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Activity within 7 days:

12 New Messages - New Questions

Description

Online TMS support for patients and caregivers. The Mastocytosis Society (TMS) is a non-profit organization dedicated to helping patients, caregivers and medical personnel understand mast cell-related disorders and the impact they have on patient's lives. Mast cell-related disorders include systemic mastocytosis, urticaria pigmentosa, idiopathic anaphylaxis, mast cell activation disorder, diffuse cutaneous mastocytosis, and mastocytoma.

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Fwd: [OnlineTMSSupport] Re: New to Mastocytosis and Uticaria Pigmen
I'm re-sending this message to the group because the version I received was cut off in the middle. --clv
Posted - Sat May 17, 2008 6:43 pm
 Candace Van Auken
candacevan
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Re: New to Mastocytosis and Uticaria Pigmentosa
Dear Julie and Carrie, I hope you are both aware of the e-mail I sent 'round about the new Yahoo group for the Mastocytosis Society (TMS) Pediatric Planning
Posted - Sat May 17, 2008 6:33 pm
 Candace Van Auken
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Re: New to Mastocytosis and Uticaria Pigmentosa
Hi Carrie I just became a member of this group. My son has UP he is now 2 1/2 he was diagnosed at 3 months. We have some wonderful Dr.s that we have worked
Posted - Sat May 17, 2008 5:54 pm
 Julie Rouillard
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Re: New to Mastocytosis and Uticaria Pigmentosa
Hi Maria We, too, are new to Mastocytosis and Uticaria Pigmentosa only we are learning about it in the context of our soon-to-be 6 month old son. It's hard to
Posted - Sat May 17, 2008 12:36 am
 patchoules
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Re: New to Mastocytosis and Uticaria Pigmentosa
Thank you Candice and Mark. I appreciate your information and input. I will check out the site you suggested Mark and continue to learn more about this
Posted - Fri May 16, 2008 6:03 pm
 staffordclann
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 96 80 70 59 23
2007 16 17 3 34 17 20 55 40 71 45 45
2006 2 5 2 4
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Related Link: http://www.tmsforacure.org
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