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Reply | Forward Message #386 of 690 |
Hello, I am a new member who just found this site. I was diagnosed
with a PFO this summer but the cardiologist and my internist pretty
much blew it off as no big thing ('a lot of people walking around with
PFOs, no problem'). I have been suffering from migraines now for 4
yrs, a little over 2 yrs ago they became daily. still on the search
for a preventative that will work but do not take any abortives other
than muscle relaxers, so have become an expert on dealing with pain.
There are many days when the pain is so bad it makes my blood pressure
sky rocket.

I also have hypertension (diagnosed about 11 years ago), very
resistant to treatment. Diagnosed with Primary Aldosternism last march
at the Mayo. Besides hypertension, this also causes potassium
deficiency, which in my case leads to lots of PVCs, which again I was
told not to worry about (the PVCs). I am on supplements and a high
potassium diet.

So here is my point -- (sorry to ramble on) because of my
hypertension, plus migraines, plus I smoke (I know, I know, I should
quit....), I am a prime candidate for stroke. Yet they won't do the
PFO closure unless you already have a stroke? Do you have to have
TWO!!?? That just seems like closing the barn door after the horses
have escaped...

Does anyone know the latest on this? Is there a website to go to see
what the FDA current stand is?

Has anyone had the operation who had to pay for it out of pocket? How
much was it? I was quoted '$20 to $30,000' just off the cuff. After
that I didn't pursue the idea cuz that is out of my ballpark. Those of
you who have had the surgery, did you have a stroke (or two) before?
Did you insurance cover the surgery?

thanks for any input,
kim




Sat Jan 13, 2007 6:24 pm

kimsstay
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Message #386 of 690 |
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Hello, I am a new member who just found this site. I was diagnosed with a PFO this summer but the cardiologist and my internist pretty much blew it off as no...
kimsstay
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Jan 13, 2007
6:24 pm

You have to have at least one stroke before they will close the PFO, or be having TIA's. I also have pvc's and the surgery only made them worse. Have you...
Violet Flame 11
violetflame11
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Jan 13, 2007
7:04 pm

Kim, I have had a PFO closure using the CardioSeal device. I was able to get around the study because I want to have children and can't be on bloodthinners....
Denise
goldilocks35
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Jan 14, 2007
12:00 am

Believe me, if you are serious enough to put a piece of metal in your heart to improve your health you better be serious enough to quit smoking first. I know...
Dirk
rkymtnautoma...
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Jan 14, 2007
8:45 am

... Dirk, thanks for the reply and the tip on the website (quitnet.com). I have been trying to get up the nerve to quit but haven't quite gotten there yet. It...
kimsstay
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Jan 16, 2007
1:48 am

Denise, thanks for the input, it really sounds like you have been thru a lot for someone so young. I have no intention of participating in a trial, there is no...
kimsstay
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Jan 16, 2007
1:55 am

Kim- Here is a link for you: http://www.clevelandclinic.org/health/health-info/docs/4000/4025.asp?index=12953 It gives basic information but from there you can...
Denise
goldilocks35
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Jan 16, 2007
2:53 pm

Dear Vi, thanks for all the info and for sharing your story with me. Of course I need to quit smoking, that is pretty much a given. I just have to screw up the...
kimsstay
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Jan 16, 2007
2:07 am

It's hard for me to say if the surgery actually helped my migraines, as I am allergic to the nickel in the device. The nickel is making the auto-immune...
Violet Flame 11
violetflame11
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Jan 16, 2007
9:30 pm

Hi there, I would just like to say that my headaches have gotten much better since the surgery BUT the aura's got much worse - especially right after. I am...
Amy Brogna
amybrogna6
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Jan 16, 2007
10:08 pm
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