I don't know if it is cataplexy or not but it happens to me a lot also. Does anyone have any ideas or experienced it also? Danita ... From: Laura Northrop To:...
Re:[Can this be cataplexy if it isn't triggered by emotion, andlasts 24 hours straight??] When I first developed narcolepsy I was 7 years old, i suffered from...
... also. Does anyone have any ideas or experienced it also? Danita ... author ... narcolepsy@l... ... Info) Hi Laura, Myname is Levi, and Im 15 years old and...
hi everyone, i have been having major seizures lately. was in the hospital over the weekend. they said its not epilepsy. i do have narcolepsy w/cataplexy and...
Hello all, just found the group, and am glad its here, have been nervous ever since my last meeting with my pulminologist, am haveing my second sleep study...
My husband is on Modafinil and it keeps him fairly alert most of the day until about 4pm when he starts to become drowsy. His consultant put him on ...
Kat~ I went thru a period where they thought I was having seizures and thought maybe it was epelepsy. They finally couldn't figure it out, but my mom who has N...
Hello. I'm new to this whole sleep disorder thing. I'm a 18 year old female. I am a senior in high school still. This has been the scariest thing in my...
hello every one , my name is john and I have N.I was diagnosed in 1995 and continued to try to work for several years afterwards with jobs coming and going.My...
Drowsynarco@...
Apr 14, 2004 2:12 pm
1656
I'm from Champaign, Illinois and just want to know If there are any other Narcoleptics in my area here. I would like to get together if so and compare notes on...
Gary, i can totally relate...just off adderall myself and trying provigil for the second time. it quit provigil last time cuz it gave me headaches. since oct....
John, i'm in the same boat. have you received social security yet? it took me 2 1/2yrs. but i finally won, with an atty. i know how you feel. they are taking...
Crystal, it dosen't get any easier. some days are harder then others. I've tried many different drugs, most just haven't worked. this is common until you find...
Hi. Does anyone have any hints on diet for N. My husband's cataplexy now seems fairly well controlled on clomipramine, but he can't have any alcohol. He's not...
Hi, First I wanted to say I have not be diagnosed yet. I saw the sleep doctor for the first time yesterday. I will have a sleep and nap study next week. I...
i had my sleep study done wed night, that was a debacle, i had to have a sleep study done, while in the midst of a caffine withdrawl headache. the sleep tech...
there is a great group at alt.support.sleep-disorder that is a great help for people who have sleep apnea. ... From: chad To: Narcolepsy-Chat@yahoogroups.com ...
Curious. those of you that have tied GHB what does it do to your body? Do you feel sick at first when taking it? I'm thinking of trying it.. KW~ There are 2...
Krista Willhelm
Infinategoddess@...
Apr 18, 2004 7:44 pm
1665
... your reply, am still a little leary about the results of my test, but as i said before, i have to wait till the 30th. Read a letter from a women on a...
Are there any Narcoleptics/or others w/ sleep disorders in the Chamapign - Urbana,Il area interested in starting some kind of support group here. Or anyone...
Depression? Sometimes I wander. I know that my moods are completely flip-flop ... a LOT of the time. I found my patience has run to a very minimum. I flip...
Chrystal, wow, you are going thru alot right now, full plate, i'd say. i know what ya mean about the moods. they can last awhile and then just go away. i get...
One last thing, get a complete copy of your test results which you are entitled to. If it shows you have sleep apnea then you have it and it needs to be...
Did anyone read about the research done by Yanagisawa??? Apparently, he has successfully introduced orexin into the brains of mice and the results are good....
Enter your vote today! A new poll has been created for the Narcolepsy-Chat group: Do you prefer to take medications with the range of side effects, or a more ...
Narcolepsy-Chat@yahoo...
Apr 23, 2004 12:11 pm
1672
Hey everyone, I'm working on wrapping up my narcolepsy paper, and will disperse copies, if desired, once I have turned it in and received a grade from my...
If you look to the left, in the "polls" link, there is a new poll. It's concluding on the first of may. The poll is basically asking what therapy preference...
hi my names bec and i am 27 years old and was diagnosed with narcolepsy about 18 mths ago the hardest thing for me is being able to find people to talk to...
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