What medication(s) cause a person to urinate or defacate on themselves. I have N and since Ihave been treated with elavil, provigial and cymbalta I have an...
nettie1234@...
Jan 2, 2007 4:37 pm
2351
Hi Nettie, Although I am not a doctor, just a patient like you, I suspect that one of our other chat members is referring to Xyram, a wonderful medication that...
-Hi Nettie, I answered you first through my e-mail then decided it was better to go directly through our Narcolepsy Chat site. How long have you been ...
I have been kegaling for a bout three weeks I will continue Doc says I need to take estrogen and progestrone but my female relatives all developed breast ...
nettie1234@...
Jan 2, 2007 8:09 pm
2354
Hi Lynda Thank you for being a friend and sharing your information Long ago about 5 years or so I went on Xyrem It really helped my narcolepsy but did not stop...
nettie1234@...
Jan 2, 2007 8:14 pm
2355
There's an inexpensive little book available used, through Amazon.com, "From Fatigued to Fantastic!" by Dr. Jacob Teitelbaum, used by my brother-in-law with...
Im just curious to has the Narcolepsy with Sleep Paralysis? You don't fall asleep randomly in the day, you just get very tired, and at night you get paralyzed...
I'm curious as to how much Xyrem costs depending on your medical insurance. I have BCBS and my insurance is billed $575.25/bottle of which $135 is out of my...
hi I have that problem I have horrible dreams I am practically comatose. I have my mom call becuz I cannot hear all 3 of the alarms and my husband dont have...
... I remember you most from your very touching e-mail in which you relayed your extreme disappointment in not being able to join the military because of...
Hi Nettie, Particularly given your family history of breast and ovarian cancer, I feel that you've made a wise decision not to take the hormones. I wouldn't...
... Although I am not taking Xyram I am aware of a program called "Xyram for Success" through which you may be able to get less expensive medication. Jazz...
You help me smile Hope your days are filled with some smiles as well I accept all the losses and hope someone figures out how to replace what we dont have...
nettie1234@...
Jan 3, 2007 4:31 am
2363
Hi Remgal You are wonderful for responding so quickly I agree It is not worth the added risk.Besides I have seen what is done to those beautiful mares just to...
nettie1234@...
Jan 3, 2007 4:55 am
2364
So, when were you told you had it? I've had it for a little over a year now. Before it started to kick in and ruin my life I used to be very athletic and could...
Hey, how did you fix being athletic? (I don't know if you are, are weren't or whatever, so don't take it personal, haha) But I've been tryin' to get back into...
I have hideous waking paralysis and hypnogogic hallucinations. I will try to pull myself out of dreaming and I'll dream that I've woken up and had breakfast...
Hi Nettie- Is there a patch instead of a pill to help with nacrolepsy? Deb nettie1234@... wrote: You help me smile Hope your days are filled with some...
you'll get used to it. Once you've trained your subconcious to understand that the paralysis and the dreas aren't real, they'll become less stressful. the...
rabjc@...
Jan 3, 2007 2:52 pm
2369
Does everyone fell like that get a good quality sleep at night? italian one <irish_yooper@...> wrote: Hi Nettie- Is there a patch instead of a pill to...
Dear Deb I am not aware of a patch that provides medication for symptoms of N It would be great I wear a patch for chronic pain when it is extreme. The patch...
nettie1234@...
Jan 3, 2007 5:42 pm
2372
I used to have lived through a number of those "hypnogogic" hallcinations which scared me in way similar to you descriptions of emotional aftershock I began to...
nettie1234@...
Jan 3, 2007 11:28 pm
2373
Some companies give medication to those in need or maybe can arrange a discount They do this for good relations with their clients and the rest of the world....
nettie1234@...
Jan 3, 2007 11:28 pm
2374
Hi Nettie, Thanks for your thoughtful message. You make me smile too . . .we'll all see this through together! remgal_ice :) ... From: nettie1234@... ...
Thanks, Nettie, Early hormone replacement therapy nearly killed my Mom in the early 1960s and the present day equivalent isn't much safer ---- to say nothing...
Hi Merinda, I developed N with C when I was 13. Like you, as a child, I could literally out run the wind. Now I cannot do anything fast at all but am good at...
Hi Solitare, I also experience waking confusion --- often driving to work and not remembering how I got there --- which, of course, means that I drove in my...
What is Provigil? Do you think I should check and see if I could be put on that to help with my wanting to be athletic again? Right now I am on an indoor...
Hi Merrinda, Provigil is the most recent central nervous system stiimulator that is not an amphetamine (like dexadrine) so it does not have the harmful effects...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
