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Need to understand PFO and best treatments for!   Message List  
Reply | Forward Message #663 of 690 |
Re: [PFOSupport] Re: Need to understand PFO and best treatments for!

I have the amplatzer, but there are other ones on the market as well.  Each
doctor will have their personal preference.  The biggest issue is to find a
doctor that is experienced with this procedure and that you are comfortable
with.  I would recommend the doctor I had because my experience was great, and I
suspect many people in this group would also recommend their doctors.  However,
there is likely someone near you in Texas that is experienced at performing this
procedure and that you will trust, although it may take some effort on your part
to find that person. 
There are other procedure that are being tested in clinical trials, and you may
want to discuss those with your doctor.  However, you have to compare the
advantages of a device that will partially dissolve versus one that remains
implanted permanently, and you should have those discussions with your doctor. 
I believe there is also a procedure that uses RF energy to seal PFO's, but am
not sure what stage of testing this device is at.  I talked with my doctor and
chose to have the amplatzer device implanted because of the risk of additional
strokes and the length of time until alternatives would become available.
Good luck.



----- Original Message ----
From: Violet Flame <violetflame11@...>
To: PFOSupport@yahoogroups.com
Sent: Thursday, August 7, 2008 9:22:57 AM
Subject: [PFOSupport] Re: Need to understand PFO and best treatments for!

There are a few devices made by different companies.  This group does
not endorse one company or one specific device.  Many of us have just
had the amplatzer, but it doesn't mean it's the device of choice.
Don't be afraid to shop around for doctors and devices and ask
questions.
You are the customer.  If you were shopping for a car, would you buy
the first one the car salesman told you to buy?


--- In PFOSupport@yahoogroups.com, "Terijo Brewton" <terijo@...> wrote:
>
> Is the Amplatzer the one we want?  Aren't there more than one type of
> device?  When I first understood there WAS such a device, I think the
one I
> heard about actually dissolved or something.
>
> Thanks, Terijo
>



------------------------------------

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Thu Aug 7, 2008 2:09 pm

zellm_98
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Message #663 of 690 |
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My 22 year old son had a stroke last week and we are very unhappy with the doctors. He is fine, seems 95% recovered, however no one seems to have time to talk...
Terijo Brewton
terbrewton
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Aug 4, 2008
7:24 pm

Hi Terijo, I am sorry to hear that your son had a stroke. Is he taking an anticoagulant? That should keep him from making any more clots for now. If he is...
Violet Flame 11
violetflame11
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Aug 4, 2008
7:26 pm

It is a nickel mesh, I know that much and I was leery for that reason alone. Thank you so much for responding; I think the doctor's don't regularly test for...
Terijo Brewton
terbrewton
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Aug 4, 2008
10:10 pm

Allergy testing for nickel is very quick and easy. Just go to a dermatologist and ask for a skin patch test. If your son is allergic it will show up as a...
Violet Flame
violetflame11
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Aug 4, 2008
10:11 pm

Hi there Terijo, I think it is very wise that you look for someone that has experience with these operations. I was sent to a Cardiac specialist when I found...
Leigh Anne DelRay
delraygoddess
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Aug 4, 2008
11:45 pm

Hi Terijo, You should be able to contact the device makers (Amplatzer, etc) and ask them to recommend a surgeon who is experienced with their device. I went...
Mark Zell
zellm_98
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Aug 5, 2008
12:22 am

Is the Amplatzer the one we want? Aren't there more than one type of device? When I first understood there WAS such a device, I think the one I heard about...
Terijo Brewton
terbrewton
Offline Send Email
Aug 7, 2008
1:21 pm

There are a few devices made by different companies. This group does not endorse one company or one specific device. Many of us have just had the amplatzer,...
Violet Flame
violetflame11
Offline Send Email
Aug 7, 2008
1:22 pm

I have the amplatzer, but there are other ones on the market as well.  Each doctor will have their personal preference.  The biggest issue is to find a...
Mark Zell
zellm_98
Offline Send Email
Aug 7, 2008
2:09 pm
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