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Reply | Forward Message #236 of 690 |
Hello

I am so glad I ran across this site, it's unbeliveable how few sites
there are deticated to pfo/asd's. Thank you for starting this one
Vi!

I have recently been diagonosed with a pretty severe pfo, last
Monday they did a chest echo and it showed that I had bubbles going
across even while I am at rest. I have been having chest pains and
shortness of breath for a couple of years now and it is getting
worse pretty fast. I almost always feel exhausted from even the
least activity and I think I may be having tai's as well. I have
read through all the posts on here and I have seen similarities of
what I am going through and it's has made me feel more confident
that it is my pfo that has been causing most of this.

I am wondering though Vi, if you have any regrets so far from having
the surgery? And if so what are they? If there is anything you would
of done different what would it be?

BTW, I am 33 year old male and I live in Salt Lake City, Utah.

Any and all advise would be extremly helpful to me at this point.

Anyway I will be looking forward to speaking with all of you and
getting more familiar with this place :)

Dirk







Wed Jan 25, 2006 1:57 pm

rkymtnautoma...
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Message #236 of 690 |
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Hi All, Just checking in, it's been a little quiet lately. I am preparing for my closure on Tuesday July 12, and I'm a little nervous because I've had the...
Violet Flame
violetflame11
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Jul 10, 2005
5:32 pm

Hope you are better before Tuesday Vi. My daughter will be having an MRI at the time, (She's 14 ) to monitor a cyst she has in her head so I will be praying...
Lyn Chambers
lynchambers2002
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Jul 11, 2005
12:25 am

I hope all is well with your daughter Lyn. MRI's are painless, but pretty noisy, especially to little ears. I hope she does well. Love, Vi Lyn Chambers...
Violet Flame 11
violetflame11
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Jul 11, 2005
7:53 pm

I am so glad I ran across this site, it's unbeliveable how few sites there are deticated to pfo/asd's. Thank you for starting this one Vi! I have recently been...
Dirk
rkymtnautoma...
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Jan 25, 2006
1:59 pm

Hi Dirk, I am really glad to hear that they found your PFO! I'm sorry that you are sick, but hopefully if they close it you will find relief from your...
Violet Flame 11
violetflame11
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Jan 25, 2006
8:52 pm

So where are you at in the healing process? Do you have to go back in to do check-ups and what kind are they? Is the healing going good? How long was it before...
Dirk
rkymtnautoma...
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Jan 26, 2006
2:49 am

It has been 6 months for me and I am now off of the plavix. I was back to regular activities after 10 weeks. The healing is done, and I just had a follow up...
Violet Flame 11
violetflame11
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Jan 26, 2006
3:14 am

Dirk - my mother has a PFO thats open even at rest, has had several TIA's. Shes looking to get in on a migraine/PFO study right now, because she doesnt have...
Caffeine Fiend
angelfire1311
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Jan 26, 2006
8:09 am

Yeah my doctor told me not to expect to feel any different with the pfo closed but I have read so much information to the contrary I am not sure if he is just...
Dirk
rkymtnautoma...
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Jan 26, 2006
3:01 pm

Well my doctor is a military doctor, and i dont know if anyone here is familiar with military physicians but... I dont have much confidence in their abilities....
Caffeine Fiend
angelfire1311
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Jan 27, 2006
5:00 am

HI everyone. My name is Kristy, adn I am 26 years old. I've recently been diagnosed with a pfo, following a stroke, and 14 years of severe migraines, with and...
curegrrrl420
Offline Send Email
Feb 2, 2006
9:34 pm

No you don't have to be part of a study anymore. With some devices you do need to have two strokes before they will implant the device because of the...
Dirk
rkymtnautoma...
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Feb 3, 2006
1:17 am

Thanks Dirk, I'm in Charleston,WV. I don't have a cardio., my neurologist (Dr. Goldfarb), sent me to a cardio's. office to have my bubble echocardiogram, but I...
curegrrrl420
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Feb 3, 2006
2:40 pm

Well I am having my surgery done next Tuesday by SHERMAN G. SORENSEN, M.D. <http://www.sorensenmd.com/> He has done quite a few studies and seems to be the...
Dirk
rkymtnautoma...
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Feb 4, 2006
12:09 am

The Cleveland Clinic is ranked first in the US for heart surgery. http://www.clevelandclinic.org/heartcenter/ There is a surgeon there by the name of Dr....
Violet Flame 11
violetflame11
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Feb 5, 2006
2:46 pm

Yeah Cleveland would definitely be closer to West Virgina, you may want to check into there instead if you can't find what your looking for locally. It is nice...
Dirk
rkymtnautoma...
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Feb 6, 2006
4:42 am

Hi Kristy, I have had 2 strokes and have really bad migraine auras. Because of my history of stroke, the Cardiologist closed my PFO, and I didn't have to be...
Violet Flame 11
violetflame11
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Feb 3, 2006
1:51 am

Hello Everyone, I just wanted to check in and see how everybody was doing? I havent seen any messages lately. Im doing ok I have my closure 2 months ago. Wow...
Carolina
cmaldonado82
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Jan 15, 2008
5:19 pm

Hi Carolina, I'm glad to hear that you're doing better after your surgery! I get the flutters too, have you worn a monitor? I wore one for about a month, and...
Violet Flame 11
violetflame11
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Jan 17, 2008
5:55 pm

No I have not worn a monitor. I cant have any coffee or chocolate, but thats cause they are migraine triggers for me. I had a small chocolate donuthole and...
Carolina Maldonado
cmaldonado82
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Jan 18, 2008
8:31 pm

I just wanted to ask everyone how their migraines were after their surgery. After the surgery for about 3 months, mine were almost gone and then suddenly they...
Violet Flame 11
violetflame11
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Jan 17, 2008
6:00 pm

Hi Violet, Regarding the palpitations, I have them as well. I have found three triggers for them: caffeine, alcohol, and low blood sugar, usually in the...
Mark Zell
zellm_98
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Jan 17, 2008
6:21 pm

Hi Mark, Did you have the aura's before the surgery? Tx, Amy Mark Zell <zellm_98@...> wrote: Hi Violet, Regarding the palpitations, I have them as well....
Amy Brogna
amybrogna6
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Jan 17, 2008
6:35 pm

Hi Mark, Thank you for sharing your experience. I never considered my blood sugar, and that is really significant since I was diagnosed with hypoglycemia...
Violet Flame 11
violetflame11
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Jan 17, 2008
11:51 pm

Hi, I also wanted to comment that although I don't get migraines I do get the aura's. Low blood sugar, stress and a really hard workout are my triggers. I...
Amy Brogna
amybrogna6
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Jan 18, 2008
12:56 am

Amy, hair loss is a huge side affect of hypothyroidism. I recently started taking synthroid myself. I have almost no eyebrows left! My endocrinologist...
Violet Flame 11
violetflame11
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Jan 18, 2008
1:15 am

Hello, Actually my hair loss was tremendous right before the surgery. I was started to get scared and then right after it the surgery it fell out alot for a...
Carolina Maldonado
cmaldonado82
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Jan 18, 2008
9:41 pm

Hi Amy, I did have the Aura's before surgery, but the migraines were much less common and much more debilitating. They would typically put me down for the...
Mark Zell
zellm_98
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Jan 17, 2008
8:00 pm
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