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Bad news about Amplatzer   Message List  
Reply | Forward Message #353 of 690 |
Re: [PFOSupport] Re: Bad news about Amplatzer

Hi Vi,
I was also unable to connect to the link.
Any other information you may have to share would be great!
 
I am so glad that you finally have an answer to what has been going on with you for so long. 
What are your immediate plans?  Are you having it removed?
Take care,
Amy

Dirk <rkymtnautomation@...> wrote:
I am terribly sorry to hear this Vi. I would really like to read the
article you posted the link to but the link isn't working for me,
could you possible cut and paste it on here for us to read?

Is there any medication you can take to help with the symptoms of
the allergy?

--- In PFOSupport@yahoogroups.com, "Violet Flame"
<violetflame11@...> wrote:
>
> I have just been in touch with the company who makes Amplatzer, as
I
> have recently discovered that the FDA is looking into a study done
at
> USC about Amplatzer and nickel allergy. It seems that the device
has
> nickel in it, and many people are becoming allergic to the
device. I
> am, I was just tested by my allergist. The symptoms are
unresolved
> heart palpatations and increased migraine auras. I have had both
of
> these as of late, as well as hair loss and rashes. Now I do have
> Lupus, and my Lupus (an auto immune disease like rheumatoid
arthritis)
> has been going insane since the surgery a year ago, but I have
just
> tested positive for the nickel allergy. This is not good.
> Unfortunately the only treatment is that you have the implant
removed,
> and that takes open heart surgery. Not a happy option. I have a
> wonderful article sent to me by the Amplatzer company about the
USC
> study and I will copy and post it when I get back home in a few
days
> from my vacations. In the meantime, here is an article I found
> online, although it is not as comprehensive as the one I have.
> Vi
> http://www.invasivecardiology.com/jic/displayArticle.cfm?
> articleID=article3359
>



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Tue Aug 29, 2006 1:51 pm

amybrogna6
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Message #353 of 690 |
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I have just been in touch with the company who makes Amplatzer, as I have recently discovered that the FDA is looking into a study done at USC about Amplatzer...
Violet Flame
violetflame11
Offline Send Email
Aug 27, 2006
3:02 am

I am terribly sorry to hear this Vi. I would really like to read the article you posted the link to but the link isn't working for me, could you possible cut...
Dirk
rkymtnautoma...
Offline Send Email
Aug 29, 2006
7:08 am

Hi Vi, I was also unable to connect to the link. Any other information you may have to share would be great! I am so glad that you finally have an answer to...
Amy Brogna
amybrogna6
Offline Send Email
Aug 29, 2006
1:56 pm

Im so sorry to hear about this, Vi. I remember how excited you were about this, and that your migraines had decreased for a while. at the same time im grateful...
Caffeine Fiend
angelfire1311
Offline Send Email
Aug 29, 2006
10:11 am
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