This mailing list is dedicated to those that are affected by Opsoclonus-Myoclonus Syndrome. It's to share imformation, treatment, and options. More importantly, it's an opportunity just to share with others that are affected by the rare disease of OMS. Through our experience we can help each other on the OMS rollercoaster.

CAUTIONS
This list does not provide medical advice or direction. The information provided is the personal experience of members or member families. All medical decisions regarding your own or your child's care should be carefully researched and discussed with your medical team.