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Thanks, Bob!
Your kind words of support mean a lot to me as I prepare to re-boot and, hopefully, return to the challenges of an academic life . .. . :)
Looking to hear from you soon . . . time permitting . . .
Janice
----- Original Message -----
From: Bob
Date: Friday, December 1, 2006 1:17 am
Subject: Re: [Narcolepsy-Chat] How wonderful Narcolepsy-chat exists!
To: Narcolepsy-Chat@yahoogroups.com
> Sounds like you have a pretty good handle on things. Congratulations!
>
> Bob
>
>
> ----- Original Message -----
> From: "remgal_ice"
> To:
> Sent: Thursday, November 30, 2006 20:11 PM
> Subject: [Narcolepsy-Chat] How wonderful Narcolepsy-chat exists!
>
>
> > Greetings to everyone at Narcolepsy-Chat!
> > This is my very first posting and I am delighted that you
> > exist! I have attempted to post in past but, due to my persistent
> > technological difficulties, I did not realize (until just now)
> that I
> > had not yet become a member.
> > This has been an ongoing theme in my life since I first
> > manifested the classic symptoms of narcolepsy with cataplexy
> at age
> > 13 which began with my sleep attacks which I dreaded almost as much
> > as cataplexy and certainly more than migraines. (I somehow believe
> > that they are all inter-related . . .) At age 13 I had seen
> a film
> > about an Apollo space mission disaster that failed because the
> > astronaut in charge was unable to stay awake due to persistant sleep
> > attacks . . .at age 28 I managed to persuade my husband to divert
> > out honeymoon to include the Johnson's Space Center in Houston so
> > that I might then investigate this disaster with which I had long
> > identified . . . I soon learned that this disaster never, in fact,
> > occured. I had dreamed it in reasponse to my growing concern
> for the
> > sleep attacks that I had begun to experience as a child in the 8th
> > grade . . . my in-laws took perverse interest and even
> pleasure in my
> > cataplexy which broke my heart. Because my husband was
> seriously ill
> > with complications from the Vietnam War and later passed. My
> catapexy> attacks were frequently triggered and my Dr., then a
> psycho-
> > endocrinologist, placed me on low doses of Imipramine which
> curbed my
> > cataplexy some what (I still must be guarded in order to avoid
> > potential triggers . . .people consistently describe me as "Ms.
> > Spock" like the character on Star Trek who doesn't show human
> > emotions) and also the hypnogogic hallucinations which my younger
> > sister dispised as my screams would inevitably wake her up at all
> > hours of the night. Although I been placed on Ritalin for the sleep
> > attacks I became extremely thin and resembled the then popular Karen
> > Carpenter. Yet, I would do anything for blessed wakefulness!
> > On the day after my 33rd birthday I actually fell asleep
> > on an ice skating rink! I fell directly on my head --- fortunately
> > without experiencing a fractured skull or blood clot ---
> although I
> > felt no pain, I did have profound hypnogogic hallucinations,
> many of
> > which featured male nurses dressed in purple scrubs who
> attempted to
> > serve to me multi-colored pills on silver coctail trays! I was
> > certainly glad to be discharged the next day although I wish
> that my
> > neurological state had been evaluated in greater depth . . .
> > I have always expereinced difficulty in discerning dreams
> > from actual wakefulness -- waking dreams -- this happens also, when
> > especially tired (I have two part time jobs) and attempt to serve
> > customers long after our store has closed, my pharmacist boss,
> > fortunately, understands . . . I nearly always cannot remember
> > whether I have actually experienced a phenomenon or whether I have
> > dreamed it (this is very annoying as well as confusing and
> > embarrassing).
> > I bless the day when my wonderful neurologist put me on
> > Provigil as it all but completely knocks out my sleep attacks giving
> > me more confidence in myself than ever. In addition to
> working as a
> > chashier in the pharmaceutical section of a local drug store,
> I also
> > work as a master tutor in a nearby university where I help students
> > with anatomy and physiology, neuroscience, psychopharmacology and
> > advanced pathophysiology. Prior to Provigil I had to stand up for
> > the entire day and walk, if necessary, in order to remain
> > wakeful . . .sometimes even resorting to exercise! I HATED
> THAT SO
> > MUCH! I HATED MY SLEEP ATTACKS MORE THAN ANYTHING! My boss would
> > frequently need to bang on the door to the bathroom stall and
> > yell: "Janice, wake up! Your next study group is here!!" I
> wanted to
> > die for being caught sleeping on the job --- again! Neverhteless,
> > my kind boss stood by me and kept me in her employ for ten
> > years . . . and then when I told her that she would never
> again catch
> > me sleeping on the job because I am now on Provigil, my boss,
> who is
> > also a biochemist, threw her arms around me because, even before
> > sharing this with her, she knew that I had narcolepsy! What a
> > wonderful boss!
> > I also have been in graduate school . . for two years I
> > studies molecular anthropology and earned a Master's degree from
> > University of Alaska Fairbanks. I remained in Fairbanks for an
> > additional three years in oder to teach as an adjunct at Eielson
> > Airforce base and also at Ft. Wainwright. I, too, had longed to
> > join the military but my narcoleptic/cataplexctic history
> > disqualified me from both the navy and the marines. At least
> I was
> > able to serve as a professor . . . .
> > When I attemted doctoral studies at SUNY Albany I met with
> > disaster. I fell asleep during a graduate osteology class and the
> > professor branded me "brain damaged". My supervisor, under whose
> > direction I would have written my dissertation, dumped me and
> I left
> > for home, with my beloved cat, joining my mother in her senior
> > citizen's condo. It has been two years since then and the loving
> > support of my neurologist and two bosses have sustained me . .
> . I am
> > seriously considering returning to doctoral studies . . .this time
> > for chronobiology and the study of a possible relationship between
> > narcolopsy with cataplexy and the mood disorders (especially bipolar
> > I).
> > I very much look forward to chatting with anyone who wishes
> > to contact me . . .sorry for my rambling!
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> > --
> > No virus found in this incoming message.
> > Checked by AVG Free Edition.
> > Version: 7.1.409 / Virus Database: 268.15.2/559 - Release
> Date: 11/30/2006
> >
> >
>
>
----- Original Message -----
From: Bob
Date: Friday, December 1, 2006 1:17 am
Subject: Re: [Narcolepsy-Chat] How wonderful Narcolepsy-chat exists!
To: Narcolepsy-Chat@yahoogroups.com
> Sounds like you have a pretty good handle on things. Congratulations!
>
> Bob
>
>
> ----- Original Message -----
> From: "remgal_ice"
> To:
> Sent: Thursday, November 30, 2006 20:11 PM
> Subject: [Narcolepsy-Chat] How wonderful Narcolepsy-chat exists!
>
>
> > Greetings to everyone at Narcolepsy-Chat!
> > This is my very first posting and I am delighted that you
> > exist! I have attempted to post in past but, due to my persistent
> > technological difficulties, I did not realize (until just now)
> that I
> > had not yet become a member.
> > This has been an ongoing theme in my life since I first
> > manifested the classic symptoms of narcolepsy with cataplexy
> at age
> > 13 which began with my sleep attacks which I dreaded almost as much
> > as cataplexy and certainly more than migraines. (I somehow believe
> > that they are all inter-related . . .) At age 13 I had seen
> a film
> > about an Apollo space mission disaster that failed because the
> > astronaut in charge was unable to stay awake due to persistant sleep
> > attacks . . .at age 28 I managed to persuade my husband to divert
> > out honeymoon to include the Johnson's Space Center in Houston so
> > that I might then investigate this disaster with which I had long
> > identified . . . I soon learned that this disaster never, in fact,
> > occured. I had dreamed it in reasponse to my growing concern
> for the
> > sleep attacks that I had begun to experience as a child in the 8th
> > grade . . . my in-laws took perverse interest and even
> pleasure in my
> > cataplexy which broke my heart. Because my husband was
> seriously ill
> > with complications from the Vietnam War and later passed. My
> catapexy> attacks were frequently triggered and my Dr., then a
> psycho-
> > endocrinologist, placed me on low doses of Imipramine which
> curbed my
> > cataplexy some what (I still must be guarded in order to avoid
> > potential triggers . . .people consistently describe me as "Ms.
> > Spock" like the character on Star Trek who doesn't show human
> > emotions) and also the hypnogogic hallucinations which my younger
> > sister dispised as my screams would inevitably wake her up at all
> > hours of the night. Although I been placed on Ritalin for the sleep
> > attacks I became extremely thin and resembled the then popular Karen
> > Carpenter. Yet, I would do anything for blessed wakefulness!
> > On the day after my 33rd birthday I actually fell asleep
> > on an ice skating rink! I fell directly on my head --- fortunately
> > without experiencing a fractured skull or blood clot ---
> although I
> > felt no pain, I did have profound hypnogogic hallucinations,
> many of
> > which featured male nurses dressed in purple scrubs who
> attempted to
> > serve to me multi-colored pills on silver coctail trays! I was
> > certainly glad to be discharged the next day although I wish
> that my
> > neurological state had been evaluated in greater depth . . .
> > I have always expereinced difficulty in discerning dreams
> > from actual wakefulness -- waking dreams -- this happens also, when
> > especially tired (I have two part time jobs) and attempt to serve
> > customers long after our store has closed, my pharmacist boss,
> > fortunately, understands . . . I nearly always cannot remember
> > whether I have actually experienced a phenomenon or whether I have
> > dreamed it (this is very annoying as well as confusing and
> > embarrassing).
> > I bless the day when my wonderful neurologist put me on
> > Provigil as it all but completely knocks out my sleep attacks giving
> > me more confidence in myself than ever. In addition to
> working as a
> > chashier in the pharmaceutical section of a local drug store,
> I also
> > work as a master tutor in a nearby university where I help students
> > with anatomy and physiology, neuroscience, psychopharmacology and
> > advanced pathophysiology. Prior to Provigil I had to stand up for
> > the entire day and walk, if necessary, in order to remain
> > wakeful . . .sometimes even resorting to exercise! I HATED
> THAT SO
> > MUCH! I HATED MY SLEEP ATTACKS MORE THAN ANYTHING! My boss would
> > frequently need to bang on the door to the bathroom stall and
> > yell: "Janice, wake up! Your next study group is here!!" I
> wanted to
> > die for being caught sleeping on the job --- again! Neverhteless,
> > my kind boss stood by me and kept me in her employ for ten
> > years . . . and then when I told her that she would never
> again catch
> > me sleeping on the job because I am now on Provigil, my boss,
> who is
> > also a biochemist, threw her arms around me because, even before
> > sharing this with her, she knew that I had narcolepsy! What a
> > wonderful boss!
> > I also have been in graduate school . . for two years I
> > studies molecular anthropology and earned a Master's degree from
> > University of Alaska Fairbanks. I remained in Fairbanks for an
> > additional three years in oder to teach as an adjunct at Eielson
> > Airforce base and also at Ft. Wainwright. I, too, had longed to
> > join the military but my narcoleptic/cataplexctic history
> > disqualified me from both the navy and the marines. At least
> I was
> > able to serve as a professor . . . .
> > When I attemted doctoral studies at SUNY Albany I met with
> > disaster. I fell asleep during a graduate osteology class and the
> > professor branded me "brain damaged". My supervisor, under whose
> > direction I would have written my dissertation, dumped me and
> I left
> > for home, with my beloved cat, joining my mother in her senior
> > citizen's condo. It has been two years since then and the loving
> > support of my neurologist and two bosses have sustained me . .
> . I am
> > seriously considering returning to doctoral studies . . .this time
> > for chronobiology and the study of a possible relationship between
> > narcolopsy with cataplexy and the mood disorders (especially bipolar
> > I).
> > I very much look forward to chatting with anyone who wishes
> > to contact me . . .sorry for my rambling!
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> > --
> > No virus found in this incoming message.
> > Checked by AVG Free Edition.
> > Version: 7.1.409 / Virus Database: 268.15.2/559 - Release
> Date: 11/30/2006
> >
> >
>
>
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