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What's the truth?   Message List  
Reply | Forward Message #674 of 690 |
Re: [PFOSupport] What's the truth?

The first cardiologist I saw said I should not have mine closed after my stroke.
The following four cardiologists I saw all said to have it closed. Definitely
seek multiple opinions. It is too important of a decision not too.

There is no definite consensus that having the PFO closed is the right thing to
do. There are other options, such as life-long coumadin, etc. I didn't find
those options real appealing, as there are significant risks associated with ALL
treatment options. I do a lot of mountain biking, trail running, etc, so the
consequences of a bleeding event on coumadin led me to have mine closed.

You have to choose the option you feel is right after getting all of the
information you can.


--- On Wed, 8/27/08, Denise <goldilocks35@...> wrote:

> From: Denise <goldilocks35@...>
> Subject: Re: [PFOSupport] What's the truth?
> To: PFOSupport@yahoogroups.com
> Date: Wednesday, August 27, 2008, 9:12 PM
> I had mine closed because I had a stroke.  My PFO was never
> diagnosed until after my stroke even though I had open heart
> surgery at 6 weeks of age. 
>  
> Remember- you always have the right to see more than one
> doctor and educate yourself. 
>
> Life is all about holding on and letting go.
>
> --- On Wed, 8/27/08, Mike Brubaker
> <mike_brubaker@...> wrote:
>
> From: Mike Brubaker <mike_brubaker@...>
> Subject: [PFOSupport] What's the truth?
> To: PFOSupport@yahoogroups.com
> Date: Wednesday, August 27, 2008, 10:14 AM
>
>
>
>
>
>
> Hi, all,
>
> My wife just got diagnosed with PFO and a ASA as well,
> which seem
> to be the same thing, from what I can tell. Everything
> I'm reading
> online from Mayo, Hopkins, American Heart Association, etc.
> is saying
> that there is no proven link between having a PFO and a
> higher risk of
> stroke and that they do not recommend arbitrarily closing
> the PFO as a
> precautionary measure. This is also in line with what my
> wife's
> cardiologist is telling her. But, on this group, it looks
> like most
> of you have had it closed anyway. What was the reasoning if
> I might
> ask? We're not really looking to have heart surgery if
> we can avoid
> it and she has no symptoms of any kind, it just showed up
> on a EKG
> looking for why she has a heart murmur sometimes. We're
> just trying
> to figure out if it's a big deal or not. She's 33
> years old.
>
> Thanks,
> Mike Brubaker






Thu Aug 28, 2008 11:04 am

zellm_98
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Message #674 of 690 |
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Hi, all, My wife just got diagnosed with PFO and a ASA as well, which seem to be the same thing, from what I can tell. Everything I'm reading online from...
Mike Brubaker
mike_brubaker
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Aug 27, 2008
10:40 pm

Hi Mike, I can't speak for all the members of the group about why they've had their closures, but I have had 2 strokes due to blood clots from my PFO, and that...
Violet Flame
violetflame11
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Aug 27, 2008
10:42 pm

... if ... while ... I totally agree that you need to have more than one opinion... I, too, have learned from my doctors that if it's large enough and poses...
gina4dash
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Aug 29, 2008
4:39 pm

... daily) and i am 7 months pregnant! so you can. they discovered i was pregnant and had a PFO within 3 days of each other. so having to sit it out til i have...
lisaburstow
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Aug 29, 2008
4:40 pm

I had my PFO before I became pregnant but while pregnant, I took Fragmin and then Heparin in my last 6 weeks.  I didn't have to have a C-section becuase the...
Denise
goldilocks35
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Aug 29, 2008
5:01 pm

I had mine closed because I had a stroke.  My PFO was never diagnosed until after my stroke even though I had open heart surgery at 6 weeks of age.    ...
Denise
goldilocks35
Offline Send Email
Aug 28, 2008
1:12 am

The first cardiologist I saw said I should not have mine closed after my stroke. The following four cardiologists I saw all said to have it closed....
Mark Zell
zellm_98
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Aug 28, 2008
11:04 am

At the time I had mine closed mine closed they required that you had at least 2 strokes before they would consider giving you the procedure. I was unaware I...
Dirk Webb
rkymtnautoma...
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Aug 29, 2008
11:26 am

My son, 22, recently had a stroke. He is in good health, a black belt, etc. The cardiologist who found the PFO explained that there was some dispute as to...
Terijo Brewton
terbrewton
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Aug 29, 2008
4:40 pm
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