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Hi Vi,
I have been screened for MS the first hemiplegic attack I had, I wound up in hospital with that, and have been there a few times since that first one..... I do not know if I was ever tested for Lupus, what are the sighns of having that??? It was determend I do not have MS.
With all the effects I have and the resulting loss of function in my left side that is pretty much permanent I do think I had a few TIA's. My new neurologists is looking into that, has asked for the films from the old mri's and will do additional testing if neccesary. I do know that now I have less migraines and less severe migraines I get more function back, can walk better, use my left hand better and think better.
The bubble echo will not be done today, this is the first talk with the cardiologist, and then he will decide iff, and when he will do the additional tests. In Holland there is quite a wait for medical procedures, I had to wait 5 weeks to see the cardiologist for instance. You only get to see a specialist fast if there is a life threatning condition.
Heartwise I am not really blessed with a father who passed away at his 63rd birthday from massive heart attacks, he was a heart patient for years before that and we already know he would not live to be old, and a mother who had a mild heartattack december 5th 2005, the reasons are unknown and since PFO's are a major reason for heartattacks and strokes with no know cause I did tell her to let her cardiologist known I will be checked for a PFO. At one of the health checks I got at work, a few years ago, the technichian who did the heartfilm freaked, I turned out to throw PVC's premature ventricle complexes and the only reason I can remember that term is that my son was born premature and I remember thinking "geez whenever will I loose that premature label" *LOL* I had to stay laying down, be calm (thats easy when you see the panic in their eyes) and they called the hospital......the cardiologist told them to relax, it was nothing and I was sent home eventually.
I was checked out and the cardiologist let me know he has never seen a heart this healthy at his practice, yes I do have a heart that beats extra, but my heart can handle that, now I wonder if the PVC's and PFO might be connected.....I do know that with the regular ultrasound and other testing they did then they could not have found the PFO.
I do get palpatations, and feel the extra beats when I exhaust myself or have to use salbutamol, a medicine that you inhale when you have asthma, when I use that I know I will feel every extra beat really good and that is freaky at times. I was told not to use it unless I must, but hey when I can not breathe I have to.....for without air my heart will not work well either *grin*
Oh well I do seem to be the mondaymorning model of all Anne-Mieke's produced, with some manufacting errors and a shoddy users manual :-)
Just kidding, but sometimes I do wish I was healthier, it is not funny to realise that one of the favorite things I used to do, walking for hour's with our two German Shepherds is just not possible anymore, sure I'd rather use the wheelchair than stay home, but it is hard and sometimes makes me sad.
Anyway I am rambling now, it is soooooo good to have found you, especially another who also has hemiplegic migraines as that is a rare condition and on the Dutch migraine site I got zero response when I asked if anyone was known with the PFO's and hemiplegic migraines.
Did you know that this list only comes up on Google if you make a type error?
I typed "patent foramen ovale migranie" in Google and wound up on a site called camp migraine and saw this list mentioned :-) talk about co incidence.
Kind regards
Anne-Mieke
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