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Reply | Forward Message #349 of 690 |
Re: Complications to surgery

Don't get me wrong, I am not having them that often, maybe 1 - 3 a
month or so, but if you have had a palp before I am sure you will
agree with me that even one is too many, so I want to hear from
someone that has this same device in that is no longer having any
palps anymore.


--- In PFOSupport@yahoogroups.com, Amy Brogna <amybrogna6@...> wrote:
>
> I am also really curious to know if anyone doesn't have the palps
anymore
>
> Dirk, are you on any meds for them? I am on Toprol XL.
> What is your Dr's advise (exercise, carry on as normal???)?
> Thanks
>
> Dirk <rkymtnautomation@...> wrote:
> I haven't completely stopped having the palpitations
which I
> expected to be done with by now at 6 months. Has anyone that has
had
> the amplatzer device installed not having any heart palps anymore?
>
> --- In PFOSupport@yahoogroups.com, Amy Brogna <amybrogna6@> wrote:
> >
> > Vi,
> > I am so sorry that things have been so rough for you since your
> closure. You are in my thoughts every day. Thank you for sharing
> your symptoms with us - I think it really helps to hear EVERYTHING
> that is going on with people, not just the good stuff!
> > On that note - what kind of complications if any is anyone else
> having?
> > Is anyone totally healed and feeling perfect??
> > As I have mentioned before, I have still having palpitations
> frequently and major hair loss. I'm not sure if that is related
but
> I guess sometimes after surgery you can lose hair. For the most
> part I feel pretty good but not 100% - I'm not sure that I will
ever
> feel "normal" again.
> > Any thoughts???
> >
> > <violetflame11@> wrote:
> > My Lupus symptoms have increased considerably, with
> severe joint pain, fevers, rashes, seizures, hair loss, frequent
> infections and protein in my urine. My Lupus blood tests are
really
> off the charts too. I guess my immune system doesn't like having
> pieces of metal and polyester in my body. I have had to live on
> steroids for the past several months just to keep the Lupus
> managable. I've never had to do that before.
> > So if anyone out there has an auto-immune disease and is
> considering the surgery, consider it carefully.
> > Vi
> >
> > Dirk <rkymtnautomation@> wrote:
> > More specifically what kind of complications are you having
> Vi?
> >
> > --- In PFOSupport@yahoogroups.com, Violet Flame 11
> <violetflame11@>
> > wrote:
> > >
> > > Well, it's been a year since my surgery, and I wanted to
report
> some
> > complications I've been having. I had a PFO closure done with an
> > Amplatzer. I also have Lupus, and it seems that my Lupus has
been
> a
> > little haywire since the surgery, and just won't calm down. In
> fact,
> > my Lupus has never been this bad my whole life, and my
> immunologist
> > thinks it is a response to the surgery and the foriegn device
> > implanted in me.
> > > I doubt that this would happen to the average person with a
> > healthy, normal immune system, though.
> > > Vi
> > >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > ---------------------------------
> > Do you Yahoo!?
> > Everyone is raving about the all-new Yahoo! Mail Beta.
> >
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>
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>
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>







Thu Aug 10, 2006 8:48 am

rkymtnautoma...
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Forward
Message #349 of 690 |
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Has anybody heard anything lately? Anybody involved in a test?...
juggletax
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Aug 1, 2006
10:23 pm

Hello, I am going too be the first person in Michigan too get the closure device installed. It is too my knowledge that the cardiologist will take the first 3...
nrse1231
Offline Send Email
Aug 2, 2006
2:52 am

Good luck to you, you are very brave. I only had the procedure done because I have had 2 strokes. Keep us updated. Vi nrse1231 <nrse1231@...> wrote: ...
Violet Flame 11
violetflame11
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Aug 2, 2006
3:43 pm

My Neurologist is figuring that I have had numerous ministrokes with my migraines but since there is nothing showing up on any MRI's that I have had done, I...
nrse1231
Offline Send Email
Aug 2, 2006
4:17 pm

Well, it's been a year since my surgery, and I wanted to report some complications I've been having. I had a PFO closure done with an Amplatzer. I also have...
Violet Flame 11
violetflame11
Offline Send Email
Aug 2, 2006
3:44 pm

More specifically what kind of complications are you having Vi? ... complications I've been having. I had a PFO closure done with an Amplatzer. I also have...
Dirk
rkymtnautoma...
Offline Send Email
Aug 3, 2006
7:22 am

My Lupus symptoms have increased considerably, with severe joint pain, fevers, rashes, seizures, hair loss, frequent infections and protein in my urine. My...
Violet Flame 11
violetflame11
Offline Send Email
Aug 3, 2006
4:28 pm

Vi, I am so sorry that things have been so rough for you since your closure. You are in my thoughts every day. Thank you for sharing your symptoms with us -...
Amy Brogna
amybrogna6
Offline Send Email
Aug 7, 2006
1:57 pm

Funny you mention the hair loss Amy. I've been having a ton of that myself. I just thought it was a part of my Lupus. Hmmmm. Amy Brogna...
Violet Flame 11
violetflame11
Offline Send Email
Aug 7, 2006
5:46 pm

I haven't completely stopped having the palpitations which I expected to be done with by now at 6 months. Has anyone that has had the amplatzer device...
Dirk
rkymtnautoma...
Offline Send Email
Aug 9, 2006
7:21 am

I am also really curious to know if anyone doesn't have the palps anymore Dirk, are you on any meds for them? I am on Toprol XL. What is your Dr's advise...
Amy Brogna
amybrogna6
Offline Send Email
Aug 9, 2006
1:10 pm

Don't get me wrong, I am not having them that often, maybe 1 - 3 a month or so, but if you have had a palp before I am sure you will agree with me that even...
Dirk
rkymtnautoma...
Offline Send Email
Aug 10, 2006
9:01 am

Dirk, I'm still having palpatations, only maybe once a month or so. They are no where near as frequent as they were right after the surgery....
Violet Flame 11
violetflame11
Offline Send Email
Aug 9, 2006
6:50 pm
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