Hi, I'm new here. *waves* I've had symptoms of Narcolepsy (sleep
paralysis, hallucinations upon dozing, EDS, confusion, memory loss,
automatic behavior [or so I'm told by my loved ones]) since about
age 14, and just completed an MSLT study this weekend. I have an
appointment with the doctor tomorrow morning to discuss the
results. I have a feeling he's going to tell me that his suspicions
were confirmed...

It's terrible that anyone has to go through the same things that I
do, but it's great that there are communities such as this where
people can share stories, ask questions, and just be a general
support for when Narcolepsy brings you down. I know how alone I
feel sometimes when people treat me badly and call me lazy. They
don't understand that you can't "just fight it", but I'm sure y'all
know that...

My husband and I have been talking about this a lot lately and he
asked me to describe to him how I felt. I told him the same thing I
posted at a LJ community:

"I guess the best way for me to describe how I feel would be heavy.
I feel like a pressure is on my head and behind my eyes all of the
time. Not a painful pressure like you get when you have a migraine,
but just a heavy feeling like you get when they give you morphine at
the hospital. My arms and legs feel weighed down and sometimes I
don't even have the energy to lift them, especially upon waking.
It's almost like an acceleration of gravity, like you're constantly
running through life at 2g's."

I wonder if any of you feel the same way about it?

I just worry about the use of stimulants as a means to combat
symptoms since I have a sensitivity to caffeine. All it does is
make me feel jittery, and not a bit more alert or awake. At least
now there is a non-amphetamine alternative, so I hope it does the
trick.

Well anyways, I've rambled on enough. I'll let y'all know what the
official word is tomorrow.

Ann
(The Ice Goddess)