Online TMS support for patients and caregivers. The Mastocytosis Society (TMS) is a non-profit organization dedicated to helping patients, caregivers and medical personnel understand mast cell-related disorders and the impact they have on patient's lives. Mast cell-related disorders include systemic mastocytosis, urticaria pigmentosa, idiopathic anaphylaxis, mast cell activation disorder, diffuse cutaneous mastocytosis, and mastocytoma.
I have been to Mayo in Mn. and diagnosed with systemic mastocytosis. My triggers are quinine, bee/wasp stings and fire ants and have a severe anaphylaxis
Faith, Although carcinoid syndrome and mastocytosis create almost identical symptoms, they are VERY DIFFERENT diseases and they will produce different products
Eeek, sounds scary Val. Sorry you have such reactions. Mine are not at that level at all. Maybe it is general erythema. I think need to ask my doctor, or