Having problems with message search?
Jannette & Krissy,
Jannette, No you are wrong! Not all Narcoleptics can control there N with medication.
I am one of them. Diagnosed at age 15 now 29. I have been on every med out there for N. Nothing has worked for me. I went to U of M in Ann Arbor and saw one of the best doctors listed on the best doctors list of the United States. He tried very hard to help me but told me that out of 100 patients 50 of them wich is half (can not) be helped!
Krissy,
I have done research and talked with many moms with kids with Narcolepsy. I have a support group here where I live. I have found that a mother or father with N most likely will pass it on to the child. It's a 50/50 chance. One woman with 5 children- 4 have Narcolepsy and the 5th one does not. One woman with 3 kids- all 3 have it. So you take your chances as with anything in life. I was told by the doctor I saw that most likely my child will have it. I guess god spared that child- cause as bad as I wanted a baby, I'm infertile. It makes me sad... If you both really want this baby just be prepared that if one day she/he shows signs of N then you need to address it not ignore it and get the child some help... If you wish to further talk wiht me just e-mail me. :)
Kristina~
Narcolepsy-Chat@yahoogroups.com wrote:
Narcolepsy-Chat@yahoogroups.com wrote:
------------------------ Yahoo! Groups Sponsor --------------------~-->
$9.95 domain names from Yahoo!. Register anything.
http://us.click.yahoo.com/J8kdrA/y20IAA/yQLSAA/k2SolB/TM
--------------------------------------------------------------------~->
There is 1 message in this issue.
Topics in this digest:
1. Re: Re: Narcolepsy Question
From: "JR"
________________________________________________________________________
________________________________________________________________________
Message: 1
Date: Mon, 13 Sep 2004 08:41:03 -0700
From: "JR"
Subject: Re: Re: Narcolepsy Question
I agree Amdaroza!!!
----- Original Message -----
From: Amdaroza
To: Narcolepsy-Chat@yahoogroups.com
Sent: Saturday, September 11, 2004 9:48 PM
Subject: [Narcolepsy-Chat] Re: Narcolepsy Question
i think not enough is known about the disease to make a decision on
genetics, but since this is a disease that can be controlled with the
use of medication i would make the decision based on my heart and the
minute the kids arrive just make sure youre healthcare covers the
needed medications in case they develop it
--- In Narcolepsy-Chat@yahoogroups.com, "krissy_carlson"wrote:
> Hi everyone. I am not the one who has narcolepsy, its my boyfriend.
> He has it severe, he has the hallucinations, cataplexy, all of the
> symptoms. When he and I started getting serious about each other, I
> tried to research on it some. But I am wondering something. I am a
> very healthy woman, myself. So I am wondering if we were to have
kids
> together, that they would have narcolepsy, or if they could be
> healthy, since I am??
Yahoo! Groups Sponsor
ADVERTISEMENT
------------------------------------------------------------------------------
Yahoo! Groups Links
a.. To visit your group on the web, go to:
http://groups.yahoo.com/group/Narcolepsy-Chat/
b.. To unsubscribe from this group, send an email to:
Narcolepsy-Chat-unsubscribe@yahoogroups.com
c.. Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
[This message contained attachments]
________________________________________________________________________
________________________________________________________________________
------------------------------------------------------------------------
Yahoo! Groups Links
<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/Narcolepsy-Chat/
<*> To unsubscribe from this group, send an email to:
Narcolepsy-Chat-unsubscribe@yahoogroups.com
<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/
------------------------------------------------------------------------
Offline 
Send Email