In the last 10 months I have had two surgeries requiring me to be on percoset. The only reason it kept me remotely awake is because it makes me visciously...
What It Feels Like to Have Narcolepsy by Jimmy Kimmel, 35, host of Jimmy Kimmel Live | Aug 01 '03 Esquire ... Truth be told, I'd rather have narcolepsy than...
I have to ask you a question, Cyber. When you were on Pecocet, did you eat before you took the meds? Also, have you been on any codine products in the past? I...
hmmm... not sure I would want him representing narcolepsy. As it being great and his having a public career. That's like using Mr. Bean in a Mad MAd.......
I think an average person should represent our disorder. Seems to me that no one in the public eye really wants to admit they share this like any normal not in...
From: Renee Daugherty Sent: Sunday, September 04, 2005 8:20 AM ... Jimmy Kimmell has already been mentioned; but I don't think he likes people to be reminded...
Help! I am looking for a doctor familiar with klein levin syndrome. I also have well documented narcolepsy, sleep apnea, and severe periodic limb movement...
Hope these helps (sounds like a lot of what I went through/go through, but I just attribute mine to narcolepsy.. it's easier :) YALE NEW HAVEN HEALTH ...
Hello everyone, I have been fighting to stay awake for months now and I finally went to get a referral from my doc to see a sleep specialist. They couldn't...
Thanks so much although most off these resources I have contacted. I did find a great neurologist this week in middletown, he actually answered the phone when...
Thanks so much although most off these resources I have contacted. I did find a great neurologist this week in middletown, he actually answered the phone when...
umm- no idea if I do since I've never pursued it. At the moment, I don't pursue some of the other issues apparent in Klein Levin simply because my plate is...
Just joined and thought I would say hello while I'm still awake! lol I was diagnosed with both types of apnea and have slept on an APAP since November. It...
Just saying hello :) No answer for your question, I am not a doc, just an PWN :P But, I did know a plumber once that I worked closely with who had apnea. After...
Sorry it has taken me a few days Renee. These have been a long few days :) ... From: Renee Daugherty To: Narcolepsy-Chat@yahoogroups.com Sent: Friday,...
I wish welcome to A club you never wanted to join. Most people do not understand narcolepsy but the neurologists, insurance companies and others who have the...
nettie1234@...
Sep 12, 2005 6:57 pm
2086
Orphan Medical (oohhh.. I wince to say that accursed name.. ahem.. did I say that outloud?) is the company that manufactures xyrem (ghb). If you need, you can...
I know that Natasha Kinski (model and actress) has narcolepsy as does olympic diver Tracy Bonner and U.S. olympic team runner Kelli White. Also, professional...
hello, my name is Ravyn and I am 42 and married--no children, 3 cats, 1 dog and various 'step-cats' I feed and turn my office into a nursery for when they show...
Rayan: You have been through a lot of upset and social discrimination because of neurological disorder. You did not do anything to bring this on It is just...
nettie1234@...
Sep 14, 2005 10:31 pm
2090
hello Nettie, with porphyria I can't take any of those other drugs. porphyria is the 'vampire' disease--I can't even be in the sunlight (try to stay awake when...
I understand about the light. Porphyria comes in varying degrees >< "If you can't stand the heat, then get out of my kitchen?" is that correct? -cyber ... (try...
http://www.dexedrine.net/dexedrine_side_effects.html A very good site for dealing with info about desoxyn. There is another: aderrall xr. It is an 8-hour...
yes on the light, varying degrees of porph and the quote! my husband's nanna had a plaque in her kitchen that had a sexy looking witchy woman stirring a...
It's a good saying. Very classical. I hope things are going well for you. You sounded very worried in your posts. Hopefully, something has evened itself out. ...
thank you cyber. it has been a tough week--my husband was laid off due to a company sell out--it was unexpected. and with all the 'normal' narcoleptic stuff we...
I don't know about 'natural' remedies. One reason I gave you that internet site about the dry mouth was that it does discuss biotene. For the sake of time, I...
In a message dated 9/17/2005 2:27:11 AM Eastern Daylight Time, ... Dry mouth? Have you tried drinking more water, less coffee, tea, soft drinks and taking less...
Hello All: Well miracles do happen; although they sometimes comes wrapped in disaster! I had another 6 day spell and then what appeared to be a stroke or...
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