Hi Terri, Ya, I have some of the same apprehensions about taking GHB even the pharmaceutical version of it. But my apprehensions are related to unknown...
Deb and other N's it is very worthwhile to find out about long term side effects of Yyrem call the people at Orphan Medical and ask to speak to a technical...
nettie1234@...
Oct 4, 2004 9:52 pm
1823
Xyrem only helps you sleep well. No other side effects have been found as far as my doctors and I have discovered. It does nothing to cure narcolepsy, except...
I have bad credit, I am self employed and I was able to re-finance at a really low rate. I am saving hundreds a month Just fill out this simple FREE form ...
Howdy Gang, Started the Xyrem on Friday night. So far, its been, uhm, fine...? I woke up really refreshed Saturday morning - but it could be psychosematic....
Hello Again, Just wanted to let ya'll know that I've finally made some headway on starting a support group in my area [Ann Arbor, Michigan - and I'm hoping...
Debt consolidation is important. You can minimize bills and live happier If you are in the hole we can get you out. Just give us a try http://grealus.com/adghu...
Hello, My name is Kevin and I manage a support group for people with narcolepsy on MSN. There are currently about 275 people in the group. I am inviting...
Hi Deb, I tried Xyrem years ago as a part of a clinical trial in Cincinati I think it is a great drug for those of us with N. You have to find out if other...
nettie1234@...
Oct 21, 2004 3:55 pm
1830
Lenders are standing by to assist you in your home refinancing process. All it takes is 30 seconds to take advantage of the lowest interest rates ever. Do not...
I have found the AB to be helpful at times: I can read the same book over as if I never read it before ( it saves money - lol except for the time I bought the...
Carla, Wecome and thanks for sharing. I have found this group very helpful. I wondered what you meant by 'waking nightmares'? I have scary visions etc during...
I have been unable to work for 1 1/2 years now. As I look back I was having some pretty serious symptoms for a couple of years before that, but I thought I was...
While I am "officially" diagnosed with Apnea, I still come here to share my ideas because I feel strongly that I have either Narcolepsy itself, or some other...
I know how frustrating it is to not have an accurate diagnosis. My MSLT sleep tests (I took 3 sets) diagnosed apena only. I know I have narcolepsy. Anyway...
To all people and especially those with N Dont forget to vote today!! It is very important that we ( those with a disability) are represented. I will not tell...
nettie1234@...
Nov 2, 2004 4:52 pm
1839
Well I had a couple of spells at the voting booth :3( and am doing stupid stuff with the oven again. I am sick of this stuff. Danita Asleep on my feet in...
Hello Everyone, My name is Rochelle & I have a 16 year old son who's been sick since August & has just recently had a sleep study. We are suppose to meet with...
Hi Rochelle, We figured out that my 11 yo daughter has narcolepsy last spring - after 35 days absent from school last year, hospitalization, & being written...
Hi Sue, Thank you so much for the reassurance. I'm sure you know how much that means! From the archives & in general, I am seeing that this is an extremely...
Meet others just like you !! Chat, make friends, ask questions and get advice. Get real help and support from people near you coping with Narcolepsy too....
Greetings, I've been on the Xyrem now for a bit. I actually woke up last night while it was still strongly in my system to use the loo. That was trippy. I...
Greetings, I've not had a lot of time to get the ball rolling on this, but did send out an email last night to a contact at the Sleep Disorders Clinic [SDC]...
thanks deb keep on doing good for all of us with N...
nettie1234@...
Nov 9, 2004 6:56 pm
1848
Deb I am happy for you It sounds like Xyrem has been good for you. I have a quick question If you do not take drugs to sleep Can you sleep at night like the...
nettie1234@...
Nov 9, 2004 7:00 pm
1849
Nettie , do you live in MI? If so whereare you at? I am in Royal Oak. Terri ... ===== Life is short we must live it to the fullest, not sweat over the...
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