Unlike most other states, until a month ago, no narcoleptic could receive Xyrem unless they had already been part of a study. That counted me out. But my...
Narcolepsy usually has a variety of symptoms, and tired is not the same as sleepy. Some of us see dreams, like a transparent movie, while we're awake: ...
... Ah - ok - Yup.. my fiancee has Narcolepsy.. (has bad dreams etc..) although sghe says her doctors dont know if it is narcolepsy - Doesnt meet the ...
Oh boy Gordon have you asked the million dollar question actually! This is only my version of N...the way that I "sort" N and how I am able to better...
Hi, its bed-time (2.30 a.m. ;-) - i wasnt tired 20 mins ago - I am now ;) - Was finishing off emails & such.. - website design etc..) Anyway, my fiancee has...
Hello Amber and all, Yes, I do received disability due to my N/C. I know of many others also. If you (or anyone else here) would like any help or have any...
I do and so does my mother. I also know a woman who does. I'd rather work but sometimes you have to do what it takes to find your place in life. All I know is...
Amber I dont know who they are but there are people who receive disability for narcolepsy. If it disables you to the point where you can not work or do a job...
nettie1234@...
Apr 4, 2003 12:36 am
1085
This should answer all your questions about disability. http://www.ssa.gov/disability/ It is VERY hard to get, and I agree with Nettie, DO NOT GIVE UP, keep ...
Thanks, I have been to that site; I think that's where I printed the form to be filled out from. I'm at the beginning stages (paperwork), but I see my Dr....
For those of you wondering about disability. I'm the owner of the group and I live on disability. I'm not saying it's a easy way out but if you have tried your...
Regarding Disability: Does anyone have any recommendations as far as representation/lawyer? I'm in Chicago. I already tried the number on this website...
I'm sure everyone will agree with that statement! Heh heh. But hello anyway to you all. I've had one consultation so far with my sleep doc and been dignosed ...
Based on your mention of being on Provigil and having a union rep, I am assuming you are located in the United States. Two things you need to do in the work...
Let them fire you! You can get disability through the work place if it happens this way. Or Disability period. You wont be out of no income but it does not...
Hello all again Thank you to those who replied, thank you so much!! I should have mentioned that I live in Britain in a country called the Isle of Man. It's...
I just needed to ask one more thing really... Is anyone else going crazy? I mean - all the hallucinations and things for years - I didn't know which reality I...
Enter your vote today! A new poll has been created for the Narcolepsy-Chat group: Do you think that when Narcolepsy gets more into the media that more ...
Narcolepsy-Chat@yahoo...
Apr 12, 2003 2:52 pm
1095
Enter your vote today! A new poll has been created for the Narcolepsy-Chat group: Do you think that a 'level' of narcolepsy should be laid out? ie - to show...
Narcolepsy-Chat@yahoo...
Apr 12, 2003 2:56 pm
1096
Hello, I seem to be involved in a viscious circle of fibromyalgia, narcolepsy,depression, anxiety, fatigue, and stress....each feeds the other. Am I going...
Dear Donpat, I can not say if you are crazy or not Ask yourself if it would help you to her some expert tell ou that you are crazy I can say for sure allof...
nettie1234@...
Apr 13, 2003 12:30 am
1098
Hello Nettie, There was a very tough time in my life when I was not being properly medicated...over medicated with interactions...What a nightmare!!!! I am ...
Sometimes when I lay there unable to move at night hearing people breaking into my house to come and rob me or kill me (even though my house is very secure and...
Hi donpat Provigil didn't work for me - though I'm unsure if my stinking cold had something to do with it not working. No doubt after more testing and things...
Hey Lupi, I couldn't help but interject, I was diagnosed with Fibromyalgia when I was 16 1/2, and Narcolepsy when I was 18. I'm 19, almost 20 now. So I know...
Hello Lupineita, Gee!!! Mondays are tough for me. The weekends to try to get some relaxation , catch-up, and get some quality time all seem to be far too...
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