Shelley in Louisiana  Hi!

Danita <nutsrus@...> wrote:

Shelley! I just realizes you are on this list too. Hi! Danita in
Illinois

---- In Narcolepsy-Chat@yahoogroups.com, Shelley Layton
<rochellelayton@y...> wrote:
> Hi Amber,
> 
> Can't speak for the other meds since my son has only been
prescribed Provigil.... as yet, but in my opinion.... it sucks!
> 
> Shelley
>
> Amber <ramblerambler@y...> wrote:
>
> Hi,
> Yeah, my N seems to cycle no matter what drug, what amount, or how
> much I sleep or practice "sleep hygiene".  It just doesn't seem to
> matter, it is always there but the EDS and hypnogogic
hallucinations
> are everyday, somedays more than others. The sleep paralysis and
> cataplexy are intermittent. 
>
> I ran into a drup rep today in the docs office who wanted to know
> what I thought of Provigil and I told him that nothing...absolutely
> nothing could keep me awake when I was having an episode and that
for
> the cost, Provigil was a waste of my money.  He said he had never
> heard of anyone not responding to Provigil.  Am I alone here?  I
> taken all kinds of stims and still fall asleep and still have all
> those other symptoms.  I feel tired most all the time no matter
what
> and this guy was surprised.  Has anyone else had basically no long
> term positive response to Provigil and CNS stimulants besides me?
>
> Feeling depressed!
> Amber
>
>
>
>
>
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