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PFO, migraine and aura   Message List  
Reply | Forward Message #496 of 690 |
Re: [PFOSupport] Re: Avoiding Migraines

Hi Sarah,
I wouldnt worry to much about it either, but make sure you find a doctor that will pay attention to this. I had a stroke in June of this year so thats how they found out that I had a PFO. My other concern is if I will have any issues when I decide to have babies in the near future. Im 25 years old and will hopefully be getting married next year sometime so thats my concern also. Any more information on this would be very much appreciated.
By the way Thank You Mark & Dirk for your advice.
Carolina

Mark Zell <zellm_98@...> wrote:
Hi Sarah,

I think if I were you I would not have the surgery
without a very compelling reason. I had it because I
had a stroke and a mid-size PFO with ASA and did not
want to be on coumadin the rest of my life. You might
want to talk with your doctor about whether it would
be beneficial to take a baby aspirin every day. That
is all I am currently on nine months after the
surgery. You have to remember that between 10-30% of
the population is believed to have a PFO, and they are
not all having strokes because of it. It might also
be worth while to get screened for clotting disorders.
That information would be very beneficial in plotting
a course forward.

Mark

--- Sarah Carr <sarahcarr@btconnect.com> wrote:

> Hi
>
> I found out I had a PFO through participating in a
> migraine research study at Manchester University
> here in the UK. But my GP said I didn't need to
> worry about it and I'm on no anticoagulant, nor have
> I been referred to a cardiologist. Do you think I
> ought to be pushing to see one, or am I worrying
> unnecessarily? Sometimes it seems you've got to have
> a stroke before anyone takes a PFO seriously! Any
> advice much appreciated.
>
> Sarah
>
> ----- Original Message -----
> From: Mark Zell
> To: PFOSupport@yahoogroups.com
> Sent: Friday, September 14, 2007 1:45 AM
> Subject: Re: [PFOSupport] Re: Avoiding Migraines
>
>
> I have the same thoughts as Dirk sometimes. I had
> heart palpitations for the first couple of days,
> and
> nothing after that. It still bugs me sometimes
> having
> a piece of metal in my heart, but for me it was a
> better choice than being on coumadin for the rest
> of
> my life. I crashed mountain biking last weekend
> and
> had a major cut on my leg. Had I been on coumadin,
> that would have probably put me in the hospital.
>
> You need to do the research you feel necessary to
> make
> a decision you can live with. I talked with four
> cardiologists I know, and they all said this was
> the
> direction to go.
>
> Good luck.
>
> Mark
>
> --- Dirk <rkymtnautomation@yahoo.com> wrote:
>
> > Honestly I sometimes wish I had waited until
> they
> > come out with a
> > device that will eventually just dissolve into
> your
> > system so you
> > don't have to go around with a piece of metal in
> the
> > middle of your
> > heart. I still am having heart palps from it and
> > they suck too, but
> > who knows, if I would of waited I could of had a
> > serious stroke and
> > then I would be a thousand times worse off then
> I am
> > right now.
> >
> > What it comes down to is this is a decision you
> can
> > only make for
> > yourself. I suggest reading through all the info
> on
> > this board and
> > research everywhere else you can find on the net
> so
> > when you do make
> > a decision you can feel comfortable that you
> made
> > the best decision
> > possible with all the information that was
> > available. Good luck.
> >
> > Dirk
> >
> >
> > --- In PFOSupport@yahoogroups.com, Carolina
> > Maldonado
> > <cmaldonado82@...> wrote:
> > >
> > > Hi Violet,
> > >
> > > I just wanted to let you know that I had the
> > nickel patch allergy
> > test last week and it was negative! I took your
> > advice and did it.
> > Does anyone else have any other advice for
> me???? I
> > have a PFO and my
> > Dr's want to close it with the amplatzer device.
> But
> > Im really
> > nervous about having the procedure done. Im
> scared
> > of the effects I
> > will have afterwards. Please advise everyone
> that
> > has had it done or
> > in the process!!!!!
> > >
> > > ~Carolina~
> > >
> > > Violet Flame 11 <violetflame11@...> wrote:
> > > Cutting edge, more like trial and error!
> > >
> > > Mark Zell <zellm_98@...> wrote: Hi Violet,
> > >
> > > Thanks for the interesting article. I have
> only
> > had a
> > > couple of migraines since my PFO closure in
> > December,
> > > and mine seem to be triggered by blood sugar
> > issues (I
> > > am hypoglycemic) and/or bright sunlight. They
> have
> > > all come in the morning after not eating
> breakfast
> > > with bright sunlight shining into my office.
> > >
> > > I had heard about the link between MSG and
> > migraines,
> > > but the others are new to me. When I was
> > > investigating whether or not to get my PFO
> closed
> > I
> > > read some interesting articles about chemicals
> in
> > the
> > > blood passing through the PFO and triggering
> > > migraines. I thought chocolate was one of
> those
> > that
> > > they mentioned in those articles. No one
> really
> > seems
> > > to know for sure. Isn't it nice to be on the
> > cutting
> > > edge of medical science?...
> > >
> > > Mark
> > >
> > > --- Violet Flame 11 <violetflame11@...> wrote:
> > >
> > > >
> > > >
> > > > Many migraineurs find that certain foods can
> > trigger
> > > > their symptoms. By eliminating certain foods
> > from my
> > > > diet I have really decreased the amount of
> > migraines
> > > > that I have daily. This may work for some
> > people,
> > > > but not
> > > > for others. Food isn't the only thing that
> > > > triggers a migraine, but It never hurts to
> try
> > to
> > > > eliminate some of these foods from your diet
> to
> > see
> > > > if you can avoid some pain! I would rather
> avoid
> > > > chocolate than have to take a
> > > > narcotic! Here are a few examples I have
> > > > compiled for the group;
> > > > Most migraine sufferers should limit their
> > intake
> > > > of bananas, papaya, and raisins to ½ cup a
> day.
> > > > Other fruits that may cause headaches
> include
> > citrus
> > > > fruits, avocados, figs, passion fruit, and
> red
> > > > plums. Who would
> > > > have thought that natural foods like these
> could
> > > > hurt?
> > > > Soy sauce contains MSG, which can trigger a
> > > > migraine. Even if a Chinese restaurant
> > advertises
> > > > no MSG, they are still likely to use sauces
> that
> > > > have MSG, even if they don't add any to the
> food
> > > > itself.
> > > > Chocolate contains a substance that can
> trigger
> > a
> > > > migraine, too bad for us! :(
> > > > Meats such as corned beef, hot dogs, and
> pickled
> > > > herring are "cured meats" and contain an
>
=== message truncated ===

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Fri Sep 14, 2007 3:33 pm

cmaldonado82
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Forward
Message #496 of 690 |
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I have had 2 strokes, so when I was diagnosed with a PFO my cardiologist decided to close it right away. But I also had a history of migraines with aura....
Violet Flame
violetflame11
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Aug 14, 2007
3:01 pm

Hello everyone I had a TIA this past June, and I have migraines with aura. Although my migraines have really calmed down alot over the past couple years. The...
Carolina Maldonado
cmaldonado82
Offline Send Email
Aug 14, 2007
5:37 pm

Hi Carolina, I have not had the device removed yet. I also have epilepsy and Lupus, and these add a great risk factor to open heart surgery. I am using...
Violet Flame 11
violetflame11
Offline Send Email
Aug 14, 2007
10:59 pm

Many migraineurs find that certain foods can trigger their symptoms. By eliminating certain foods from my diet I have really decreased the amount of migraines...
Violet Flame 11
violetflame11
Offline Send Email
Sep 5, 2007
12:40 am

Hi Violet, Thanks for the interesting article. I have only had a couple of migraines since my PFO closure in December, and mine seem to be triggered by blood...
Mark Zell
zellm_98
Offline Send Email
Sep 5, 2007
1:29 am

Cutting edge, more like trial and error! Mark Zell <zellm_98@...> wrote: Hi Violet, Thanks for the interesting article. I have only had a couple...
Violet Flame 11
violetflame11
Offline Send Email
Sep 5, 2007
1:40 am

Hi Violet, I just wanted to let you know that I had the nickel patch allergy test last week and it was negative! I took your advice and did it. Does anyone...
Carolina Maldonado
cmaldonado82
Offline Send Email
Sep 12, 2007
3:09 pm

Honestly I sometimes wish I had waited until they come out with a device that will eventually just dissolve into your system so you don't have to go around...
Dirk
rkymtnautoma...
Offline Send Email
Sep 14, 2007
12:01 am

I have the same thoughts as Dirk sometimes. I had heart palpitations for the first couple of days, and nothing after that. It still bugs me sometimes having ...
Mark Zell
zellm_98
Offline Send Email
Sep 14, 2007
12:45 am

Hi I found out I had a PFO through participating in a migraine research study at Manchester University here in the UK. But my GP said I didn't need to worry...
Sarah Carr
theresacarr2003
Offline Send Email
Sep 14, 2007
9:10 am

Hi Sarah, I think if I were you I would not have the surgery without a very compelling reason. I had it because I had a stroke and a mid-size PFO with ASA and...
Mark Zell
zellm_98
Offline Send Email
Sep 14, 2007
1:56 pm

Hi Sarah, I wouldnt worry to much about it either, but make sure you find a doctor that will pay attention to this. I had a stroke in June of this year so...
Carolina Maldonado
cmaldonado82
Offline Send Email
Sep 14, 2007
3:33 pm

Hi Sarah, A big reason I had the surgery was because I have had 2 strokes, and I wanted to avoid a 3rd. My PFO was very large. If you haven't had any...
Violet Flame 11
violetflame11
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Sep 15, 2007
12:15 am

Thanks to Mark, Vi and Carolina for your advice, which I appreciate very much. I know it's a bit different for me because I've not had a stroke, but I had four...
Sarah Carr
theresacarr2003
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Sep 17, 2007
10:00 am

Hi Sarah, Did you really have worse migraines in just the first 3 months of pregnancy? Did they go away after that? I have no children yet, and am thinking...
Violet Flame 11
violetflame11
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Sep 17, 2007
1:40 pm

Hi Vi Yes, I believe a lot of people find migraines improve during pregnancy, but I did find the first three months rather hardgoing. After that, they were...
Sarah Carr
theresacarr2003
Offline Send Email
Sep 19, 2007
9:02 am
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