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Before i get side tracked, no I am not on BC, I got my tubes tied a few years ago after the birth of my third child (who had pregnancy complications and then medical disorders and we said ENOUGH!!!). I currently take Topamax for migraines, ambien for sleep, and claritin for allergies. I dont have time to go into the story in full, I'll write when I get home. I have to go buy food for the kids.. have to feed the family. (my mom is driving and hauling the kids I'm not by myself).
I had a second episode, yesterday and did end up in ER. Not the military facility I mentioned, though ironically I got forgotten for over 3 hrs. Put in a side room and then left, until after I was coherent and could speak clearly again.
I'll go into everything in a few hours when I get back, but the ER doctor said complex migraines.
I had just seen my neuro shortly before, he did not say one way or another. He did not realize I had a PFO, he had started seeing me only a year ago if i remember correctly(very tired today sorry) and I'm not sure why it didnt get mentioned I usually do mention it.. His initial thought(before finding out that I had a PFO) was a migraine, he mentioned migraines that bring delirium and euphoric type feelings. I told him no, I've had those kinds before and described how I get with those. Extremely verbal, joke alot, (that is where the nickname listed below came from actually someone once asked me if i was on a caffeine high and called me a caffeine fiend. I had had no coffee that day and i thought it was absolutely hilarious and put it as my email name). The next day I will remember i spoke to someone, and was very funny and had them rollin on the floor laughing, but not what i was saying spacifically. I had always thought it was a defense mechanism , block out the pain when I hurt really bad. He said no its actually a chemical release in the brain. hm learned something new. But no this was different. I didnt feel euphoric or delerious.
I brought up my family history of PFO. My mom suffered a TIA from a PFO, at a young age, not as young as me but still considered young for strokes/TIA's. They didn't know she had a PFO then, actually found mine about that time then did a test for hers when she came back to her doctor and said, they jsut found one in my daughter. after her cholestorol, arteries. etc came back completely clean. My dads side also has a history of strokes at early age. No known history of PFO though.
At any rate, he ordered an EEG to make sure its not seizures but he said its more just to rule it out than anything, because he has to. He asked who was following me for my PFO/heart. Answer.. Nobody. The military doctors blew it off as benign and canceled my cardiology consult. However, yesterday at my PCM appointment my doctor expressed concern about this, and has scheduled me with an appnt spacifically to talk about this and get me set back up with them and to get another bubble echo done to check it again, etc. He couldnt do any of that yesterday because in the military system if my appointment is listed as for a sinus infection, and he puts in a cardiology consult, itll get flagged in the system because its not consistant with the appointment. You ahve to make an appointment for every single seperate issue you need to discuss with the doctor.
Anyways that was the day up to the ER trip hah.
-Nina
On May 29, 2008, at 2:32 AM, Denise wrote:
Nina- I was 26 when I had my stroke due to a PFO. Are you on birth control pills? They think that is how I got the clot. I want you to know something...I almost didn't go to the hospital...and I did...they sent me home. I know about bad hospitals. I am glad that you are seeing a doctor. I really hope though that you learn something from this...that you have to speak your mind. I persisted that something was wrong and got diagnosed. You have to be your own advocate- regardless of how poor an ER is. Just because of your age- doesn't matter---babies get strokes. I was currently in a movie made for health education here in Maine because 6 women a day in Maine die from Heart/Stroke problems. As you can see, I don't take this matter lightly. My ER assumed because I was a women and only 26 that I couldn't possibly be having a stroke.... Again- I am glad you are going to the doctor. I pray that you didn't have a stroke.
Caffeine Fiend <ninahouston@hawaii.rr. wrote:com> Its just a difference between where the clot is, on the left side and the right side of the
brain, and it affects the symptoms quite a bit if i remember correctly. Who knows if i am
though, im so completely spacey today.
No offense taken, its the most obvious answer and one I did consider, dont get me wrong.
Im not sure when this was posted, my email program went skitzo on me today.. and
maybe yesterday too?
I actually saw my doctor today(see post prior).
It happened yesterday past clinic hours. Without writing a book, I cannot explain to
anyone the depth of the incompetancy of the ER I would have to go to. They would not
have taken it seriously, and would have told me it was a migraine and why was I bothering
them and to go home, after making me wait 10+ hours(yes seriously) in the waiting room
before even getting triaged, and since I am not in the age bracket of what doctors
consider general stroke risk, nor do i have high cholestorol, etc, they would have just
discounted it. Unfortunately, I have been to this ER enough times for migraines to know
this and even my husband who always sides on caution when it comes to my health
couldnt help but agree that i'd probably have better results just seeing my doctor this
morning(had a first thing in the moring appointment today anyways for a follow up for
sinus infection), and depending on the ER's wait time I may even see HIm before i got into
the ER, because it happened in the evening. I talked to him about it while there, and I also
see my neuro today as well(also for a already scheduled follow up) and am also going to
talk to him about it.
I hope that answered your question :)
-Nina
--- In PFOSupport@yahoogroups.com , Denise <goldilocks35@...> wrote:
>
> I am not sure what a left-brain stroke is. I have had a stroke. If you have concerns, no
offense but you should be calling a doctor and getting looked at. Why are you holding off?
>
> Nina Houston <ninahouston@...> wrote: can anyone who has had a left-brain
Stroke or TIA please describe it? I had a .. very unsettling experience a little while ago and
its worrying me. Thankyou.
> -Nina
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> Life is all about holding on and letting go.
>
Life is all about holding on and letting go.
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