Hi, my name is Kish. I was diagnosed with narcolepsy approximately 4 yrs ago at the age of 31. I would like to talk to other narcoleptics for support. Please...
what's up everyone! my name is Ryan. The reason I joined this group is because I am looking to meet other people like me- with narcolepsy. Please contact me...
Dear All, this might be useful for you and your family I have already use it and prove that my family health is now very much improve,no more headache, no more...
Your friends invite you to join this Biker Rally today! Join this biker rally and check your friends' profile here: http://www.geocities.com/bikerrally1531...
Dear All, this might be useful for you and your family Technically engineered natural minerals have been structurally bonded in glass, at molecular level,...
Hi Erin and Vickie, I've been feeling so bad the last few days, I haven't been able to respond. Just wanted to send a quick thank you, though. Your support...
Erin, Thank you so much for writing and for your support and encouragement. I'll respond as soon as i can. Helpful info. I appreciate it! Cindy ... From:...
Cindy I am so sorry for you and you are in my prayers but hon keep your head up I now it must be hard but you are LOVED. They say evrything happens for a...
Hi Cindy! My heart goes out to you! Have any of the doctors tried a med holiday with you? This is when you are off all or most of your meds for 2-4 wks. I know...
Hi Vickie, Regarding the cause of pain, I have fibromyalgia, arthritis, myalgias, arthralgias, bursitis, tendonitis, pinched nerves, herniated disks in my...
Hi Jan, What dose are you on and have you experienced any side effects? Cindy ... From: Jan Saecker To: Narcolepsy-Chat@yahoogroups.com Sent: Thursday,...
oh my where is all your pain coming from? We all gotta stick together. Do u have children ? 6 different types of sleep disorders? How can that B? I am sorry I...
I'm a lot freer to do anything since being medicated with Xyrem. Specificially, it stops--almost entirely--cataplexy, which is embarrassing as well as...
Yes, Vickie, NORD pays for my Xyrem in full, thank God! I could never afford it! Never! My monthly prescription cost is $3,000! They are out of their...
Oops....forgot to respond, Vickie! Yes, I have insomnia...the three forms of insomnia, according to my doctor. Yes, I have 6 sleep disorders, all of which...
HI so you have insomnia. Well that is a bummer too. But with help from nord they pay for it right? I feel for you I hope they find something to help you Take...
Hi Vickie, I'm sorry to say it's not helping me to feel better at all, but don't let my experience discourage you. Lots of people are benefitting from it. I...
Hi Vickie, NORD (National Organization for Rare Disorders) has a financial assistance program that may pay for your Xyrem if you qualify. I receive Xyrem for...
Also you might ask the doctor about elavil ( this is a known drug which has helped with N and pain for a long time. It is an antidepressant with positive sleep...
nettie1234@...
Sep 4, 2006 5:53 pm
2246
Vic `I guess state laws for cover of Xyrem may vary depending on what state you live in. I am fairly certain If I wanted it I could get it from a doctor's ...
nettie1234@...
Sep 4, 2006 5:46 pm
2245
HI I am on Ritalin and adderal right now and soon the adderal will have me at 105 lbs and a heart rate of 122 at resting. I have been on just about everything....
Vic Do you have a doctor who will prescribe medicines which you can take in the early evening? Around 6 pm so you get enough sleep to be able to rise and ...
nettie1234@...
Sep 3, 2006 2:58 am
2243
Hi all I am in desprite need of someone to talk to. I am 28 yrs old and have 2 kids. I have been diagnosed w N for @ 5 yrs now and it still isnt under control...
Narcolepsy is a very challenging disease in regards to the issue of Social Security Disability. Being the sort of disease that is difficult to "put a finger...
hi all,I have started a blog http://outofstress.blogspot.com which explains about stress relief and weightloss.In this blog i suggested some yoga to reduce ...
Hi All... I just thought it would be nice to visit with somebody that understands the way I feel, or needs someone who understands how you may be feeling. I...
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help people those who are suffering...
Dear Pat... How long have you been out of work due to Narcolepsy? I could not start receiving disability until I was out for over 1 year due to Narcolepsy,...
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