Amber, I have also.I have been occasionally adding ritilin to the
provigil and that has helped some. Provigil has been presented as a
miricle drug for EDS by the drug reps so medical professionals think
it works for all. I wonder how long our bodies can take all these
meds? Danita in Illinois

--- In Narcolepsy-Chat@yahoogroups.com, "Amber" <ramblerambler@y...>
wrote:
>
> Hi,
> Yeah, my N seems to cycle no matter what drug, what amount, or how
> much I sleep or practice "sleep hygiene". It just doesn't seem to
> matter, it is always there but the EDS and hypnogogic
hallucinations
> are everyday, somedays more than others. The sleep paralysis and
> cataplexy are intermittent.
>
> I ran into a drup rep today in the docs office who wanted to know
> what I thought of Provigil and I told him that nothing...absolutely
> nothing could keep me awake when I was having an episode and that
for
> the cost, Provigil was a waste of my money. He said he had never
> heard of anyone not responding to Provigil. Am I alone here? I
> taken all kinds of stims and still fall asleep and still have all
> those other symptoms. I feel tired most all the time no matter
what
> and this guy was surprised. Has anyone else had basically no long
> term positive response to Provigil and CNS stimulants besides me?
>
> Feeling depressed!
> Amber