Hi Jennifer! Here are some links for you that may help: http://www.emedicine.com/ped/topic1608.htm http://toddlerstoday.com/resources/articles/nightterrors.htm...
Hello &Happy October 1st to all: I have seen documenteries onanimals afflicted with Narcolepsy. I was wondering, is there anyone in the group that can tell me...
Hello, I'm sofen from Norway. 41 years old, the mother of three, aged 16 mths, 11 and 12 yrs. I have suffered from narcolepsy since the age of 16, but was not...
Welcome Sofen, You have your hands full raising three children even before dealing with this illness. I have no children and right now I have no job but my...
I take Lexapro for my cataplexy and it truly helps. Before the med, I couldn't get up and down my own steps. It has helped me and given me my legs back. Heat,...
I, too, have noticed my N gets worse during my cycle and I sleep even more. Maybe I'll ask about the patch. Thanks for the tip! Mary ... From: Erin To:...
Dear Kelly, Is it true some doctors bel;ieve thety breathing diorders & Narcolepsy go hand in hand? I had a local sleep clinic wanting me to see one &* I...
Help! I have recently been diagnosed with narcolepsy, My Dr. wants me to try Xyrem. after reading differnt articals on the web, I have to say I am terrified to...
Hi esrun52: I too have heard that Xyrem has a lot of drawbacks. I don't use it personally. I have had great results with Ritilan. There was a point where I...
In a message dated 10/5/2005 7:03:28 A.M. Central America Standard T, zachandjoshspapa@... writes: If you are that scared of something you may create a...
nettie1234@...
Oct 5, 2005 2:50 pm
2124
hi I too was worried about allowing my daughter to use it. But it has ben great she is sleeping much better and has not shown any signs of side effects. she is...
Hi Erin, That is interesting abt the hormone patch. I am going through the sleep studies now so formally I have not been diagnosed. Problem now is that I...
Hi Erin, That is interesting abt the hormone patch. I am going through the sleep studies now so formally I have not been diagnosed. Problem now is that I...
Renee, I would be interested in seeing that letter. Maybe you can post it in the files section that way new people and all can have access to it. Thanks. Luz ...
Strattera has helped me in the short run of trying it I know it is not addictive. I have been off it and on it. I definitely feel better when I take it It...
nettie1234@...
Oct 6, 2005 3:16 pm
2129
Thank You Robert, I think I need to do alot more reading on this before I decide if it's something I want to try, So far it sounds like a pretty drastic...
Greetings Renee, A Pulmonologist? As in pulmonary? As in the heart? ... <crimson_child66@y...> ... I have been diagnosed as Narcoleptic for several years now...
Hi Gail, I've personally had a real turn-around with Xyrem. Its helped to quell my cataplexy and allowed me to experience a good night's sleep. I tend toward...
Hi Gail: You're welcome anytime you need to talk drop a line. I see that deb-chang wrote you some good information. She is a pretty smart woman and pretty up...
I am new to this group...and am hoping it will work out good because i have no form of support for my condition. My doctor diagnosed me with narcolepsy two...
Will I have decided that the xyrem was a bit to "different" for me so I have spoke to my DR. and am going to give provigil a try, just starting on 50mg, Seeing...
Hello Krystal. A new support site for families of PWN's (persons with narcolepsy) is: http://health.groups.yahoo.com/group/iloveapwn/ This might help your...
Hi everyone. I am glad to meet you all. It might be nice to talk to someone about what I am going through. I have nopt been diagnosed but this disorder is the...
Hi New Guy, Glad to meet you! I have yet to be diagnosed as well, but hopefully this weekend i can have sleep test done to just prove to those people who don't...
Hi Krystal Reading your post brought back so many exact reactions that happened to me as I went through my teens until recently after surviving an auto...
Hi Luz, I'm not sure what they would do if your on BC. Maybe look at different types of BC Pills, some don't have as much estrogen as others. Make sure you...
Okay so....although i have been apart of this group for maybe a month now...I didn't get my final diagnosis until yesterday. I was almost certain and so was my...
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