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#211 From: "exgoldie" <Purrrsuasive1@...>
Date: Mon Sep 19, 2005 8:58 pm
Subject: TEE test today exgoldie
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Here is what happened today.................

  Yea OK so I had 2 echocardiograms with bubbles done in July and told
I had a PFO. The expert at University of Chicago said it looked
small, like a 1 out of 5 (5 being the worst)

The expert wanted me to schedule a TEE test along with the closure
for the PFO all at once. I then went for a second opinion and Doc #2
wanted me to just have the TEE test and then make a decision whether
to close it or not.

The TEE test is where they put a camera down your throat and get a
picture perfect look at your heart. Under sedation.

So I do the TEE test this morning and LOW N BEHOLD they claim I do
not have a PFO. I am not posting this to the group yet till the my
cardiologist (doc #2) reads the results and sees the pictures.  I
don't know if I should celebrate yet or go get the TEE test again by
another doctor to be sure. It really sucks that these EXPERT doctors
that are world renowned do surgeries to patients that don't need the
surgery. (I am also referring to the chief of staff at Northwestern
Hospital here that cut out the nerves in my head, knowing the damn
nerves grow back)

Nina, did you have a negative TEE test and then later found out you
really do have a PFO?


Hugs,
Marci

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#210 From: "Violet Flame" <violetflame11@...>
Date: Fri Aug 26, 2005 8:27 pm
Subject: PFO changes with my migraines violetflame11
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Hi Group,
I have been hanging in there with the PFO changes.  My auras are
begining to decrease, which is like a miracle to me.  Instead of
them lasting 30 minutes to an hour with complete visual loss and one
sided numbness and weakness, and confusion, they are only about 10
minutes and just a little blinker in a corner of the visual field
with no numbness and weakness.  This is a big breakthrough for me,
as I was having these really bad TIA like migraine auras 2-3 times a
week.  Those prolonged auras have broght on two  strokes for me in the
past.  It has only been 6 weeks since the surgery and my Doc says
that the migraines will continue to improve over the next 6 months
as the scar tissue heals around the implant in my heart.
I just wanted to share with you how I am doing.
Love,
Vi

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#209 From: Caffeine Fiend <ninahouston@...>
Date: Wed Aug 24, 2005 5:42 pm
Subject: Re: Re: I am having PFO surgery in July angelfire1311
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The procedure is a transcatheder procedure, up your leg through a
vein. :) No more open heart surgery for PFO patients.

-Nina

On Aug 23, 2005, at 3:52 PM, clconley2003 wrote:

> Paul,
>
> Good evening. I just joined this group this evening as I recently
> found out I have a PFO and it needs to be fixed. Per the
> neurologist, they want me to have 'heart surgery' to fix the hole.
> Does this mean 'open heart surgery'? Or will they just put something
> through my leg and up to my heart? Will I be in the hospital for an
> extended period of time? If it's easier, you can respond to my email
> address: clconley27@...
>
> Thanks!
>
> --- In PFOSupport@yahoogroups.com, John Keller <darkoak99@y...>
> wrote:
>
>> Vi,
>>
>> When in July is the procedure?  If you would like futher
>>
> information about the procedure or have any questions, please ask as
> I have access to several Nursing & Physician sites that may elevate
> any curiosities that you may have.
>
>>
>> GOOD LUCK & BEST WISHES,
>>
>> Paul.
>>
>> Violet Flame <violetflame11@y...> wrote:
>> I will be having a PFO closure this July.  I have had 2 strokes,
>>
> and I
>
>> also have really bad chronic migraines.  The surgery is for the
>> prevention of more strokes, but it will be interesting to see if
>>
> my
>
>> migraines go away too.
>> Vi
>>
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#208 From: Violet Flame 11 <violetflame11@...>
Date: Wed Aug 24, 2005 2:43 am
Subject: Re: Re: I am having PFO surgery in July violetflame11
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My PFO closure was just done this past July, they did it by a catheterization. I spent one night in the hospital and was not even put to sleep for the surgery. It is very easy surgery. Check the links section in the group for info on the closures.

Good Luck,

Imagination is more important than knowledge - Albert Einstein

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#207 From: "clconley2003" <clconley27@...>
Date: Wed Aug 24, 2005 1:52 am
Subject: Re: I am having PFO surgery in July clconley2003
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Paul,

Good evening. I just joined this group this evening as I recently
found out I have a PFO and it needs to be fixed. Per the
neurologist, they want me to have 'heart surgery' to fix the hole.
Does this mean 'open heart surgery'? Or will they just put something
through my leg and up to my heart? Will I be in the hospital for an
extended period of time? If it's easier, you can respond to my email
address: clconley27@...

Thanks!

--- In PFOSupport@yahoogroups.com, John Keller <darkoak99@y...>
wrote:
> Vi,
>
> When in July is the procedure?  If you would like futher
information about the procedure or have any questions, please ask as
I have access to several Nursing & Physician sites that may elevate
any curiosities that you may have.
>
> GOOD LUCK & BEST WISHES,
>
> Paul.
>
> Violet Flame <violetflame11@y...> wrote:
> I will be having a PFO closure this July.  I have had 2 strokes,
and I
> also have really bad chronic migraines.  The surgery is for the
> prevention of more strokes, but it will be interesting to see if
my
> migraines go away too.
> Vi
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com

Reply | Forward | Messages in this Topic (11)

#206 From: "clconley2003" <clconley27@...>
Date: Wed Aug 24, 2005 1:52 am
Subject: Re: I am having PFO surgery in July clconley2003
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Paul,

Good evening. I just joined this group this evening as I recently
found out I have a PFO and it needs to be fixed. Per the
neurologist, they want me to have 'heart surgery' to fix the hole.
Does this mean 'open heart surgery'? Or will they just put something
through my leg and up to my heart? Will I be in the hospital for an
extended period of time? If it's easier, you can respond to my email
address: clconley27@...

Thanks!

--- In PFOSupport@yahoogroups.com, John Keller <darkoak99@y...>
wrote:
> Vi,
>
> When in July is the procedure?  If you would like futher
information about the procedure or have any questions, please ask as
I have access to several Nursing & Physician sites that may elevate
any curiosities that you may have.
>
> GOOD LUCK & BEST WISHES,
>
> Paul.
>
> Violet Flame <violetflame11@y...> wrote:
> I will be having a PFO closure this July.  I have had 2 strokes,
and I
> also have really bad chronic migraines.  The surgery is for the
> prevention of more strokes, but it will be interesting to see if
my
> migraines go away too.
> Vi
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com

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#205 From: Violet Flame 11 <violetflame11@...>
Date: Thu Aug 18, 2005 4:24 am
Subject: Re: Marci - surgery violetflame11
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I'm doing well. My auras are declining, and when I do have them, they are nowhere near as intense as they were. Of course I was having 2-4 auras a week regularly, and that was for the past 3 years since my last stroke. Now when I have one it lasts about half as long and it's about half as intense. I am really pleased about this, and I'm hoping that they will continue to calm down to almost nothing in the 6-8 months the docs said it will take to heal.

I am having heart palps, but I had those before the surgery. They are just a little worse now, like when I exert myself alot. I went on a mile walk and that irritated them, and I tried to climb 2 flights of stairs and that irritated them too. But not everyone has heart palps while the heart is healing. Like I said, I had them before the surgery, so there you go. Overall, because my auras aren't as bad, I'm pretty happy. I also have more energy, and more stamina. I feel like I am 22 again! I guess that might be from the corrected blood flow or something.

Love,

Vi

Purrrsuasive1@... wrote:

Vi,

I am not sure when exactly. Actually, I am waiting for your results and also I am thinking of waiting for the results of the study. I go back n forth all the time! Please keep us updated on how your doing.

Remember last year I had that surgery where they cut the nerves in my head and I was told it was going to cure me of my migraines. 3 months later the nerves regenerated and so the surgery was a flop. That's why I am so hesitant to do this. I hope the study results come out fast!!

Hope your doing well!
Hugs,

Marci

Imagination is more important than knowledge - Albert Einstein

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#204 From: Purrrsuasive1@...
Date: Wed Aug 17, 2005 6:20 pm
Subject: Re: Marci - surgery exgoldie
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Vi,

I am not sure when exactly. Actually, I am waiting for your results and also I am thinking of waiting for the results of the study. I go back n forth all the time! Please keep us updated on how your doing.

Remember last year I had that surgery where they cut the nerves in my head and I was told it was going to cure me of my migraines. 3 months later the nerves regenerated and so the surgery was a flop. That's why I am so hesitant to do this. I hope the study results come out fast!!

Hope your doing well!
Hugs,

Marci

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#203 From: Violet Flame 11 <violetflame11@...>
Date: Wed Aug 17, 2005 8:59 pm
Subject: Marci - surgery violetflame11
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Wow!

So you're getting the surgery? Cool! When are you going to get it?

Imagination is more important than knowledge - Albert Einstein

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#202 From: Caffeine Fiend <ninahouston@...>
Date: Wed Aug 17, 2005 7:48 pm
Subject: Re: newly discovered pfo angelfire1311
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trouble is there my doctors through my insurance are saying the PFO is nothing and ignore it. The doctors ELSEWHERE are saying 'get it closed if you cna' but my insurance is going with what the Tricare doctor says. Im REALLY hoping to get in on the migraine study in Chicago.

On Aug 17, 2005, at 3:00 AM, Purrrsuasive1@... wrote:

Just chiming in here........... I have never had a stroke, but I have aura's that last over 4 hours and was put on a calcium channel blocker to help stop the aura's.� I am not sure how my insurance approved the closure, but the cardiologists office has an insurance dept. and they called my ins company and it was approved. I THINK it's cuz the long aura's to them are

considered� transient ischemic attacks and that would be approved by an insurance company. If they called my ins co and said I have migraines and want the closure, NO WAY would that be approved.

�

Hope that helps,

Marci

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#201 From: Caffeine Fiend <ninahouston@...>
Date: Wed Aug 17, 2005 7:43 pm
Subject: Re: newly discovered pfo angelfire1311
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Id spoken to a cardiologist, one of the top cardiologists, about 6 months ago and they said two strokes for a closure. But my mom has had 1 hospitalized TIA(3 unhospitalized) and she called and he said with the 1 on record she could get it done. Same cardiologist. So something has changed i think.

The dr I spoke to was named Tierstein. I spoke to Kavinskys office about the study not about closing it w/o the study.�

On Aug 16, 2005, at 5:41 PM, Violet Flame 11 wrote:

As far as I know if has always been one.� I have just had two.� I don't thnk that two was ever a standard.� Did Kavinsky tell you that you would only qualify for the surgery by having 2 strokes?

Vi

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#200 From: Purrrsuasive1@...
Date: Wed Aug 17, 2005 9:00 am
Subject: Re: newly discovered pfo exgoldie
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Just chiming in here........... I have never had a stroke, but I have aura's that last over 4 hours and was put on a calcium channel blocker to help stop the aura's. I am not sure how my insurance approved the closure, but the cardiologists office has an insurance dept. and they called my ins company and it was approved. I THINK it's cuz the long aura's to them are

considered transient ischemic attacks and that would be approved by an insurance company. If they called my ins co and said I have migraines and want the closure, NO WAY would that be approved.

Hope that helps,

Marci

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#199 From: Violet Flame 11 <violetflame11@...>
Date: Wed Aug 17, 2005 3:41 am
Subject: Re: newly discovered pfo violetflame11
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As far as I know if has always been one. I have just had two. I don't thnk that two was ever a standard. Did Kavinsky tell you that you would only qualify for the surgery by having 2 strokes?

Imagination is more important than knowledge - Albert Einstein

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#198 From: Caffeine Fiend <ninahouston@...>
Date: Tue Aug 16, 2005 10:56 pm
Subject: Re: newly discovered pfo angelfire1311
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Oh is it one now? Thats good at least. It means my mom can get hers closed.

On Aug 16, 2005, at 12:45 PM, Violet Flame 11 wrote:

Hi Nick,

The doc who is doing the FDA research also did my closure 5 weeks ago.� His Name is Dr. Kavinsky and his number is 312-942-5020.�He's at RUSH Memorial in Chicago.� I had a great experience with him and his staff.

Keep us updated as to what's going on with you.

By the way you don't have to have 2 strokes, just one, by FDA standards right now.

Love,

Vi

nickcolwell <nickcolwell@...> wrote:

Hi, I've suffered from migraine with aura for 23 years.� I had recently heard about the PFO connection and went to a cardiologist for a TEE.� They found a small PFO.� I am going to a different cardiologist next week who can do the closure surgery.� I was disappointed when someone on the migraine website said they won't do the closure surgery unless you've had 2 strokes.� My migraines are so bad, I would do anything just to stop them. Someone has mentioned that a hospital in Chicago is doing a PFO closure study.� Does anyone have information about that?� Thanks, Nick

Imagination is more important than knowledge�� -� Albert Einstein

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#197 From: Violet Flame 11 <violetflame11@...>
Date: Tue Aug 16, 2005 10:45 pm
Subject: Re: newly discovered pfo violetflame11
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Hi Nick,

The doc who is doing the FDA research also did my closure 5 weeks ago. His Name is Dr. Kavinsky and his number is 312-942-5020. He's at RUSH Memorial in Chicago. I had a great experience with him and his staff.

Keep us updated as to what's going on with you.

By the way you don't have to have 2 strokes, just one, by FDA standards right now.

Love,

Vi

nickcolwell <nickcolwell@...> wrote:

Hi, I've suffered from migraine with aura for 23 years. I had recently heard about the PFO connection and went to a cardiologist for a TEE. They found a small PFO. I am going to a different cardiologist next week who can do the closure surgery. I was disappointed when someone on the migraine website said they won't do the closure surgery unless you've had 2 strokes. My migraines are so bad, I would do anything just to stop them. Someone has mentioned that a hospital in Chicago is doing a PFO closure study. Does anyone have information about that? Thanks, Nick

Imagination is more important than knowledge - Albert Einstein

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#196 From: Caffeine Fiend <ninahouston@...>
Date: Tue Aug 16, 2005 9:43 pm
Subject: Re: newly discovered pfo angelfire1311
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Arg i did it again. Ok. Vi has the phone number of the doctor who is
doing the study. There i think thats accurate. LOL!!! i cant think
right now sorry.

On Aug 16, 2005, at 11:42 AM, Caffeine Fiend wrote:

> I shoulda said vi has the study INFORMATIOn. sorry. Migraine brain.
>
> On Aug 16, 2005, at 11:11 AM, Caffeine Fiend wrote:
>
>
>> Vi has the study. I just called them today, but theyre waiting to
>> hear from the FDA about approval for it. Im on their list to call and
>> will be happy to share any information im given about it. I dont have
>> the number on me but can email it to you later if youd like. If you
>> find a doctor willing to do the closure w/o having had two strokes
>> first, please let me know as well. Im with you. if it has ANY chance
>> of helping my migraines.. im all for it.  lol. and if it doesnt work
>> well.. at least it lowers my stroke risk right?
>> -Nina
>>
>>
>> On Aug 16, 2005, at 10:09 AM, nickcolwell wrote:
>>
>>
>>
>>> Hi,
>>>
>>> I've suffered from migraine with aura for 23 years.  I had recently
>>> heard about the PFO connection and went to a cardiologist for a TEE.
>>> They found a small PFO.  I am going to a different cardiologist next
>>> week who can do the closure surgery.  I was disappointed when
>>> someone
>>> on the migraine website said they won't do the closure surgery
>>> unless
>>> you've had 2 strokes.  My migraines are so bad, I would do anything
>>> just to stop them.
>>>
>>> Someone has mentioned that a hospital in Chicago is doing a PFO
>>> closure study.  Does anyone have information about that?
>>>
>>> Thanks,
>>> Nick
>>>
>>>
>>>
>>>
>>>
>>> ------------------------ Yahoo! Groups Sponsor --------------------
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#195 From: Caffeine Fiend <ninahouston@...>
Date: Tue Aug 16, 2005 9:42 pm
Subject: Re: newly discovered pfo angelfire1311
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I shoulda said vi has the study INFORMATIOn. sorry. Migraine brain.

On Aug 16, 2005, at 11:11 AM, Caffeine Fiend wrote:

> Vi has the study. I just called them today, but theyre waiting to
> hear from the FDA about approval for it. Im on their list to call and
> will be happy to share any information im given about it. I dont have
> the number on me but can email it to you later if youd like. If you
> find a doctor willing to do the closure w/o having had two strokes
> first, please let me know as well. Im with you. if it has ANY chance
> of helping my migraines.. im all for it.  lol. and if it doesnt work
> well.. at least it lowers my stroke risk right?
> -Nina
>
>
> On Aug 16, 2005, at 10:09 AM, nickcolwell wrote:
>
>
>> Hi,
>>
>> I've suffered from migraine with aura for 23 years.  I had recently
>> heard about the PFO connection and went to a cardiologist for a TEE.
>> They found a small PFO.  I am going to a different cardiologist next
>> week who can do the closure surgery.  I was disappointed when someone
>> on the migraine website said they won't do the closure surgery unless
>> you've had 2 strokes.  My migraines are so bad, I would do anything
>> just to stop them.
>>
>> Someone has mentioned that a hospital in Chicago is doing a PFO
>> closure study.  Does anyone have information about that?
>>
>> Thanks,
>> Nick
>>
>>
>>
>>
>>
>> ------------------------ Yahoo! Groups Sponsor --------------------
>> ~-->
>> <font face=arial size=-1><a href="http://us.ard.yahoo.com/
>> SIG=12kbrk96s/M=327951.6903888.7846657.1589681/D=grphealth/
>> S=1705061589:TM/Y=YAHOO/EXP=1124230187/A=2896150/R=0/SIG=11dd2v0rf/
>> *http://www.facetheissue.com/depression.html">Ever feel sad or cry
>> for no reason at all? Depression. Narrated by Kate Hudson</a>.</font>
>> --------------------------------------------------------------------
>> ~->
>>
>>
>> Yahoo! Groups Links
>>
>>
>>
>>
>>
>>
>>
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>
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>
> ------------------------ Yahoo! Groups Sponsor --------------------
> ~-->
> <font face=arial size=-1><a href="http://us.ard.yahoo.com/
> SIG=12k7rapib/M=327951.6903888.7846657.1589681/D=grphealth/
> S=1705061589:TM/Y=YAHOO/EXP=1124233869/A=2896150/R=0/SIG=11dd2v0rf/
> *http://www.facetheissue.com/depression.html">Ever feel sad or cry
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#194 From: Caffeine Fiend <ninahouston@...>
Date: Tue Aug 16, 2005 9:11 pm
Subject: Re: newly discovered pfo angelfire1311
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Vi has the study. I just called them today, but theyre waiting to
hear from the FDA about approval for it. Im on their list to call and
will be happy to share any information im given about it. I dont have
the number on me but can email it to you later if youd like. If you
find a doctor willing to do the closure w/o having had two strokes
first, please let me know as well. Im with you. if it has ANY chance
of helping my migraines.. im all for it.  lol. and if it doesnt work
well.. at least it lowers my stroke risk right?
-Nina


On Aug 16, 2005, at 10:09 AM, nickcolwell wrote:

> Hi,
>
> I've suffered from migraine with aura for 23 years.  I had recently
> heard about the PFO connection and went to a cardiologist for a TEE.
> They found a small PFO.  I am going to a different cardiologist next
> week who can do the closure surgery.  I was disappointed when someone
> on the migraine website said they won't do the closure surgery unless
> you've had 2 strokes.  My migraines are so bad, I would do anything
> just to stop them.
>
> Someone has mentioned that a hospital in Chicago is doing a PFO
> closure study.  Does anyone have information about that?
>
> Thanks,
> Nick
>
>
>
>
>
> ------------------------ Yahoo! Groups Sponsor --------------------
> ~-->
> <font face=arial size=-1><a href="http://us.ard.yahoo.com/
> SIG=12kbrk96s/M=327951.6903888.7846657.1589681/D=grphealth/
> S=1705061589:TM/Y=YAHOO/EXP=1124230187/A=2896150/R=0/SIG=11dd2v0rf/
> *http://www.facetheissue.com/depression.html">Ever feel sad or cry
> for no reason at all? Depression. Narrated by Kate Hudson</a>.</font>
> --------------------------------------------------------------------
> ~->
>
>
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>
>
>
>
>
>
>

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#193 From: "nickcolwell" <nickcolwell@...>
Date: Tue Aug 16, 2005 8:09 pm
Subject: newly discovered pfo nickcolwell
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Hi,

I've suffered from migraine with aura for 23 years.  I had recently
heard about the PFO connection and went to a cardiologist for a TEE.
They found a small PFO.  I am going to a different cardiologist next
week who can do the closure surgery.  I was disappointed when someone
on the migraine website said they won't do the closure surgery unless
you've had 2 strokes.  My migraines are so bad, I would do anything
just to stop them.

Someone has mentioned that a hospital in Chicago is doing a PFO
closure study.  Does anyone have information about that?

Thanks,
Nick

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#192 From: "Lyn Chambers" <lynchambers2002@...>
Date: Wed Aug 10, 2005 1:40 am
Subject: Re: Post surgical report lynchambers2002
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Sounds promising Vi.I'll be praying those arrhythmia's go away soon too.

Take Care

Lyn

-------Original Message-------

From: Violet Flame

Date: 08/10/05 05:05:20

To: PFOSupport@yahoogroups.com

Subject: [PFOSupport] Post surgical report

Hi Group, Well, It's been a fast month now since my PFO surgery, and I am healing slowly and surely. I have been having arrythmia's and I'm wearing a 30 event monitor. I was having arrythmia's before the surgery, and I was warned that the operation could make them worse for a little while, so I'm still kind of taking it easy. I went for a mile walk on Sunday, slowly with a break in the middle. Then when I got home it was palpatation city. It seems like if I push myself a little the palps act up, but my Cardiologist is watching this. Everything else seems fine, and I am feeling better. On the migraine front, I think it's still too soon to tell, but I must mention that I had my period last weekend, and the usual menstrual migraines were calmer and milder. Almost non-exisistant. I usally have at least 3-4 headbashing migraines in the 3 days my period lasts, but I only had one, and it was really mild. Not a head basher at all! Now this just may be a fluke, and have nothing to do with the surgery, I think only time will tell. Just wanted to pipe in. Vi

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#191 From: "Violet Flame" <violetflame11@...>
Date: Tue Aug 9, 2005 7:04 pm
Subject: Post surgical report violetflame11
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Hi Group,
Well, It's been a fast month now since my PFO surgery, and I am
healing slowly and surely.  I have been having arrythmia's and I'm
wearing a 30 event monitor.  I was having arrythmia's before the
surgery, and I was warned that the operation could make them worse for
a little while, so I'm still kind of taking it easy.  I went for a
mile walk on Sunday, slowly with a break in the middle.  Then when I
got home it was palpatation city.  It seems like if I push myself a
little the palps act up,  but my Cardiologist is watching this.
Everything else seems fine, and I am feeling better.
On the migraine front, I think it's still too soon to tell, but I must
mention that I had my period last weekend, and the usual menstrual
migraines were calmer and milder.  Almost non-exisistant.  I usally
have at least 3-4 headbashing migraines in the 3 days my period lasts,
but I only had one, and it was really mild.  Not a head basher at
all!  Now this just may be a fluke, and have nothing to do with the
surgery, I think only time will tell.
Just wanted to pipe in.
Vi

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#190 From: Caffeine Fiend <ninahouston@...>
Date: Fri Aug 5, 2005 4:06 am
Subject: Re: Heart angelfire1311
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My mom, grandpa both had PFOs(and has. Moms sitll around).. her PFO doesnt ever close though. I have a confirmed PFO. Im hoping thats why i have such bad migraines and if i can get in on the study in Chciago(speaking of I have to call them and see if they have any info on the study yet), get that closed my migraines might get better. I know its not proven, etc, but im just clinging to a hope ! LOL...

As far as WPW.. my father had it. he had the ablation to fix it, and his dr is a world-renown electrophysiologist.. My doctors here have not said WPW yet because theyre kinda ignorant.. The electrophysiologist saw it just by looking at my EKG and strongly suggests i talk to my doctor and get a referal to an electrophysiologist here to get diagnosed through my medical insurance, so I can get it fixed.� Ive read in only 1 percent of ppl is WPW hereditary(the 1percet of the ppl that have WPW), so i guess i just got the short end of the stick all around

-Nina

On Aug 4, 2005, at 4:25 PM, Lyn Chambers wrote:

Well it really was worth all those tests. I have only ever seen WPW syndrome once, when I was training to be a nurse. Not a fun condition. I hope your insurance covers it. I'd be asking why not if it doesn't.

I gave away nursing after a few years. I�am too much of a hypochondriac and I would get too upset when people died. Just too soft. Still many of my scary symptoms have turned out to be migraine related and not in my imagination at all. It took a lot of years to learn though. My father, all his brothers (he was the only one to survive childhood) and my daughter all have PFO and I'm pretty sure I do too but no one around here will listen .

Lyn (We all have migraine too.)�

�

-------Original Message-------

�

From: Caffeine Fiend

Date: 08/05/05 04:17:13

To: PFOSupport@yahoogroups.com

Subject: [PFOSupport] Heart

�
Well all I have not one but three possible heart conditions, isnt� that lovely? :P.. The DHE that the doctors gave me in March has� possibly caused angina, or something similar to angina called cardiac� syndrome X, which can cuse all of the symtoms ive had. We also sent� my EKG to my dads super-fancy highly known doctor(hes like 5th� highest rated electrophisiologist in the nation i think, known world- wide. Hes the one who did my dads surgeries), and he says it looks� like i have wolff-parkinsons-white syndrom, which means i have an� accessory electrical pathway in my heart, and when a signal gets sent� down that pathway, it sets my heart into arythmia and rapid� heartbeats. This condition can lead to atrial fibrillations, and in� rare cases can kill you. Lovely. The good news is a mere $15,000� surgrey that i probably cant get Tripler to pay for will ! fix it. Ive� got to talk to my cardiologist. -Nina
�

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#189 From: "Lyn Chambers" <lynchambers2002@...>
Date: Fri Aug 5, 2005 2:28 am
Subject: Re: Vi lynchambers2002
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Those arrhythmia's are awful. I get Paroxysmal, supra ventricular tachycardia and have lots of palpitations too. It is no fun at all.

Lyn

-------Original Message-------

From: Violet Flame 11

Date: 08/05/05 08:07:55

To: PFOSupport@yahoogroups.com

Subject: Re: [PFOSupport] Vi

Hi Marci,

I'm doing well. I am still having some arrythmias though, and I'm on a monitor for 30 days. It's slow healing, but mostly I think because I have Lupus. It can complicate things sometimes. I've been laying kind of low lately.

Hope all is well with you, and everyone in the group.

Love,

Imagination is more important than knowledge - Albert Einstein

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#188 From: "Lyn Chambers" <lynchambers2002@...>
Date: Fri Aug 5, 2005 2:25 am
Subject: Re: Heart lynchambers2002
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Well it really was worth all those tests. I have only ever seen WPW syndrome once, when I was training to be a nurse. Not a fun condition. I hope your insurance covers it. I'd be asking why not if it doesn't.

I gave away nursing after a few years. I am too much of a hypochondriac and I would get too upset when people died. Just too soft. Still many of my scary symptoms have turned out to be migraine related and not in my imagination at all. It took a lot of years to learn though. My father, all his brothers (he was the only one to survive childhood) and my daughter all have PFO and I'm pretty sure I do too but no one around here will listen .

Lyn (We all have migraine too.)

-------Original Message-------

From: Caffeine Fiend

Date: 08/05/05 04:17:13

To: PFOSupport@yahoogroups.com

Subject: [PFOSupport] Heart

Well all I have not one but three possible heart conditions, isnt that lovely? :P.. The DHE that the doctors gave me in March has possibly caused angina, or something similar to angina called cardiac syndrome X, which can cuse all of the symtoms ive had. We also sent my EKG to my dads super-fancy highly known doctor(hes like 5th highest rated electrophisiologist in the nation i think, known world- wide. Hes the one who did my dads surgeries), and he says it looks like i have wolff-parkinsons-white syndrom, which means i have an accessory electrical pathway in my heart, and when a signal gets sent down that pathway, it sets my heart into arythmia and rapid heartbeats. This condition can lead to atrial fibrillations, and in rare cases can kill you. Lovely. The good news is a mere $15,000 surgrey that i probably cant get Tripler to pay for will fix it. Ive got to talk to my cardiologist. -Nina

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#187 From: Caffeine Fiend <ninahouston@...>
Date: Thu Aug 4, 2005 11:40 pm
Subject: Re: Heart angelfire1311
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my dad had wolff-parkinsons-white syndrome , and he had to get it fixed. Ended up with atrial fibs. it was a fairly straight-forward procedure, low risk. Just expensive. WPW is actually the first condition we thought i had, and the PFO was discovered while doing testing for WPW.. weird huh?

On Aug 4, 2005, at 12:48 PM, Violet Flame 11 wrote:

Hi Nina,

Wow, you are really going through alot right now.� I am really sorry to hear about all of it.� I have never heard of wolfparkinsonswhite syndrome.� I hope that you can get things straightened out with your cardiologist so that you can get the surgery that you need.

Please take it easy and try to take care of yourself.� Getting upset can't be a good thing right now.� We are all here for you.

Love,

Vi

Imagination is more important than knowledge�� -� Albert Einstein

YAHOO! GROUPS LINKS

�Visit your group "PFOSupport" on the web. �
�To unsubscribe from this group, send an email to: �PFOSupport-unsubscribe@yahoogroups.com �
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#186 From: Violet Flame 11 <violetflame11@...>
Date: Thu Aug 4, 2005 10:48 pm
Subject: Re: Heart violetflame11
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Hi Nina,

Wow, you are really going through alot right now. I am really sorry to hear about all of it. I have never heard of wolfparkinsonswhite syndrome. I hope that you can get things straightened out with your cardiologist so that you can get the surgery that you need.

Please take it easy and try to take care of yourself. Getting upset can't be a good thing right now. We are all here for you.

Love,

Imagination is more important than knowledge - Albert Einstein

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#185 From: Purrrsuasive1@...
Date: Thu Aug 4, 2005 6:47 pm
Subject: Re: Vi exgoldie
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Hi Vi!
I am glad to know your doing OK! Sounds like your in for a long recovery, but the best part is the surgery is over and your body is healing! PLEASE keep us updated even if it's just a little hello!

You are in my thoughts and in my prayers!

Hugs n love,

Marci

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#184 From: Violet Flame 11 <violetflame11@...>
Date: Thu Aug 4, 2005 10:07 pm
Subject: Re: Vi violetflame11
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Hi Marci,

Hope all is well with you, and everyone in the group.

Love,

Imagination is more important than knowledge - Albert Einstein

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#183 From: Purrrsuasive1@...
Date: Thu Aug 4, 2005 5:05 pm
Subject: Vi exgoldie
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Where are you Vi??????????

How are you doing?????????

I am worried about you!

Hugs,

Marci

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#182 From: Purrrsuasive1@...
Date: Thu Aug 4, 2005 4:22 pm
Subject: Re: Heart exgoldie
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Yikes Nina, when it rains, it pours!!!!!

I hope you can get Tripler to pay for the surgery! GREAT part of this is, you figured all of this out and when your in your 90's your gonna be talking about what heart condition you had, but fixed!!

WHERE IS Vi???????????????????

Take care and let us know how your doing.

Hugs,

Marci

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