I wish welcome to A club you never wanted to join. Most people do not understand narcolepsy but the neurologists, insurance companies and others who have the degree understand. However the rest of the world knows little or nothing about it Only share this information with your doctor and close family members who you may or may not understand and be a little sympathtic. Most people with N keep understand what it is like to have N
Some cases are worse than other My suggestion is to find a doctor with knowledge and caring This same doctor can prescribe drugs such as Provigil (keeps me awake during the day) Another drug to help with nighttime sleep that some find nothing short of a miracle
This drug is Gamma Hydroxy Butyrate (GHB It takes a while to get used to and find the
amount that works for you I am not sure which company is manufacturing
GHB. You could try to contact Orphan Medical they should know how you can get more information. Best of luck and a better tomorrow. Nettie(Chicago)