To DeAnne, Hello. I am in Washington state also. I am trying to determine if I have a mast cell disorder. After finding this group, I had my allergist...
Hi, I live in Nevada. I once thought I was sulfite sensitive... actually, I am to the metabisulfites and bisulfites, etc., but not to certain shrimps or crab....
For those of you with bone pain associated with Mastocytosis, may I ask you how it presents and what are your symptoms? I have skin only masto (they say)...
Nicole, My doctor is John Walker at Northwest Asthma and Allergy Center in Richland, WA, 509-946-0189. He also travels to Seattle sometimes to meet with his ...
Thank you, Deanne. I will contact NW Asthma and Allergy in Seattle or Redmond to ask if they have someone like Dr. Walker who is familiar with mast cell...
Hi Jane: There is a person near your area--Fresno/Sacramento--that is looking for a physician. He did say that if he has to go to the Bay area, he would be...
If you do come to Richland, let me know if you would like to meet for lunch or coffee. Hope you are able to find someone closer for you, though. DeAnne...
I used to have severe pain in my right hip. The doc could find nothing. One day it was my left hip! After that I found out that processed foods were the...
Supposedly, I also only have skin masto [TMEP]. However, like many here I experience varying symptoms at different times. Allergy season(s) seem to have a...
Granddaughter in Dallas area with Masto....had very little success in finding one that knew anything but what was in book in medical school....however, check...
I live in Dallas. I see an Oncologist every 3 months. I have Systematic Mastocytosis. Her name is Janice Marshall. She is located in Texas Oncology in...
Hello everyone: I wanted to let you know about an article that came out recently about mastocytosis and Giovanni. The person writing the article took symptoms...
Also, in case some are wondering, Giovanni is NOT profiting at all from the sale of the CD. It is actually costing him money that he VERY MUCH wants to give....
Michelle, Thanks for the article, I have forwarded it to many family members. The past month has been incredible. i love to read the emails of others who have...
Hi Stacy: I am so glad that you found others online here with TMS. I have talked with many patients online since the mid-1990s. I don't think I could have...
Kathryn, I felt a need to tell you just how funny my brain fog can be. I know, there are many that will think it's shear stupidity, but I have to laugh at...
My daughter has bone involvement and right now that is the thing most bothering her. It kept her up literally all night. She is currently taking gastrocrom...
Hello, my name is Tiffany and I am so glad that I found this group. I have been sick since February 2005 and only diagnosed in July of this year with...
Hey Tiffany, I was diagnosed with the skin verion of Masto [tmep] approx. a year ago. Mine showed up after loosing a kidney to cancer. My test were all...
Hi Dan, My doc gave me Gastrocrom for the GI problems but it didn't do much. I have been feeling a little better for the past few weeks, I started taking...
Dear Tiffany, First of all, welcome to the group! _ Bone _ pain is a frequent symptom of mast cell-related diseases (which include cutaneous and systemic...
Dear Dan, You're not the first story I've heard about developing mast cell disease after trauma or surgery. Of course, some people can have mastocytosis and be...
Dear Tiffany, How long did you try it? Did you always take it on a completely empty stomach? Gastrocrom is poorly absorbed by the body, and so if you take with...
Candace, Thanks for your reply. I took gastrocrom for about 3 weeks. My doctor wasn't sure if it would really help and it was costing me $100.00 for a 12 days...
Hi Everyone, I have been lurking for a week or two and thought it was time to introduce myself. My daughter who is 3 has uticaria pigmentosa and was recently...
Dear Tiffany, Oh, I hear you. When my allergist finally sat down and read me the riot act, I felt as though my life was over. Before his reality check, I was...
Funny you should mention the gall bladder. It was removed three months after the kidney [side issue from original surgery]. And as an after thought, we think...
Dear Leslie, Welcome! If I may ask, what are the other diagnoses your daughter has? About 50% of children who have cutaneous mastocytosis (like UP) outgrow the...
Hi Candace, Besides the Mastocytosis, my daughter has food allergies, GERD, some intestinal issues that are not currently diagnosed with a name, had...
