Gil, I can so much identify with your loss. I had to quit my counseling job due to N. I went to college for 7 years and completed a 2 year internship to obtain...
I think it is different for everyone. Mine started with the face and progressed to the neck, then knee buckling, then full collapse. It varied in time from a...
Hi everyone! I think this might be my first post. Anyway, about careers...I was in the Navy when I developed narcolepsy (or at least it started being ...
know exactly what you are going through was in the air force and lost my career and have been at school for the last 3 years after my casual employment was...
Shelley, is Narcolepsy your ONLY downfall? What does your doctor say? I know for me what helped was when I went in for an interview down in AL, USA the...
Hello, everyone! Some of you know me and all of this but just in case you don't know/remember I am posting ME - LIVE AND IN PERSON to help us all know me...
Tammy N <tammy_n@...> wrote: turn on your speakers, please! Subject: SEVEN WONDERS OF THE WORLD (THINK ABOUT IT) A group of students were asked to list...
Thank you, Tammy. THE MAP > > A father wanted to read a magazine but was being bothered by his > little girl, Shelby. > > She wanted to know what the United...
RENAE GILPIN <argilpin@...> wrote:Date: Sat, 22 Jan 2005 19:41:53 -0800 (PST) From: RENAE GILPIN Subject: Fwd: Fw: we have wrong president To: Sheila...
I think you are toooooo upbeat. I've got to get some of whatever you are on!...
rabjc@...
Jan 24, 2005 9:45 pm
1880
Hey fellow Ner's I am on Provigil but hope that xyrem will work for me I know it helps my wakefullness but it shots my memory full of holes and it wasn't so...
nettie1234@...
Jan 24, 2005 10:57 pm
1881
Xyrem was a miricle cure for my brother. I am on provigil and not so sure about it. Some days it helps me be awake and some days it doens't. But then my...
I got your message but it went to my wife's favorite e-mail, thanks for
the info. My life is also a cycle awake, sleep, awake,sleep LOL Maybe I will be on line...
Danita I am happy for your brother but love, have you tried xyrem yet? The law seems to be losening to help people like us ( with N) Jeanette ( Nettie) ...
nettie1234@...
Jan 26, 2005 6:14 pm
1884
With a group name of chat, I would think that someone other than me would be in the "chat" area. Any one on-line want to chat? Or maybe I am missing where is...
This was not my original e-mail, I'm just forwarding it because I think it has value. I think that no matter how we, as employees view the BNSF (positively or...
Hi, Yeah, my N seems to cycle no matter what drug, what amount, or how much I sleep or practice "sleep hygiene". It just doesn't seem to matter, it is always...
Yes, Amber I have! Back when we were going through the entire drug chain because the provigil decided to take a break on whether it was going to work or not....
Amber, I have also.I have been occasionally adding ritilin to the provigil and that has helped some. Provigil has been presented as a miricle drug for EDS by...
I too wonder how long our bodies can take all these meds? I feel like such a lab rat for these Docs in my area. Sometimes I'm not sure which is worse the...
Me too, having gone from max-out to max-out on just about everything "they" wanted to use for my symptoms. There were many a day when I would have much rather...
Yes, Jean, you can blame narcolepsy!! I always happy to lay the blame on something else...it makes more sense than saying I started having memory problems in...
Thanks Amber. I don't know if this is good or bad but my memory and sleeping are the only things in my life that I CAN blame N for. All of the rest of me I...
Hi all! First to Jean...yep, you are right. I gotta take all my character defects upon myself, too. I used to take the memory problem and a few other things...
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