. I felt the need to start a similar group in india to discuss more specific issues which we face being here.

An on-line support group was just started July 2006 for the people who are the primary support of patients with pulmonary fibrosis. You can check it out at: http://health.groups.yahoo.com/group/Breathe-SupportCaregivers/. There is also a third support group for people who have lost a loved one to pulmonary fibrosis. The link is: http://health.groups.yahoo.com/group/Breathe-SupportGrief/.

Gita