Hey Kerry,  I was right about the small hospital being overly cautious. A 30 minute proceedure took several hours. First it was a different radiologist...
my docs are always worried about my liver---which has always been fine. I take it more than they know, of course, since I have it alllll the time! Thanks,...
Tacy Heisey
theisey@...
Jul 22, 2008 11:47 am
906
Hi, I was wondering what a c-kit is? I read the new messages almost daily and as I read what other people are writing I keep wondering to myself "Am I doing...
What were you taking to get your tryptase down. Mine has been over 200 for
years.   Thanks Karen ... From: tam3866 Date: 7/23/2008 3:21:17 PM To:...
Are they sure you have Mastocytosis and not an allergic reaction to something. A high tryptase, according to the doctors my husband sees, could be caused by an...
my tryptase is 200 ,,sometimes it might go up with a reaction,,my local hemo/oncoligist got it at 190 about 8 months ago,,which Ithought was strange,,I...
Karen my tryptase is 200 too and I have 40%mast cells in my bone marrow,,if you dont mind me asking ,,how long are you diagnosed?has your tryptase gone up?how...
Hi Jennifer I was diagnosed about two years ago, but in hind sight I have had this
disease for a very long time. I was very sick for about a year (pretty much...
Hi Karen, I also have lynphnode involvement,,I also have bone lesions,,when I was first diagnosed I was stuck on a couch most of the day,,lots of bone...
Karen, I started taking Singulair and changed from Zyrtec and zantac to Allegra and pepcid. I also take klonopin for anxiety because my heart rate was over 120...
The poetry book that Giovanni placed the lyrics of his song into has arrived. He was thrilled to see that the lyrics were placed on the first pages after the...
Just to follow up -- yes, when mast cells are stimulated they release some or all of the granules they contain. Mast cells are unusual in that in order for...
Hi Jerri, One thing you may want to consider is an abdominal ultrasound. They can check your liver, etc and I believe it would be safe while pregnant. Good...
Jerri: I have the same sensation and so far they haven't investigated it any further. Now that there is another with that symptom, I will say something to my...
Jerri, My allergist told me OHSU has some very good doctors who treat masto. I'm not sure who they are but you may want to call them to find out. I live in...
Hi Jerri: It is my understanding that the OHSU masto specialists are no longer there. That is one of the 1st places my doctor checked when I was getting ...
Does anyone have spinal degeneration? If so, what do you do for it? I saw the ortho this morning for ruptured discs and was told I have spinal degeneration...
It depends on how old you are and what your status is in terms of disk disease. I have ruptured discs at C3-C7, T10-12,L1-2, L4-5, S1-2, and my coccyx is a...
HI all, I sent an earlier message but it didn't seem to go through so I'll try again. I have had intense episodes of palpitations, vomiting, diarrhea, shaking...
June, These can be classic symptoms of a mast cell attack. Please refer to our website, _www.tmsforacure.org_ (http://www.tmsforacure.org) , for further ...
I am a therapist for children with Autism. One of the children that I work with has systemic mastocytosis. I want to understand everything that I can about...
Hi all, I forgot to mention that I also have a high blood histamine level and that I have these reactions to histamine containing foods such as wine or...
Hi everyone, I don't have this diagnosis yet, but am on a search to determine what is wrong with me. The worst problem I have is vomiting attacks with shaking,...
Thanks very much Val. I have been at my wits end to determine what causes these attacks. I have been hesitant to talk to doctors in the past because one of...
June, I am a pediatric triage nurse, and did pediatric oncology for years! Where do you live? I think it might be helpful if you could see one of our mast ...
Hi, I would be happy to send you some journal articles about pediatric mastocytosis, or to speak to you on the phone about pediatric patients. I would need ...
I received this and wanted to get more input from others. Could you please share your experience with Lonnie or I. I can pass them along......each one of us...
