I am so sorry that things have been so rough for you since your closure. You are in my thoughts every day. Thank you for sharing your symptoms with us - I think it really helps to hear EVERYTHING that is going on with people, not just the good stuff!
On that note - what kind of complications if any is anyone else having?
Is anyone totally healed and feeling perfect??
As I have mentioned before, I have still having palpitations frequently and major hair loss. I'm not sure if that is related but I guess sometimes after surgery you can lose hair. For the most part I feel pretty good but not 100% - I'm not sure that I will ever feel "normal" again.
Any thoughts???
<violetflame11@...> wrote:
My Lupus symptoms have increased considerably, with severe joint pain, fevers, rashes, seizures, hair loss, frequent infections and protein in my urine. My Lupus blood tests are really off the charts too. I guess my immune system doesn't like having pieces of metal and polyester in my body. I have had to live on steroids for the past several months just to keep the Lupus managable. I've never had to do that before.
So if anyone out there has an auto-immune disease and is considering the surgery, consider it carefully.
Vi
Dirk <rkymtnautomation@yahoo.com> wrote:
More specifically what kind of complications are you having Vi?
--- In PFOSupport@yahoogroups.com, Violet Flame 11 <violetflame11@...> wrote: > > Well, it's been a year since my surgery, and I wanted to report some complications I've been having. I had a PFO closure done with an Amplatzer. I also have Lupus, and it seems that my Lupus has been a little haywire since the surgery, and just won't calm down. In fact, my Lupus has never been this bad my whole life, and my immunologist thinks it is a response to the surgery and the foriegn device implanted in me. > I doubt that this would happen to the average person with a healthy, normal immune system, though. > Vi >
Hello, I am going too be the first person in Michigan too get the closure device installed. It is too my knowledge that the cardiologist will take the first 3...
Good luck to you, you are very brave. I only had the procedure done because I have had 2 strokes. Keep us updated. Vi nrse1231 <nrse1231@...> wrote: ...
My Neurologist is figuring that I have had numerous ministrokes with my migraines but since there is nothing showing up on any MRI's that I have had done, I...
Well, it's been a year since my surgery, and I wanted to report some complications I've been having. I had a PFO closure done with an Amplatzer. I also have...
More specifically what kind of complications are you having Vi? ... complications I've been having. I had a PFO closure done with an Amplatzer. I also have...
My Lupus symptoms have increased considerably, with severe joint pain, fevers, rashes, seizures, hair loss, frequent infections and protein in my urine. My...
Vi, I am so sorry that things have been so rough for you since your closure. You are in my thoughts every day. Thank you for sharing your symptoms with us -...
I haven't completely stopped having the palpitations which I expected to be done with by now at 6 months. Has anyone that has had the amplatzer device...
I am also really curious to know if anyone doesn't have the palps anymore Dirk, are you on any meds for them? I am on Toprol XL. What is your Dr's advise...
Don't get me wrong, I am not having them that often, maybe 1 - 3 a month or so, but if you have had a palp before I am sure you will agree with me that even...
Having problems with message search?
Offline 
Send Email
