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Bad news about Amplatzer   Message List  
Reply | Forward Message #352 of 690 |
Re: [PFOSupport] Bad news about Amplatzer

Im so sorry to hear about this, Vi. I remember how excited you were about this, and that your migraines had decreased for a while.

at the same time im grateful you posted this. My mom is preparing to have her closure surgery in October in Germany. I dont know which device the dr. uses, but ive forwarded this info on to her as well. We have some metal allergies in our family, and i believe nickel is one of them.

Please let us know what happens. Thinking of you...


-Nina

On Aug 26, 2006, at 5:01 PM, Violet Flame wrote:

I have just been in touch with the company who makes Amplatzer, as I
have recently discovered that the FDA is looking into a study done at
USC about Amplatzer and nickel allergy. It seems that the device has
nickel in it, and many people are becoming allergic to the device. I
am, I was just tested by my allergist. The symptoms are unresolved
heart palpatations and increased migraine auras. I have had both of
these as of late, as well as hair loss and rashes. Now I do have
Lupus, and my Lupus (an auto immune disease like rheumatoid arthritis)
has been going insane since the surgery a year ago, but I have just
tested positive for the nickel allergy. This is not good.
Unfortunately the only treatment is that you have the implant removed,
and that takes open heart surgery. Not a happy option. I have a
wonderful article sent to me by the Amplatzer company about the USC
study and I will copy and post it when I get back home in a few days
from my vacations. In the meantime, here is an article I found
online, although it is not as comprehensive as the one I have.
Vi
http://www.invasivecardiology.com/jic/displayArticle.cfm?
articleID=article3359




Tue Aug 29, 2006 10:07 am

angelfire1311
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Message #352 of 690 |
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I have just been in touch with the company who makes Amplatzer, as I have recently discovered that the FDA is looking into a study done at USC about Amplatzer...
Violet Flame
violetflame11
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Aug 27, 2006
3:02 am

I am terribly sorry to hear this Vi. I would really like to read the article you posted the link to but the link isn't working for me, could you possible cut...
Dirk
rkymtnautoma...
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Aug 29, 2006
7:08 am

Hi Vi, I was also unable to connect to the link. Any other information you may have to share would be great! I am so glad that you finally have an answer to...
Amy Brogna
amybrogna6
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Aug 29, 2006
1:56 pm

Im so sorry to hear about this, Vi. I remember how excited you were about this, and that your migraines had decreased for a while. at the same time im grateful...
Caffeine Fiend
angelfire1311
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Aug 29, 2006
10:11 am
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