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OnlineTMSSupport · The Mastocytosis Society
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Activity within 7 days:

4 New Members - 101 New Messages - New Questions

Description

Online TMS support for patients and caregivers. The Mastocytosis Society (TMS) is a non-profit organization dedicated to helping patients, caregivers and medical personnel understand mast cell-related disorders and the impact they have on patient's lives. Mast cell-related disorders include systemic mastocytosis, urticaria pigmentosa, idiopathic anaphylaxis, mast cell activation disorder, diffuse cutaneous mastocytosis, and mastocytoma.

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Re: Bone marrow results
Thanks Faith and Brenda, I haven't heard about the D2 test yet. I am hesitant to get a biopsy from anyone except the masto experts. Take care, June
Posted - Wed Nov 11, 2009 12:25 pm
 singingdancer95128
singingdance...
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systemic masto - allergy shots
I have been to Mayo in Mn. and diagnosed with systemic mastocytosis. My triggers are quinine, bee/wasp stings and fire ants and have a severe anaphylaxis
Posted - Wed Nov 11, 2009 2:33 am
 shoultzdianne
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Re: Bone marrow results
Hi, I've read that TMEP is difficult to get positive skin biopsy results on also.  ... From: faith_berry_tree <faith_berry_tree@...> Subject:
Posted - Wed Nov 11, 2009 2:08 am
 brenda kitterman
bkitter03
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Re: Flushing around knees?
Faith, Although carcinoid syndrome and mastocytosis create almost identical symptoms, they are VERY DIFFERENT diseases and they will produce different products
Posted - Tue Nov 10, 2009 9:27 pm
 Lisa Morrison Thuler
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Re: Flushing around knees?
Eeek, sounds scary Val. Sorry you have such reactions. Mine are not at that level at all. Maybe it is general erythema. I think need to ask my doctor, or
Posted - Tue Nov 10, 2009 8:41 pm
 faith_berry_tree
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 115 237 373 271 222 158 219 327 485 154 181
2008 96 80 70 59 47 113 75 102 67 122 77 219
2007 16 17 3 34 17 20 55 40 71 45 45
2006 2 5 2 4
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