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OzBrainTumour · Australian brain tumour [tumor] support
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"A CELEBRATORY REMEMBRANCE OF JOHN LAWRENCE LYONS WHO DIED JUNE 30, 2000, AGE 35, OF BRAIN CANCER"
with a very useful collection of links to information sites.
http://www.johnsfunnyfamily.com/index.html
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A cheerful site of AA survivor Carty , with poetry in his diary
http://www.airofothers.com/menu.html
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A collection of survivors stories at Al Musella's website
http://www.virtualtrials.com/survive.cfm
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Brad Kaminsky Foundation
Lots of useful information in this site developed and maintained by a survivor.
http://www.tbkf.org/maxpages/Home
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Diary of a Brain Tumor Patient's Wife
a detailed account of loving care for a person with a grade 4 tumour, diagnosed mid 1997, died April 1999.
http://www.lib.uchicago.edu/~rd13/bt/diary.html
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Fred Hill - his widow, Julia's, tribute
lots of links to more information.
http://lisajulia.tripod.com/fred.html
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Gail Fenter
glioblastoma diagnosed December 96, deceased December 97
http://www.heartlight.org/gail/
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Gareth Brandon, born 16 July 1996
The brain tumour that I had surgically removed in May 1997 was identified as an Infantile Desmoplastic Ganglioglioma, which we now know is a very rare tumour. In fact, up to my operation in 1997, only another 22 children worldwide seem to have had this particular tumour.
http://www.geocities.com/davb2141/
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John Reay diagnosed 1997 [GBM] still writing his own story at his website November 2000
http://members.home.net/jreay/
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Julia Driscoll, sister of Natalie, AA3
Links to brain tumour sites, Australian Survivor Page coming soon!
http://www.poppysden.one.net.au/brain_tumours
poppymum
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Katie, diagnosed at age 5 with neuroblastoma grade 4
http://www.makeachildsmile.org/previouskids/00kids/february00.html
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Kristen Kenzig's Memorial
Information Links For Brain Tumors.
http://www.virtualtrials.com/btlinks/
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Kristen, deceased age 10
http://www.concentric.net/~Jimkenz/kristen.html
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Lesley Baldauf [GBM, using temozolomide]
You need to click on a link to Lesley's condition - there's a steaming audio lecture on brain tumours!
http://www.davebaldauf.com/
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Life with a Brain Tumor
Journal to blog my thoughts about being diagnosed with a brain tumor
http://www.lifewithabraintumor.blogspot.com
sarahrenee1977
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Marg and Denis Strangman
Margaret S has been fighting a GBM since June 2000
http://www.geocities.com/oldparl/journey.htm
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Margaret Gray and Dennis Argall
Margaret G has been fighting a GBM since April 2000
http://home.alphalink.com.au/~grargall/
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Matthew Fullerton
survivor of GBM since 1987.
http://gbm4.tripod.com/gbm4guide/
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Michael Norton, aged 14
a mother's diary.
http://www.geocities.com/Michael_nortonrules/mdiary.html
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Micki, a.k.a. June Mitchell Bingham Esselstyn [GBM] 1942-1999
http://www.esselstyn.com/mickinews/overview.html
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Richard Lee Karpf, [GBM, over 2 years] 11/18/61-10/22/98
http://members.aol.com/dlsak/
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Rosalind Frers [diagnosed GBM May 1999]
http://home.swbell.net/sfrers/Rosalind.htm
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Support and Information for people with brain tumour
The James Crofts Hope Foundation is in Perth and has been going since 2001. It provides support and information to people with brain tumours, their families and carers.
http://www.jamescroftshopefoundation.org.au
jc200120022003
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Symons, Jane
Website diary and links, GBM dx August 2004
http://www.jane.symons.com.au
rossgordonsy...
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Terri, born 30 October, 1990, diagnosed 1993 with spinal cord tumour
an Australian family's story. Also lots of URLs for information.
http://www.ains.net.au/kerrynb/
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Ute und Thomas Krassmann - a German site with Thomas's account of Ute's GBM
introduction in English - use http://babelfish.altavista.com/translate.dyn for (rough) translations.
http://www.untertage.com/tumor/tumor.htm
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Zachary, living with astrocytoma from age 5
- third profile in group
http://www.makeachildsmile.org/previouskids/00kids/april00.html
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