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Re: cycle and a ? about Provigil   Message List  
Reply | Forward Message #1888 of 2876 |
Re: [Narcolepsy-Chat] Re: cycle and a ? about Provigil

Hi Amber,
 
Can't speak for the other meds since my son has only been prescribed Provigil.... as yet, but in my opinion.... it sucks!
 
Shelley

Amber <ramblerambler@...> wrote:

Hi,
Yeah, my N seems to cycle no matter what drug, what amount, or how
much I sleep or practice "sleep hygiene".  It just doesn't seem to
matter, it is always there but the EDS and hypnogogic hallucinations
are everyday, somedays more than others. The sleep paralysis and
cataplexy are intermittent. 

I ran into a drup rep today in the docs office who wanted to know
what I thought of Provigil and I told him that nothing...absolutely
nothing could keep me awake when I was having an episode and that for
the cost, Provigil was a waste of my money.  He said he had never
heard of anyone not responding to Provigil.  Am I alone here?  I
taken all kinds of stims and still fall asleep and still have all
those other symptoms.  I feel tired most all the time no matter what
and this guy was surprised.  Has anyone else had basically no long
term positive response to Provigil and CNS stimulants besides me?

Feeling depressed!
Amber




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Tue Feb 1, 2005 2:02 am

rochellelayton
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Message #1888 of 2876 |
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Hi, Yeah, my N seems to cycle no matter what drug, what amount, or how much I sleep or practice "sleep hygiene". It just doesn't seem to matter, it is always...
Amber
ramblerambler
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Jan 31, 2005
10:18 pm

Yes, Amber I have! Back when we were going through the entire drug chain because the provigil decided to take a break on whether it was going to work or not....
Jean Standfield
jeansurething
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Jan 31, 2005
10:53 pm

Hi Amber, Can't speak for the other meds since my son has only been prescribed Provigil.... as yet, but in my opinion.... it sucks! Shelley Amber...
Shelley Layton
rochellelayton
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Feb 1, 2005
2:02 am

Shelley! I just realizes you are on this list too. Hi! Danita in Illinois ... prescribed Provigil.... as yet, but in my opinion.... it sucks! ... ...
Danita
danitaeileen
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Feb 1, 2005
3:56 pm

Hey Danita... Shelley in Louisiana Hi! Danita <nutsrus@...> wrote: Shelley! I just realizes you are on this list too. Hi! Danita in Illinois ... ...
Shelley Layton
rochellelayton
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Feb 1, 2005
4:25 pm

Amber, I have also.I have been occasionally adding ritilin to the provigil and that has helped some. Provigil has been presented as a miricle drug for EDS by...
Danita
danitaeileen
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Feb 1, 2005
3:53 pm

I too wonder how long our bodies can take all these meds? I feel like such a lab rat for these Docs in my area. Sometimes I'm not sure which is worse the...
gary hardwick
grafikpro2002
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Feb 1, 2005
6:13 pm

Me too, having gone from max-out to max-out on just about everything "they" wanted to use for my symptoms. There were many a day when I would have much rather...
Jean Standfield
jeansurething
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Feb 1, 2005
8:40 pm

Yes, Jean, you can blame narcolepsy!! I always happy to lay the blame on something else...it makes more sense than saying I started having memory problems in...
Amber
ramblerambler
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Feb 1, 2005
11:37 pm

Thanks Amber. I don't know if this is good or bad but my memory and sleeping are the only things in my life that I CAN blame N for. All of the rest of me I...
Jean Standfield
jeansurething
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Feb 2, 2005
4:11 pm

For as long as I can remember I have never felt rested from the sleep I had the night before. If I got the sleep maybe from Xryem I would feel like I could do...
nettie1234@...
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Feb 4, 2005
4:50 am
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