This is an on-line support group for parents who have the genetic skin condition called Epidermolysis Bullosa (EB) and who have children with EB as well. We all know how rare EB is to begin with, but those who have EB and go on to have children with EB, well, as we know there are not very many of us. The hope is that this group will bring together those with EB and that have children with EB. This will be a warm, loving place where we can laugh, find support, share thoughts, idea and suggestion; a place where we can vent to one another without worrying about what others will think; a place where we can all relate and know we are not alone!

You don't have to be the parent with EB to join. As long as one parent of the child has EB, the spouse or other parent of that child may join.