The following Narcolepsy-Chat poll is now closed. Here are the final results: POLL QUESTION: Do you prefer to take medications with the range of side effects,...
Narcolepsy-Chat@yahoo...
May 2, 2004 8:07 am
1688
... will be very helpful! I wish I could've participated... Has anyone ever been on Hydroxyzine Pamoate?...My nurse practitioner prescribed it to me, and it...
Hello all,....I don't post much but wanted to put in some info here...the problem with injecting the orexin is that the molecule itself is too large to...
Does anyone know something about a condition called "idiopathic hypersomnia"? I was just diagnosed with it, and I understand "idiopathic" means "unknown". Does...
I have it also. It means that they have and supposely they have run the tests on you to rule out other problems that can cause it and they do not know what...
I was diagnosed with Idiopathic Hypersomnia in July 1995 (it actually started late 1994) and I was put on disability thru a private insurance company. (I lost...
well I haven't been able to do that since my doctor has to approve it and she thinks as well as I think that I need to work not sleep so I don't qualify for...
Does anyone know if they are running any tests on orexin using humans instead of mice yet? Id be a willing guniea pig, and I wondered if anyone knew about the...
I read something about there being a gene involved with narcolepsy, I think my grandmas sister had it, I was wondering, My brother has 2 young children, One is...
Hello This company really helped me out. I almost lost my home. I am self employed and I was able to refinance. The best interest rates are available, for a...
What wonderful, helpful advice. Thank you so much for sharing. You have been very helpful to me. Danita in Illinois - Doin the ritilin thing ... From:...
They may or may not have the gene. I was lucky enough to inherit N from my mom. My cousinse on my mom's side don't show any sighns that I know of. But I know...
I was diagnosed with Narcolepsy in 1999 and then the neuro I was sent to redid the sleep tests and changed it to IH in Dec 2001. I have been on ritalin,...
I had the same problem about family understanding. Everyone thinks this is not hereditary, but it is. This does not mean every person in your family or ...
I was really far into debt. Like Most I was in Financial dispair. I could not seem to get ahead no matter how hard I tried. Untill I found this place. ...
After almost 6 years of trying to find out what is wrong with me, Stanford came up with IH after ruling every thing else out and so I am back to my regular...
I am struggling with EDS, I don't understand the feelings I get. I feel like my brain keeps falling asleep and the rest of me is wake with the Ritalin the...
Sam , Until recently I was having the exact same problem. I have had N for about 3 years now and been on adderall for over 2.5. I felt like i was lossing my...
Sounds like maybe there is hope then for me. I thought am I thinking to much about it, why am I feeling like this? It was just making me nuts! Lol So it is...
I thought my whole lifethat i had 20 things wrong with me.. now i still may..lol But, It seems alot of them all share the same name. My girlfriend [a super...
Hi all, relatively new to this group, and haven't had much time to check messages lately. I don't know if this is the Narcolepsy, or the mess I'm in with my...
You know, maybe this means nothing, but before I wass DX with N, my brother in law was DX with idiopathic hypersomnia and was put on provigil, 200mg. it helped...
I feel just as you do. I recently wrote an email about feeling just as you are. I feel alone in this and it's good to know that other feels the same and I'm...
I've felt (known) for years that I have narcolepsy. As a little kid I would fall asleep soon after I got in the car to take a ride. As a teen I would go...
Get a complete copy of your sleep study so you can look at it. It will tell you how many episodes of apnea you have per hour plus additional info which is not...
If I were you I would find another doctor if possiable. Make sure that you get your records and sleep tests from your sleep test so you can take it to the new...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
