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PDCD · Pyruvate Dehydrogenase ComplexDeficiency

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Description

Welcome to the HealthShare International Support Network's community for individuals affected by 'Pyruvate Dehydrogenase Complex Deficiency (PDCD).'

Members are also invited to check out the HealthShare International's Support Community Center.

Our community center is a gathering place for members interested in meeting new friends and sharing disease information and support with others from over 1200 different disease support groups.

Community Center Address: http://healthsharegroups.org

David Hughes
Founder
healthsharegroups@live.com

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My email address was compromised
I am so sorry to each of you, if you happened to recieve a strange email from me recently, well that wasn't me.  I have fixed the problem and changed the
Posted - Sun Jan 15, 2012 4:07 am
Melissa cummings
mndcummings
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Re: Important parent survey for Leighs disease
Please disregard...I meant to send this directly to Cristy.  Hope you all are well. Happy Holidays.   ________________________________ From: Mike Belcher
Posted - Thu Nov 17, 2011 1:03 pm
Mike Belcher
dadtojuliet
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Re: Important parent survey for Leighs disease
Cristy, Our daughter Juliet is not "diagnosed" with Leighs...however, her Geneticist often states that she presents with a "Leighs-like" profile.  Your
Posted - Thu Nov 17, 2011 11:50 am
Mike Belcher
dadtojuliet
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Important parent survey for Leighs disease
Hi everyone, If your child with PDCD also has a diagnosis of Leighs disease/Leigh's syndrome, please help us out by taking this confidential survey.
Posted - Wed Nov 16, 2011 2:02 pm
Cristy
balcellsfam
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Re: Trouble with temperature regulation in the heat
Hello, when Andrew used to be good, I mean out of his comatose state a year and a half ago, I always was checking his temperature because once he sweat, his
Posted - Sun Aug 21, 2011 2:32 am
TANIA
taniaemily7
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 1
2011 27 11 12 6 3
2010 43 9 1 30 7 13 12 17 15 2
2009 36 27 15 19 53 2 19 28 3 9 6
2008 183 88 113 55 130 204 84 81 84 150 21 35
2007 27 27 28 18 23 24 33 43 131 210 50 76
2006 8 19 24 14 24 28 1 74 22 21 89 41
2005 3 4 3 1 7 16 8 10 2
2004 8 2 3 2 1
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