Kim,
I have had a PFO closure using the CardioSeal device. I was able to get around the study because I want to have children and can't be on bloodthinners. You can get info at the Cleveland Clinic website. I am 28, and at 6 weeks of age- had a VSD repair and at 27, had a stroke! At age 23, my father died---guess from what- SMOKING. When I had my stroke- all they kept asking me was if I SMOKE. I realize I do not know you, and from living with my dad- I understand that some people enjoy everything about smoking and they won't quit regardless of their health issues---BUT KIM---re read what you wrote to everyone in this support group. YOu can expect to get on a trial with smoking either---I mean---you want to improve your pain by going through surgery---but yet you will put a cancer stick in your mouth while putting a device in your heart---I agree with Vi- you need to analyze your priorities---it
will be difficult to get ahead with the doctors if you keep smoking and try to get on a trial. My insurance did cover the surgery but my explination of benefits from the insurance company showed that the device was over $6,000---and the hopsital was $20,000---just in for one night. That didn't include any of the surgeons. Also---a lot of doctors have not used CardioSeal so I requested to have the doctor two states away come and supervise the surgery. The thing is---PFO's are new in the health world---it is still be discovered.
Please know I am not meaning to attack---but I think if you stop smoking, a lot of issues would calm down a bit. I know in my state, they have some great programs and my insurance even covers programs to help you quit...
Good luck to you!
Violet Flame 11 <violetflame11@...> wrote:
Violet Flame 11 <violetflame11@...> wrote:
You have to have at least one stroke before they will close the PFO, or be having TIA's. I also have pvc's and the surgery only made them worse. Have you tried Verapamil? It will help prevent migraines and calm down the pvc's. It is a blood pressure med, but it also dialates the arteries and helps keep the heart from skipping beats.You shouldn't smoke it's a HUGE migraine and heart palp trigger. My Mom had pvc's for years, and when she quit smoking they went away. You're kidding yourself if you keep smoking. I'd stop smoking first, and see if that helps before I put a piece of metal into my heart. Once it's there, it's there for life. If you aren't having problems with blood clots then don't do that to yourself.Good luck,Vi
kimsstay <cornerstone@arvig.net> wrote:Hello, I am a new member who just found this site. I was diagnosed
with a PFO this summer but the cardiologist and my internist pretty
much blew it off as no big thing ('a lot of people walking around with
PFOs, no problem'). I have been suffering from migraines now for 4
yrs, a little over 2 yrs ago they became daily. still on the search
for a preventative that will work but do not take any abortives other
than muscle relaxers, so have become an expert on dealing with pain.
There are many days when the pain is so bad it makes my blood pressure
sky rocket.
I also have hypertension (diagnosed about 11 years ago), very
resistant to treatment. Diagnosed with Primary Aldosternism last march
at the Mayo. Besides hypertension, this also causes potassium
deficiency, which in my case leads to lots of PVCs, which again I was
told not to worry about (the PVCs). I am on supplements and a high
potassium diet.
So here is my point -- (sorry to ramble on) because of my
hypertension, plus migraines, plus I smoke (I know, I know, I should
quit....), I am a prime candidate for stroke. Yet they won't do the
PFO closure unless you already have a stroke? Do you have to have
TWO!!?? That just seems like closing the barn door after the horses
have escaped...
Does anyone know the latest on this? Is there a website to go to see
what the FDA current stand is?
Has anyone had the operation who had to pay for it out of pocket? How
much was it? I was quoted '$20 to $30,000' just off the cuff. After
that I didn't pursue the idea cuz that is out of my ballpark. Those of
you who have had the surgery, did you have a stroke (or two) before?
Did you insurance cover the surgery?
thanks for any input,
kim
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