Has your child been diagnosed with OI (Osteogenesis Imperfecta or Brittle Bone Disease)? This group is dedicated to the families who are pregnant or who have a newborn with a severe form of OI [Type II (2), Type III (3), Type IV (4)]. The "OIanswers" group welcomes family members who are seeking answers & comfort during the frightening time after initial diagnosis. Please know that there ARE survivors of the most severe forms of OI. There ARE doctors and hospitals and clinics that specialize in this disease. There is HOPE. Although not all infants with Osteogenesis Imperfecta survive after birth, there are many new options and interventions that can provide a good quality of life for your child. The members of this group have an abundance of experience & compassion. This group serves as a forum for candid discussion about severe forms of OI. Parents, relatives, &/or caregivers of children & adults with OI are encouraged to post questions and responses that are relevant to the care, education, & overall quality of life of their loved one with OI. This group is a forum for the sharing of ideas, & discussions of "cutting edge" topics related to OI. One of the goals of this group is to disseminate info to the community-at-large about the strides that have been made in the treatment of OI. Many members of this group are passionate about the steps you choose to take as you advocate for your child and his/her well-being. This being said, some discussions may take time to sort themselves out. Please be respectful of all members when you post.

*This forum is not affiliated in any way with OIF (OI Foundation); any hospitals or physicians; or any other groups. The views expressed in this forum are not intended to be taken as medical advice. Always consult your child's physician before modifying your child's current care plan. The views posted are those of the individuals posting the comment and are not intended to offend, counsel, or harm any individual.