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Need to understand PFO and best treatments for!   Message List  
Reply | Forward Message #659 of 690 |
Re: [PFOSupport] Need to understand PFO and best treatments for!

Hi there Terijo,
I think it is very wise that you look for someone that has experience with these operations.
I was sent to a Cardiac specialist when I found out I had a PFO, and was trying to make the decision to close it or live on the blood-thinner drugs. I was told that the procedure, while simple, and quick, as far as recovery, is rather obscure, and not just any heart surgeon can do it.
I was told that in my entire city of Tucson, that there was only one cardiac surgeon that did the surgery, and he had not done many, he said one or two a year! I was nervous with that, and I found a guy that was really good named Samuel Butman, he was still in the state of Arizona, but about 5 hours away.
I am not sure how my cardiac guys worked it out, but Dr.Butman flew into town and operated on me and two others all in the same day!
He told be that he had done the exact same procedure about 150 times! I felt much better about that than the other guys dozen or so.
So, if it were me, I would go to further lengths to get a good one.
As far as the allergy testing, I never had that, which is really a shame, if something had been a problem. Luckily, nothing has happened, and I was deemed with a clean bill of health and am now off all the blood-thinners, for the first time in 4 years!
Good luck and keep us posted what all goes on with your son, we would love to help in whatever little bit we can.
Take care,
Leigh Anne DelRay



--- On Mon, 8/4/08, Terijo Brewton <terijo@...> wrote:
From: Terijo Brewton <terijo@...>
Subject: Re: [PFOSupport] Need to understand PFO and best treatments for!
To: PFOSupport@yahoogroups.com
Date: Monday, August 4, 2008, 1:43 PM


 It is a nickel mesh, I know that much and I was leery for that reason alone. 
 
Thank you so much for responding;  I think the doctor's don't regularly test for allergies.   We have an appointment with a guy who has one abour 20 of these which doesn't seem like very many.  I'd rather travel to someone who knows everything and maybe is familiar with various devices, not just one.
 
You know what I mean?
 
I understand that this procedure is replacing open heart surgery - it seems like it is the device or lifetime blood thinners.  He got clouted with a ball last night in softball practice (um.. frequent enough occurrence) and it raised a large bump - something it would not have done earlier.
 
Thanks so much for your response!  Terijo




Mon Aug 4, 2008 10:41 pm

delraygoddess
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Message #659 of 690 |
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My 22 year old son had a stroke last week and we are very unhappy with the doctors. He is fine, seems 95% recovered, however no one seems to have time to talk...
Terijo Brewton
terbrewton
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Aug 4, 2008
7:24 pm

Hi Terijo, I am sorry to hear that your son had a stroke. Is he taking an anticoagulant? That should keep him from making any more clots for now. If he is...
Violet Flame 11
violetflame11
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Aug 4, 2008
7:26 pm

It is a nickel mesh, I know that much and I was leery for that reason alone. Thank you so much for responding; I think the doctor's don't regularly test for...
Terijo Brewton
terbrewton
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Aug 4, 2008
10:10 pm

Allergy testing for nickel is very quick and easy. Just go to a dermatologist and ask for a skin patch test. If your son is allergic it will show up as a...
Violet Flame
violetflame11
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Aug 4, 2008
10:11 pm

Hi there Terijo, I think it is very wise that you look for someone that has experience with these operations. I was sent to a Cardiac specialist when I found...
Leigh Anne DelRay
delraygoddess
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Aug 4, 2008
11:45 pm

Hi Terijo, You should be able to contact the device makers (Amplatzer, etc) and ask them to recommend a surgeon who is experienced with their device. I went...
Mark Zell
zellm_98
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Aug 5, 2008
12:22 am

Is the Amplatzer the one we want? Aren't there more than one type of device? When I first understood there WAS such a device, I think the one I heard about...
Terijo Brewton
terbrewton
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Aug 7, 2008
1:21 pm

There are a few devices made by different companies. This group does not endorse one company or one specific device. Many of us have just had the amplatzer,...
Violet Flame
violetflame11
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Aug 7, 2008
1:22 pm

I have the amplatzer, but there are other ones on the market as well.  Each doctor will have their personal preference.  The biggest issue is to find a...
Mark Zell
zellm_98
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Aug 7, 2008
2:09 pm
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