So u tried Xyrem? it is $151 for 7 oz I dont have that kinda $ Thanks Vic
nettie1234@... wrote:
Vic `I guess state laws for cover of Xyrem may vary depending on what state you live in.
I am fairly certain If I wanted it I could get it from a doctor's presciption You have N which means you are not abusing it you will be using it to live a more productive and satisfying. The stuff is expensive I tried it and it helped my sleep life a lot but had not
positive effect on my
chronic pain. So I wish I could suggest something to help you Meanwhile until they figure out how to replace the hypocretin in The brain of people with N We have few choices. I wish you and your soon more peace and hopefully rest at night and calm alertness during the day.
Hi all I am in desprite need of someone to talk to. I am 28 yrs old and have 2 kids. I have been diagnosed w N for @ 5 yrs now and it still isnt under control...
Vic Do you have a doctor who will prescribe medicines which you can take in the early evening? Around 6 pm so you get enough sleep to be able to rise and ...
nettie1234@...
Sep 3, 2006 2:58 am
HI I am on Ritalin and adderal right now and soon the adderal will have me at 105 lbs and a heart rate of 122 at resting. I have been on just about everything....
Vic `I guess state laws for cover of Xyrem may vary depending on what state you live in. I am fairly certain If I wanted it I could get it from a doctor's ...
nettie1234@...
Sep 4, 2006 5:46 pm
So u tried Xyrem? it is $151 for 7 oz I dont have that kinda $ Thanks Vic nettie1234@... wrote: Vic `I guess state laws for cover of Xyrem may...
Also you might ask the doctor about elavil ( this is a known drug which has helped with N and pain for a long time. It is an antidepressant with positive sleep...
nettie1234@...
Sep 4, 2006 5:53 pm
Hi Vickie, NORD (National Organization for Rare Disorders) has a financial assistance program that may pay for your Xyrem if you qualify. I receive Xyrem for...
Hi Vickie, I'm sorry to say it's not helping me to feel better at all, but don't let my experience discourage you. Lots of people are benefitting from it. I...
HI so you have insomnia. Well that is a bummer too. But with help from nord they pay for it right? I feel for you I hope they find something to help you Take...
Oops....forgot to respond, Vickie! Yes, I have insomnia...the three forms of insomnia, according to my doctor. Yes, I have 6 sleep disorders, all of which...
Yes, Vickie, NORD pays for my Xyrem in full, thank God! I could never afford it! Never! My monthly prescription cost is $3,000! They are out of their...
oh my where is all your pain coming from? We all gotta stick together. Do u have children ? 6 different types of sleep disorders? How can that B? I am sorry I...
I'm a lot freer to do anything since being medicated with Xyrem. Specificially, it stops--almost entirely--cataplexy, which is embarrassing as well as...
Hi Jan, What dose are you on and have you experienced any side effects? Cindy ... From: Jan Saecker To: Narcolepsy-Chat@yahoogroups.com Sent: Thursday,...
Hi Vickie, Regarding the cause of pain, I have fibromyalgia, arthritis, myalgias, arthralgias, bursitis, tendonitis, pinched nerves, herniated disks in my...
Hi Cindy! My heart goes out to you! Have any of the doctors tried a med holiday with you? This is when you are off all or most of your meds for 2-4 wks. I know...
Cindy I am so sorry for you and you are in my prayers but hon keep your head up I now it must be hard but you are LOVED. They say evrything happens for a...
Erin, Thank you so much for writing and for your support and encouragement. I'll respond as soon as i can. Helpful info. I appreciate it! Cindy ... From:...
Hi Erin and Vickie, I've been feeling so bad the last few days, I haven't been able to respond. Just wanted to send a quick thank you, though. Your support...
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