Search the web
Sign In
New User? Sign Up
Narcolepsy-Chat · This is a list for people whom suffer
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Message search is now enhanced, find messages faster. Take it for a spin.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Re: Hi, I'm new and I too notice a difference from other pe...   Message List  
Reply | Forward Message #2085 of 2876 |
I wish welcome to A club you never wanted to join. Most people do not understand narcolepsy but the neurologists, insurance companies and others who have the degree understand. However the rest of the world knows little or nothing about it  Only share this information with your doctor and close family members who you may or may not understand and be a little sympathtic. Most people with N keep understand what it is like to have N
Some cases are worse than other My suggestion is to find a doctor with knowledge and caring This same doctor can prescribe drugs such as Provigil (keeps me awake during the day) Another drug to help with nighttime sleep that some find nothing short of a miracle
This drug is Gamma Hydroxy Butyrate (GHB  It takes a while to get used to and find the
amount that works for you I am not sure which company is manufacturing
GHB. You could try to contact Orphan Medical they should know how you can get more information. Best of luck and a better tomorrow. Nettie(Chicago)


Mon Sep 12, 2005 6:49 pm

nettie1234@...
Send Email Send Email

Forward
Message #2085 of 2876 |
Expand Messages Author Sort by Date

I wish welcome to A club you never wanted to join. Most people do not understand narcolepsy but the neurologists, insurance companies and others who have the...
nettie1234@...
Send Email
Sep 12, 2005
6:57 pm

Orphan Medical (oohhh.. I wince to say that accursed name.. ahem.. did I say that outloud?) is the company that manufactures xyrem (ghb). If you need, you can...
cyber
mk3watcher
Offline Send Email
Sep 12, 2005
8:53 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help