Welcome, My name is Sarah and I am also new to this website. I was diagnosed with Narcolepsy with cataplexy 4years ago. I was 26. I suffer from all of the...
Sarah, Hello! I have been on here for a few weeks now, but haven't said anything for awhile. Guess you get to that point ocassionally where you are just too...
You need to take a weekly break (like Sundays) from ritalin, so it doesn't do you in. It raises blood pressure dangerously, and once you begin taking it, you...
Thankyou, Jan, for your kind and helpful words. Although I never had experienced any rise in blood pressure, because I could no longer endure the eternal...
Thanks, Bob! Your kind words of support mean a lot to me as I prepare to re-boot and, hopefully, return to the challenges of an academic life . .. . :) Looking...
Hi Janice, I looked forward to trying Provigil. When I finally did for a few months, the only effect it had on me was to make me sicker than a dog. I felt very...
Hi Bob, Thanks again for your kind supportive words. Although during my first week on Provigil I felt as though I was on the Tilt-a-whirl, (the fun house...
Hi Vickie, My name is Janice and I'm new too! After reading several postings from well intentioned members who greeted me into membership, I have discovered...
Hi Sarah, I, too, am new to this group and look forward to sharing with others llike you with whom we share narcolepsy with cataplexy. Although I do not take...
The 1st thing the doc tried me on was provigil. I reached tolerance fast. Then he tried me on ritalin. It made the N worse. So now I'm on adderall, and the...
... From: lindsayskye@... Sent: Saturday, December 02, 2006 18:39 PM ... Janice, I don't take any medication for the narcolepsy at this time. I take...
Hi Vickie, Thanks for your speedy reply. Have you tried sodium oxabate . .. better known as Zyrem? This miracle med is a liquid and is made by Jazz ...
... From: rtufts4health@... Sent: Saturday, December 02, 2006 22:48 PM ... Yes, I assume it is Witch Doctor. Only two of us in my rather large family have...
Hi Bob, Thanks for your reply. You certainly are brave and an inspiration in order to carry on with your many conditions! I hope this finds you feeling...
Amy, My cataplexy, I think I struggle with the most. I don't have it as severe, but do h ave to be carefull when driving. I can control it to a certain...
Congratulations Sarah! ... From: sarah lewis To: Narcolepsy-Chat@yahoogroups.com Sent: Sunday, December 03, 2006 22:33 PM Subject: Re: [Narcolepsy-Chat] Thanks...
Congratulations Sarah! Although I do not smoke your resolve has inspired me to take better care of my self: maintain better sleep and eating patterns!...
Did anybody else have a hard time finding a doctor willing to consider narcolepsy as a possibility? I couldn't get most doctors to even discuss it. And the...
... consider ... have to deal with a doc that didn't have a clue. she actually tried to belittle me by telling me that i was too young to be so tired all the ...
... consider ... have to deal with a doc that didn't have a clue. she actually tried to belittle me by telling me that i was too young to be so tired all the ...
And it took 7 years of medical school for them to become that professional. Just another fine example of why people should continue to put their their trust in...
... I have been MOST FORTUNATE in finding a first-rate neurologist who recognized the problem and had me tested right away . . . this was, regrettably, after...
-- I am so very sorry that you have had to experience such emotional pain in addition to all that you have had to endure with your narcolepsy with cataplexy...
I am 53. I was diagnosed 3 years ago with severe N&C. It first became a problem aroound age 10. So it took me 40 years of misery to get diagnosed. I may never...
... I'm 50 and waited over 30 years before diagnosis with N&C. Why do so many of us wait? Before I came to my wonderful neurologist I was terrified that I...
Hi Vickie . .. here I am again :) Although I have been on Provigil for only these past five months . . .I had been diagnosed with N &C ten years ago and put...
Actually, I didn't wait. I approached several doctors over the years with my symptoms. I have even been to neurologists. My doctor is a pulmonary specialist....
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